Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

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That has to be difficult! I’m earlier than that- my husband is alert enough yet to be doing crazy things like working out for two hours straight- eating only cheetoes all day ( he’s a diabetic ) and obsessively going over and over and over the checkbook ledger involving me in this unnecessary and highly stressful process. He gets super confused while looking at all the numbers- gets more and more agitated and then drags me into the mess to solve it— when it isn’t even a problem in the first place—
He wants my help- but then when I give it he gets super angry because he wants to solve it and can’t - I try and calm things down - diffuse his anger- but in the end- he hates me more than ever. He is very mean. to me - I don’t know how to cope with his sharp biting words and dismissive actions. My feelings do not matter to him one bit . I could say it’s just the disease - but he hasn’t been formally diagnosed yet — and that’s a hard position to be in. Can anybody relate?

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Profile picture for judimahoney @judimahoney

@rebeccagrover
The loneliness is bizarre, because my husband is still here but doesn't interact or engage much. I feel you. ❤️‍🩹

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@judimahoney I’m so sorry for what you are going through- to lose communication with the one person you’ve been close to for so many years- is truely an unimaginable thing- you poor girl! please- talk to us- you’re not alone . and — we care.

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Profile picture for wctdoc1943 @wctdoc1943

@allalone You aren't all alone here. I live with emotions all over the place and I am the person who would have described myself as 'controlled' in the past, while my wife has always worn her emotions on her sleeve and quick to anger. I find myself frequently angry, sad, bewildered, frustrated, or just unable to express what it is I feel. My wife can go from seemingly happy with me and very loving and appreciative of all I do, to blaming me for everything she is miserable about. When she drinks, most things are 10X worse. I can feel sorry for her, but I can be livid with anger when her drinking turns her into Ms Hyde. At least my adult children understand my situation (my wife has no children) and are very supportive. And she has a sister who has good understanding of my situation. It's okay to feel what you feel. Hugs 🤗🤗🤗.

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@wctdoc1943 oh my word- you poor man ! you are going through the ringer! I feel so sad for you- hang in there! How have you learned to cope ?

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Profile picture for rebeccagrover @rebeccagrover

@wctdoc1943 oh my word- you poor man ! you are going through the ringer! I feel so sad for you- hang in there! How have you learned to cope ?

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@rebeccagrover I’m still learning what helps and what doesn’t. I have a special friend I talk with who is a great support.
Thank you for your kind comments.

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Profile picture for rebeccagrover @rebeccagrover

That has to be difficult! I’m earlier than that- my husband is alert enough yet to be doing crazy things like working out for two hours straight- eating only cheetoes all day ( he’s a diabetic ) and obsessively going over and over and over the checkbook ledger involving me in this unnecessary and highly stressful process. He gets super confused while looking at all the numbers- gets more and more agitated and then drags me into the mess to solve it— when it isn’t even a problem in the first place—
He wants my help- but then when I give it he gets super angry because he wants to solve it and can’t - I try and calm things down - diffuse his anger- but in the end- he hates me more than ever. He is very mean. to me - I don’t know how to cope with his sharp biting words and dismissive actions. My feelings do not matter to him one bit . I could say it’s just the disease - but he hasn’t been formally diagnosed yet — and that’s a hard position to be in. Can anybody relate?

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@rebeccagrover I am on a similar track, but closer to the beginning and not sure if its early dementia. Husband had sometimes given incomplete answers in the past leading to “50 questions” or a misunderstanding.
But now most questions and/or answers are short and he gets annoyed if I question him further, or I get frustrated and upset when the who/what/when activity is different from what he said. This didn't happen in the past to this extent. And I think he recognizes that he made a mistake, and he is feeling frustrated, but taking it out on me.
We’ve talked about the increasing arguments, but it hasn’t changed.
Unless this group has a better solution, I guess I need to limit these casual conversations on topics that matter. Make note to follow up later. And just check the details as best I can from another source if possible. I need to manage my frustration level or I’ll need a higher dose of blood pressure meds.
Any nuggets of wisdom?

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Profile picture for wctdoc1943 @wctdoc1943

@rebeccagrover I’m still learning what helps and what doesn’t. I have a special friend I talk with who is a great support.
Thank you for your kind comments.

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@wctdoc1943 i wish you the best my friend.

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Profile picture for Rubyslippers @triciaot

@rebeccagrover I am on a similar track, but closer to the beginning and not sure if its early dementia. Husband had sometimes given incomplete answers in the past leading to “50 questions” or a misunderstanding.
But now most questions and/or answers are short and he gets annoyed if I question him further, or I get frustrated and upset when the who/what/when activity is different from what he said. This didn't happen in the past to this extent. And I think he recognizes that he made a mistake, and he is feeling frustrated, but taking it out on me.
We’ve talked about the increasing arguments, but it hasn’t changed.
Unless this group has a better solution, I guess I need to limit these casual conversations on topics that matter. Make note to follow up later. And just check the details as best I can from another source if possible. I need to manage my frustration level or I’ll need a higher dose of blood pressure meds.
Any nuggets of wisdom?

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@triciaot so sorry youare going thrutbat…it IS SO frustrating. Ifeel sometimes like im about to pop.
I know that he gets super confused especially when trying to multitask in any way— realizes hes confused—tries to gain control in his brain but cant. That’s usually the point when im trying to offer help…but he responds with rudeness and meanness , not really because of me, but just because of his situation….and his emotions over not feeling in control. I get the brunt— every time. Im trying to be logical but it is very hard— especially when we used to be so very close. It hurts. We have talked about the situation and what happens, figured out what we might do to lessen the stress, but he cant remember those conversations at all anymore to apply our strategies— its like the first time —every time the frustration comes on. His congnition has lapsed to that degree. But— he still insists that he’s completely fine and its all me. Rough stuff. I hope things go better for you my friend.
This is a journey i wish we didnt have to take— but here we are…trying to navigate successfully and keep together. Our daughter encourages me to limit our conversation like you said, maybe be more choosy about what we feel we have to talk about so as to avoid a thing! If you need blood pressure meds upped…do it- you will need the support and we gotta take good care of ourselves. W
They need our support, but we need support too— from somewhere…cuz it wont come from our husbands now- they dont have it to give. I think realizing that is key. Hang in there…you are not alone.

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Profile picture for maryvc @maryvc

Yes, there are many of us dealing with IT. You can read some of my posts. My husband was officially diagnosed in early 2023 but changes were apparent before that. We will be married 52 years next year. This is sad to see our husband lose his ability to think for himself and engage as the partner we once had.
I savor the good times, forgive myself for exploding at times, and hug him at least once a day no matter what.
Good that you have a therapist. I have one for me once a week and my husband has a neuropsychologist who calls him once a week. I get in on those sessions and it’s often marriage counseling.
Hang in there and stay connected here.
I found this sight when one day I was taking a walk and just sobbing. I searched “my husband has MCI..” and found this to be soothing and helpful.
I hope you find some peace in knowing there are many of us with you in the same boat.

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@maryvc I see a number of people here mention having therapists they see once (or more) a week! Does Medicare cover any of this? Therapists in our area are very expensive (several hundred a visit) and don't take Medicare...

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Yes. All of our therapists are covered by Medicare if you have a supplemental and Medicare Advantage. You have to find therapists that take Medicare and there are many

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Profile picture for Rubyslippers @triciaot

@rebeccagrover I am on a similar track, but closer to the beginning and not sure if its early dementia. Husband had sometimes given incomplete answers in the past leading to “50 questions” or a misunderstanding.
But now most questions and/or answers are short and he gets annoyed if I question him further, or I get frustrated and upset when the who/what/when activity is different from what he said. This didn't happen in the past to this extent. And I think he recognizes that he made a mistake, and he is feeling frustrated, but taking it out on me.
We’ve talked about the increasing arguments, but it hasn’t changed.
Unless this group has a better solution, I guess I need to limit these casual conversations on topics that matter. Make note to follow up later. And just check the details as best I can from another source if possible. I need to manage my frustration level or I’ll need a higher dose of blood pressure meds.
Any nuggets of wisdom?

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@rubyslippers, et al: whew, it is a relief to read your post about how difficult conversation is getting. The 50 questions seem necessary to understand what subject he is discussing and Who!
As the day runs down it is difficult to engage in ANY verbal communication successfully!
I bet you wish you could click those ruby slippers together and appear somewhere calm, comforting and quiet somedays.

However, this is our lot sister- we need to dig deep, stay as positive as humanly possible and “accept this is our reality”!
Each day I emphasize to myself that today I can see the best in actions, appreciate every kind word, manage to keep my mouth shut when frustrated and make today the best day this week! I’m not saying I am successful, but by making this my goal I find I can learn to keep my mouth shut and maybe never understand the story he just told me. I don’t have any solutions to our new roles, I’m just as confused as we can get. We do have eachother to vent to when necessary and share a situation that may help each other. Thanks for being there!

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