@knikriverstudios. Welcome to Mayo Connect. Reading your bio you mentioned having both MM (multiple myeloma and PCL (plasma cell leukemia). They are related in that they are both cancers of the plasma cells but MM, generally the cells remain in the bone marrow. With PCL, the abnormal cells are in circulation in your blood stream as well.
How have you been doing with your treatments? Are you responding well? What medication are you receiving?
@pmm
Hi
I have Plasma Cell Lewkemia.
I’m in treatment .5th cycle
Do you think I should tell my siblings ?
Is it possible they our ther children could get it ?
Thank you
@pmm
Hi
I have Plasma Cell Lewkemia.
I’m in treatment .5th cycle
Do you think I should tell my siblings ?
Is it possible they our ther children could get it ?
Thank you
@knikriverstudios hi there. I am no expert on that particular blood disorder, but I wanted to respond about talking to your siblings. I always try and put myself in the shoes of my family when I consider what and when to tell them about my health concerns. For me, I’d want to know so I can provide some support to my family if they are struggling. That and I would want to be aware of serious health concerns so that I can adjust to the “new normal” for my family.
You are the expert on your family, but those are my thoughts about it, being completely ignorant about your family dynamics.
My very best to you as you make this weighty decision. I’d like to know how it goes for you if you don’t mind sharing.
Patty
@pmm
Hi
I have Plasma Cell Lewkemia.
I’m in treatment .5th cycle
Do you think I should tell my siblings ?
Is it possible they our ther children could get it ?
Thank you
Plasma cell leukemia is caused by acquired genetic changes during plasma cell development. This means as plasma cells grow and multiply genetic changes take place. Plasma cell leukemia isn't directly inherited like a genetic trait. You might speak with your oncologist about the risk of siblings or children developing PCL and if genetic testing is advised.
Connect
Connect
Like
Helpful
Hug
@loribmt
Yes you are correct.
I have PpCL a sub type of Mm
Treatment is CyborD.
Was medicated from Anchorage to Fred Hutchinson in May.
-
Like -
Helpful -
Hug
1 Reaction@pmm
Hi
I have Plasma Cell Lewkemia.
I’m in treatment .5th cycle
Do you think I should tell my siblings ?
Is it possible they our ther children could get it ?
Thank you
-
Like -
Helpful -
Hug
1 Reaction@knikriverstudios hi there. I am no expert on that particular blood disorder, but I wanted to respond about talking to your siblings. I always try and put myself in the shoes of my family when I consider what and when to tell them about my health concerns. For me, I’d want to know so I can provide some support to my family if they are struggling. That and I would want to be aware of serious health concerns so that I can adjust to the “new normal” for my family.
You are the expert on your family, but those are my thoughts about it, being completely ignorant about your family dynamics.
My very best to you as you make this weighty decision. I’d like to know how it goes for you if you don’t mind sharing.
Patty
-
Like -
Helpful -
Hug
1 Reaction@knikriverstudios, I moved your question telling your siblings to this discussion on plasma cell leukemia:
- Anyone with Plasma Cell Leukemia or family?https://connect.mayoclinic.org/discussion/plasma-cell-leukemia/
Plasma cell leukemia is caused by acquired genetic changes during plasma cell development. This means as plasma cells grow and multiply genetic changes take place. Plasma cell leukemia isn't directly inherited like a genetic trait. You might speak with your oncologist about the risk of siblings or children developing PCL and if genetic testing is advised.