Anyone have Vagus nerve problems causing strange, unnerving symptoms?

Posted by joannemm34293 @joannemm30809, Mar 23, 2023

Does anyone else have debilitating symptoms that affects the entire body, especially in the morning hours, and my Arrhythmia Dr told me I have Vagus Nerve malfunctions that causes major issues where my heart goes off beat, I have to continually use the bathroom and I get an overall body feeling of just feel sick, rush of nausea etc.

I still have the overall muscle twitching and strange internal vibrations as well as tinnitus and thumping sounds in my right ear.

Does anyone else have Vagus nerve problems that cause strange, unnerving symptoms??

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Profile picture for billeekhof @billeekhof

@ativ1207 I had the same probloms with dizziness an passing out so I have some kind of autoimmune thing no specific name but was told my vegas nerve was deterating an causing sudden dangerous blood pressure drops had nerve test as well as a million others but thats was what they said an no treatment to speak of

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Hello @billeekhof and welcome to Mayo Clinic Connect. As this is your first post, I am wondering who diagnosed the vagus nerve deterioration. Was this diagnosed by a neurologist or other specialist?

How are you feeling now?

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That is so interesting, I have those symptoms. I had many tests and even wore a halter monitor. The cardiologist said he found nothing wrong . They put it all down to my fibromyalgia. This confirms how I feel about doctors , it's not easy finding a knowledgeable one
Rather scary I'd say.

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Profile picture for 19281928 @19281928

That is so interesting, I have those symptoms. I had many tests and even wore a halter monitor. The cardiologist said he found nothing wrong . They put it all down to my fibromyalgia. This confirms how I feel about doctors , it's not easy finding a knowledgeable one
Rather scary I'd say.

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@19281928. You mention similar symptoms but I can’t tell who you are responding to.

Fibromyalgia is in the mix of issues I deal with as well, and like you addressing my fibro was what my cardiologist recommended at our last visit.

Do you mind sharing more, what are your symptoms? Do you think you will pursue learning more about fibromyalgia?

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Profile picture for Janell, Volunteer Mentor @jlharsh

@19281928. You mention similar symptoms but I can’t tell who you are responding to.

Fibromyalgia is in the mix of issues I deal with as well, and like you addressing my fibro was what my cardiologist recommended at our last visit.

Do you mind sharing more, what are your symptoms? Do you think you will pursue learning more about fibromyalgia?

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@jlharsh the sudden rush of nausea, constantly feeling the need to pee. My heart goes crazy jumping all over (not constantly).My body feels like it's vibrating at times. I hear my heart beating very loudly in my ears . I'm in a fibromyalgia group and they have many of the same symptoms so I just don't know for sure. I've had fibromyalgia 30 plus years , seems I always learning something. I know that fibromyalgia mimics so much other stuff so I will consult with my doctor about this

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Profile picture for Janell, Volunteer Mentor @jlharsh

@19281928. You mention similar symptoms but I can’t tell who you are responding to.

Fibromyalgia is in the mix of issues I deal with as well, and like you addressing my fibro was what my cardiologist recommended at our last visit.

Do you mind sharing more, what are your symptoms? Do you think you will pursue learning more about fibromyalgia?

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@jlharsh I forgot to mention the dizziness and my blood pressure dropping and feeling faint (I haven't fainted though)

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Profile picture for stephaniescomment @stephaniescomment

I've already commented but I still haven't found an answer, I have cirrhosis but my gi Dr said he's never had anyone else with these symptoms. I can't eat or have anything in my digestive system without having a ton of nuerologic symptoms. Internal vibrations, blurry vision, dizziness, balance issues, heart pounding, sharp pains, all Vegus nerve stuff. Why these nerves are all the sudden so sensitive I don't know but all my Dr can say is anxiety. I don't feel anxious but I'll take the meds or any meds that will stop this. I can't function anymore. It's completely dibilitating. 😖

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@stephaniescomment
Can we talk?! I have all this and it’s taking over my life. Have you found any relief or answers?

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Profile picture for 19281928 @19281928

That is so interesting, I have those symptoms. I had many tests and even wore a halter monitor. The cardiologist said he found nothing wrong . They put it all down to my fibromyalgia. This confirms how I feel about doctors , it's not easy finding a knowledgeable one
Rather scary I'd say.

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@19281928 it has been my experience that when doctors do not have an answer for your particular problem(s), and they know you have a history of fibromyalgia they point to fibromyalgia as the cause.

My neighbour, who also has fibromyalgia, has said she deliberately leaves fibromyalgia off her list of medical conditions for that reason.

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

@nycmusic

I appreciate your input. By imaging, do you mean a specific scan? If so, in what area of the body was the scan done?

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@hopeful33250 I had abdominal ultrasound, CT of abdomen/pelvic area, MRI and colonoscopy- all of which indicated a malignant colon tumor…we caught it before it spread, though it grew until treatment kicked in.

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