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Support Group for Those of Us Living With Mild Dementia
Early Dementia & Mild Cognitive Impairment (MCI) | Last Active: Aug 11 1:15am | Replies (462)Comment receiving replies
Well,
I’ve been diagnosed with MCI; as I’ve spoke about here and have been sharing my experiences and symptoms.
I have been sharing these same experiences/ symptoms with all my doctors.
Had neurology appointment today and he broke the news that everything is pointing towards Lewy Body Dementia and is starting me on Donepezil or Don Perrone.😁
Sorry I had to throw a joke in there as it’s my way of coping.
I have been thinking that this is what I was going to hear from him based on my research, but it’s a lot heavier when he says it.
I hope the Donepezil will help.
I look forward to my visit in June and all the additional and new testing. Need to make sure they plan on skin biopsy for me.
I am blessed to have loving children, my son is my champion with all of this.
Thanks for reading.
Replies to "Well, I’ve been diagnosed with MCI; as I’ve spoke about here and have been sharing my..."
@craigbyrom, if we can’t laugh, what’s the point. I know I’m batsh*t crazy but when I take my meds as prescribed other people aren’t jerks.
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@craigbyrom
Don’t lose the faith bro!
Many people with Lewy body disease find that the disease dosent manifest into dementia, you can have Lewy bodies for many years and it kinda stabilizes.
I realize that this is heavy duty and can lead to melancholy, very natural. ( go ahead, ask me how I know 🙂).I wear a patch for my cognitive medication, the name escapes me now. The pill form really messed up my stomach.
They will take several skin biopsies from your thigh and ankle and back of your neck.
It may be awhile before results come back, as my hospital doesn’t have the means to process them and they had to be sent elsewhere.
Even if it is unwanted news, people adjust and eventually accept the fact that it is a disease with little hope for change.it took me a few months, but now I am good with it.
I’m on your side, you have all my support and then some.
God be willing. Regards, your friend, Ashley