Love is all there is

Posted by georgescraftjr @georgescraftjr, Mar 19 12:29pm

Good morning from a fellow sleep-deprived caregiver.

First, whether you believe in God or not, I want you to know that I believe that there is a positive force in this Universe and that there are good people (like our Mayo Clinic Connect Community Director), who have our backs.

Second, I also want to share that it doesn't matter whether or not the "calvary is...coming," as long as you love.

From a caregiver's perspective, love often feels like a one-way street, especially when the person for whom we provide care doesn't smile, can't talk, or never initiates tenderness. Although any of those scenarios may be hurtful, they are also gifts: Pain teaches us to open our hearts even further than we realize is possible, and to continue to give all the love we have. As the song goes:

https://genius.com/Sheryl-crow-love-is-all-there-is-lyrics

At the end of this journey, it matters not how much we acquired or achieved in this life: all that really matters is whether we loved regardless of whether we feel we were loved in return. (When we feel lacking in love, perhaps we have unrealistic expectations, or we have lost sight of God's eternal love.)

And when we on occasion ask God, "where are you God?," the answer may be found in many things of grandeur--and in many small moments of grace or good fortune. For example, several months ago, I left the keys in the ignition of my car with the engine running while I was at the doctor's office with my husband; but no one drove off with our car. Another example: Last night I left the garage door open, and the door that leads into our house from the garage unlocked; but we did not have any intruders. (Hopefully, these examples of my mindless acts will make some of you feel better about yourselves--real life, action heroes!--and about things like losing or misplacing your keys, glasses, wallets, etc. (things we do when we are overtired or overwhelmed).

In closing, again, love--and keeping our perspective and sense of humor--is all that matters; so we can't sweat the little things. To drive this point home, I want to share a story: I called a fellow caregiver and told her that my husband rinsed his urinal in our kitchen sink. She laughed so hard, and could barely speak when she was telling me that her husband rinsed his diapers in her kitchen sink because he didn't want her to know that he had diarrhea!

Be well, and enjoy the day because this is the BEST day. It keeps going downhill from here; so be grateful and prepare yourselves for the journey ahead. My heartfelt thank to the members of this forum.
You are my calvary.

Love and prayers,
George's Wife

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Not Valentine's Day love, but the Love that drives you when you've got nothing left.👋

REPLY

reflection on end-of-life care
In end-of-life care,
we are not the driver of the bus.
The course of the illness is not ours to control.
Instead, we sit beside the passenger and make sure they are not traveling alone.
X
xo Gabby

REPLY

"They are not traveling alone," because we - every beloved caregiver on this site - is traveling with them. We have the courage to face the day, the clarity to know what to do even when we don't know what to do, and God's powerful light to show us the way. Every day.
Thank you Georges wife for your "love" post and every reply.....I love all these posts.

REPLY
Profile picture for kjc48 @kjc48

"They are not traveling alone," because we - every beloved caregiver on this site - is traveling with them. We have the courage to face the day, the clarity to know what to do even when we don't know what to do, and God's powerful light to show us the way. Every day.
Thank you Georges wife for your "love" post and every reply.....I love all these posts.

Jump to this post

@kjc48

...and we are all pilgrims (caregivers, people needing care, and forum members) traveling together.

The ligament tears in my thumbs, then the meniscus tear in my knee and even the two torn ligaments--and rash all over my face--did compel me to give up George and my pseudo-independence. Without the combined wisdom of all of you who have shared advice, I would not have been able to make the decision to get a full-time, live-in caregiver. (The on-going dialogue from ocdogmom has especially been helpful.)

Although family members--including our eight adult children--occasionally visit, their verbal support has not translated to ongoing, actual help. I finally heard it loud and clear: The calvary is not coming.; let go and let God (working through dedicated, professional caregivers).

Again, my heartfelt gratitude for your collective support.

George's Wife

REPLY

Please share how you found your full time live in caregiver.

REPLY
Profile picture for swimmers43 @swimmers43

Please share how you found your full time live in caregiver.

Jump to this post

@swimmers43

Good fortune. The caregiver who started working for us yesterday was recommended by a former colleague whose mother was cared for by the caregiver's wife.

This weekend, we are going to try a second caregiver, and he was recommended by our neighbor across the street. This second person is the roommate of the caregiver who took care of our neighbor's husband.

In the past, we had four hours of help on Wednesday from a caregiver we found through Care.com.

Good luck finding a person who will be a good fit for you and your loved one.

George's Wife

REPLY
Profile picture for georgescraftjr @georgescraftjr

@swimmers43

Good fortune. The caregiver who started working for us yesterday was recommended by a former colleague whose mother was cared for by the caregiver's wife.

This weekend, we are going to try a second caregiver, and he was recommended by our neighbor across the street. This second person is the roommate of the caregiver who took care of our neighbor's husband.

In the past, we had four hours of help on Wednesday from a caregiver we found through Care.com.

Good luck finding a person who will be a good fit for you and your loved one.

George's Wife

Jump to this post

@georgescraftjr Quite a network. Thank you.

REPLY

My heartfelt thank you for sharing this. Love has no boundaries…

REPLY
Please sign in or register to post a reply.