Screening Method Discrepancies

Posted by dmac70 @dmac70, Mar 21 5:11am

Just got my results back from my CT scan. Devastated…my original reading in February was 4.2 cm for an ascending aorta aneurysm by an echocardiogram and now the CT scan a month later is 4.6 cm.
4 mm difference in a month sounds huge to me, but going on Dr Google it states that it is more likely a more accurate measurement than actual growth.
Anyone else have a big difference in size due to the method of screening?

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Profile picture for wanneram @wanneram

@tomcgauley

Thanks for your reply.

I don't dare get my hopes up until the CT scan, that initial diagnosis of 47 mm has had a major impact on me.

I am hardened by all kinds of severe setbacks in my life, but not when it comes to my health.

How much longer do you have to wait before you qualify for surgery? I assume that because of that bicuspid aortic valve, they aren't going to wait until 55 mm?

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@wanneram I have been fortunate to be seen by some good cardiologist and it's more about symptoms than size.

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Profile picture for tomcgauley @tomcgauley

@wanneram I have been fortunate to be seen by some good cardiologist and it's more about symptoms than size.

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@tomcgauley

Often there are no symptoms associated with an ascending aortic aneurysm until an emergent situation arises.

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Profile picture for wanneram @wanneram

(This coming Saturday, I have another ultrasound at someone else's (private clinic), and on March 31st, I am going to the hospital for a very extensive examination based on the results of the first MRI scan. I will come back to the differences in the measurement results)

On Saturday, March 28, I went to another (private) clinic for my second ultrasound. I requested that extra attention be paid to the diameter of the ascending aorta and the root.

The results were double-checked; the findings are root 41 mm and ascending aorta 39 mm. The valves are functioning well, and blood pressure is good.

On March 31, I finally went to the hospital for an intake at the cardiology department. I indicated there that there was a large discrepancy between the MRI and the two ultrasounds. According to the cardiologist, the difference is too large. So, something went wrong somewhere.

I also had a very comprehensive ultrasound here, and an ultrasound from the same hospital from 2015 was also available for comparison. The echocardiogram was performed by two radiologists who checked each other's readings. The measurement was subsequently verified by the radiologists and the cardiologist re-measured everything thoroughly for extra certainty, and this also came to 40 mm for the ascending aorta.

During the results discussion, the cardiologist indicated that, given my BSA and age, there is nothing unusual going on. However, I did suggest that, for the sake of my anxiety and uncertainty, it would be better to have a CT scan performed for 100% certainty.

The cardiologist complied with this, and I will have the CT scan at the hospital on May 18th.

The cardiologist did indicate that he did not doubt the three echocardiograms, which showed 40 mm, 39 mm, and 40 mm respectively—taken in three different clinics and by different radiologists and cardiologists, and all double-checked for diameter.

What I do find strange is that various publications mention different ultrasound results if the scan is performed by different radiologists and at different times. These results correspond quite closely.

I am now waiting for the scan on May 18 and will share the result here.

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@wanneram
Maybe I'm. Wrong if it's 4 or 3.9 it seem more very large. Are they looking for problems with valve.

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Profile picture for rlhix @rlhix

@tomcgauley

Often there are no symptoms associated with an ascending aortic aneurysm until an emergent situation arises.

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@rlhix Yes, many people with ascending aortic aneurysms have no symptoms at all, often earning it the nickname "silent killer". While early, subtle warning signs like vague chest, back, or neck pain, hoarseness, or coughing can occur, they are often dismissed or overlooked until a dangerous rupture or dissection.

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Profile picture for carlwgordon @carlwgordon

@wanneram
Maybe I'm. Wrong if it's 4 or 3.9 it seem more very large. Are they looking for problems with valve.

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@carlwgordon
Sorry it doesn't seem large

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Profile picture for carlwgordon @carlwgordon

@wanneram
Maybe I'm. Wrong if it's 4 or 3.9 it seem more very large. Are they looking for problems with valve.

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@carlwgordon

For my BSA (2.42 m2 Du Bois, 115 kg and 190 cm) and age (53 y), 40 mm is just at the upper limit. According to the cardiologist, no follow-up is needed for this. However, I did insist on a CT scan with contrast for 100% certainty. My valves have now been checked three times in one month and fortunately no abnormalities were found.

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Profile picture for wanneram @wanneram

@carlwgordon

For my BSA (2.42 m2 Du Bois, 115 kg and 190 cm) and age (53 y), 40 mm is just at the upper limit. According to the cardiologist, no follow-up is needed for this. However, I did insist on a CT scan with contrast for 100% certainty. My valves have now been checked three times in one month and fortunately no abnormalities were found.

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@wanneram
That's great good health

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