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Sleep Disorders & Parkinson's Video

Posted by Teresa, Volunteer Mentor @hopeful33250, Jun 8, 2017

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

During our discussion about Mood Disorders and Parkinson's some of our Members discussed that sleep problems affect their mood. This is certainly true - the better we sleep, the better we feel during the day. I recently came across a video done by the University of Michigan in which Dr. Andrew Berkowski discusses this phenomena in Parkinson's patients, here is the website where you can watch this presentation, https://www.youtube.com/watch?v=6s4A6HFkjGo&feature=youtu.be

I hope that you learn something from this video that will be helpful to you in understanding your sleep problems and the types of remedies available.

Teresa

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

knightkris | @knightkris | Jun 8, 2017

Thanks for rhe video. I will, when I have some time, check it out. As it is my main problem. Sleep! Or excuse me, lack of .

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Teresa, Volunteer Mentor | @hopeful33250 | Aug 8, 2017
In reply to @knightkris "Thanks for rhe video. I will, when I have some time, check it out. As it..." + (show)
@knightkris

Thanks for rhe video. I will, when I have some time, check it out. As it is my main problem. Sleep! Or excuse me, lack of .

Jump to this post

Hi Kris, @knightkris

Have you had a chance to look at the video yet? I'm always wondering what people take away from these videos.

Teresa

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 27, 2017

I was just thinking about the video that I posted and wondering how you are all doing with your sleep problems.

Any new developments in your sleep health? Have you found any good solutions yet? Is there anything you would like to share that might be helpful to the rest of us?

Teresa

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3 replies
ggopher | @ggopher | Sep 27, 2017
In reply to @hopeful33250 "I was just thinking about the video that I posted and wondering how you are all..." + (show)
@hopeful33250

I was just thinking about the video that I posted and wondering how you are all doing with your sleep problems.

Any new developments in your sleep health? Have you found any good solutions yet? Is there anything you would like to share that might be helpful to the rest of us?

Teresa

Jump to this post

I had a supervised sleep study a few months ago that resulted in getting an oral appliance due to apnea and then a home sleep study to verify it is working. But I still nap a lot and have a few other issues. 

Had a Neuro appointment today and it appears I’m not taking the Sinemet right. The probiotic helps with my bowels but can’t be taken with Sinemet which I have been doing. So, I’ll make that change, put caffeine and soda (for taking Sinemet) back in my

diet and see where that leads. 

Oh, and I have Raynaud’s.

Steve  

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 27, 2017
In reply to @hopeful33250 "I was just thinking about the video that I posted and wondering how you are all..." + (show)
@hopeful33250

I was just thinking about the video that I posted and wondering how you are all doing with your sleep problems.

Any new developments in your sleep health? Have you found any good solutions yet? Is there anything you would like to share that might be helpful to the rest of us?

Teresa

Jump to this post

It is good to hear from you Steve, @ggopher

It sounds like you have had a lot of changes since we last heard from you. I am glad to hear that the sleep study resulted in some help for you.

Is the sleeping apparatus a CPAP machine? Are you getting more REM sleep now?

Teresa

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ggopher | @ggopher | Sep 27, 2017
In reply to @hopeful33250 "I was just thinking about the video that I posted and wondering how you are all..." + (show)
@hopeful33250

I was just thinking about the video that I posted and wondering how you are all doing with your sleep problems.

Any new developments in your sleep health? Have you found any good solutions yet? Is there anything you would like to share that might be helpful to the rest of us?

Teresa

Jump to this post

The apparatus is like two tooth trays hinged together to push the lower jaw forward. A CPAP was not recommended.

I can’t say my REM has improved much but I don’t seem quite as tired all day as I did. Napping a little less.

Steve  

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 28, 2017

Thanks for the additional information, Steve, @ggopher, could you give us the name of this apparatus?

Teresa

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1 reply
ggopher | @ggopher | Sep 28, 2017
In reply to @hopeful33250 "Thanks for the additional information, Steve, @ggopher, could you give us the name of this apparatus?..." + (show)
@hopeful33250

Thanks for the additional information, Steve, @ggopher, could you give us the name of this apparatus?

Teresa

Jump to this post

The brand name of mine is Silent Night.

My kids would call that a Dad Joke.

There are a number of dentists in town making these or similar ones for around $600.

Steve  

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 28, 2017

Thanks, Steve @ggopher, I had not heard about that before. From your description it doesn't sound like any air is being used like the CPAP.

Teresa

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