@19lesterk, I did have some serious muscle spasms when they initially ramped the dosage up during the first week. But I have a lot of back issues to begin with. They continue to check my neuro function at each injection. The BIG negative is that it affected my t-cells. I was all ready for CAR-T but my t-cells could not be modified. My doc knew it could be an issue but I just don't think he realized how quickly it would happen. So that would be my word of caution I guess. If your dad has to go on it, hopefully it doesn't affect the car-t process.
@abby5 Thank you for sharing that with me. It’s always helpful to hear real stories. I’ll keep you in my thoughts and I hope the teclistamab continues to work for you!
@abby5 Thank you for sharing that with me. It’s always helpful to hear real stories. I’ll keep you in my thoughts and I hope the teclistamab continues to work for you!
Wow, so much to go through. I was primary care giver for my parents. Dad had lung cancer and passed away at home with a little hospice support. Mom had a series of strokes and passed away 6 months later. It was a lot to go through and I still question did I do everything I could. But I tell myself, I did my very best for them at the time. The doctor ordered speech therapy for Mom. She hated it - she did it until she could say you're fired! Mom was a feisty one. But back to now..I have multiple myeloma. Last fall, it turned very aggressive and changed to plasma cell leukemia. I was in ICU for a week and reg room for 3 more weeks. Reg chemo didn't do anything, but then they put me on Teclistamab injections. That worked for me. But I was told it prob will only give me 10 months, then I'm not sure what the doc will do. I'm the meantime, I'm getting my affairs in order. Death will happen, sooner or later. I'm glad you have sisters, built in support team. I hope something I said helped
I guess I wanted you to know, you are not alone in facing tough times and decisions with parent care. Use this board, you have some great support from the other posters. And I'm available if you need me. Best of luck 🤞
Wow, so much to go through. I was primary care giver for my parents. Dad had lung cancer and passed away at home with a little hospice support. Mom had a series of strokes and passed away 6 months later. It was a lot to go through and I still question did I do everything I could. But I tell myself, I did my very best for them at the time. For instance the doctor ordered speech therapy for Mom. She hated it - she did it until she could say you're fired! Mom was a feisty one. But back to now..I have multiple myeloma. Last fall, it turned very aggressive and changed to plasma cell leukemia. I was in ICU for a week and reg room for 3 more weeks. Reg chemo didn't do anything, but then they put me on Teclistamab injections. That worked for me. But I was told it prob will only give me 10 months, then I'm not sure what the doc will do. I'm sorry if I already told you this on previous post , I'm not savvy with this yet! In the meantime, I'm getting my affairs in order. I'm 64 - how old are your parents? I'm trying to face death will happen, sooner or later. I'm glad you have sisters, built in support team. I hope something I said was helpful.
I guess I wanted you to know, you are not alone in facing tough times and decisions with parent care. Use this board, you have some great support from the other posters. And I'm available if you need me. Best of luck 🤞
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@abby5 Thank you for sharing that with me. It’s always helpful to hear real stories. I’ll keep you in my thoughts and I hope the teclistamab continues to work for you!
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Wow, so much to go through. I was primary care giver for my parents. Dad had lung cancer and passed away at home with a little hospice support. Mom had a series of strokes and passed away 6 months later. It was a lot to go through and I still question did I do everything I could. But I tell myself, I did my very best for them at the time. The doctor ordered speech therapy for Mom. She hated it - she did it until she could say you're fired! Mom was a feisty one. But back to now..I have multiple myeloma. Last fall, it turned very aggressive and changed to plasma cell leukemia. I was in ICU for a week and reg room for 3 more weeks. Reg chemo didn't do anything, but then they put me on Teclistamab injections. That worked for me. But I was told it prob will only give me 10 months, then I'm not sure what the doc will do. I'm the meantime, I'm getting my affairs in order. Death will happen, sooner or later. I'm glad you have sisters, built in support team. I hope something I said helped
I guess I wanted you to know, you are not alone in facing tough times and decisions with parent care. Use this board, you have some great support from the other posters. And I'm available if you need me. Best of luck 🤞
Wow, so much to go through. I was primary care giver for my parents. Dad had lung cancer and passed away at home with a little hospice support. Mom had a series of strokes and passed away 6 months later. It was a lot to go through and I still question did I do everything I could. But I tell myself, I did my very best for them at the time. For instance the doctor ordered speech therapy for Mom. She hated it - she did it until she could say you're fired! Mom was a feisty one. But back to now..I have multiple myeloma. Last fall, it turned very aggressive and changed to plasma cell leukemia. I was in ICU for a week and reg room for 3 more weeks. Reg chemo didn't do anything, but then they put me on Teclistamab injections. That worked for me. But I was told it prob will only give me 10 months, then I'm not sure what the doc will do. I'm sorry if I already told you this on previous post , I'm not savvy with this yet! In the meantime, I'm getting my affairs in order. I'm 64 - how old are your parents? I'm trying to face death will happen, sooner or later. I'm glad you have sisters, built in support team. I hope something I said was helpful.
I guess I wanted you to know, you are not alone in facing tough times and decisions with parent care. Use this board, you have some great support from the other posters. And I'm available if you need me. Best of luck 🤞
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