Anyone with Plasma Cell Leukemia or family?

Posted by Kris Mikkalson @krismikkalson, Jan 20, 2025

good day,
has anyone here been diagnosed or had family diagnosed with PCL?

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Profile picture for abby5 @abby5

@19lesterk, I did have some serious muscle spasms when they initially ramped the dosage up during the first week. But I have a lot of back issues to begin with. They continue to check my neuro function at each injection. The BIG negative is that it affected my t-cells. I was all ready for CAR-T but my t-cells could not be modified. My doc knew it could be an issue but I just don't think he realized how quickly it would happen. So that would be my word of caution I guess. If your dad has to go on it, hopefully it doesn't affect the car-t process.

Jump to this post

@abby5 Thank you for sharing that with me. It’s always helpful to hear real stories. I’ll keep you in my thoughts and I hope the teclistamab continues to work for you!

REPLY
Profile picture for 19lesterk @19lesterk

@abby5 Thank you for sharing that with me. It’s always helpful to hear real stories. I’ll keep you in my thoughts and I hope the teclistamab continues to work for you!

Jump to this post

👍

REPLY
Please sign in or register to post a reply.