Started Repatha - Side Effects

Update to this post, I tried and could not tolerate Repatha either so I’m on supplements and hoping for the best.

@wgr123 I had frequent falls on Repatha. It took a while to figure out the cause of my falls, but once the half-life period of detox from the drug was past, the problem was gone completely for me. I found the half life prediction extremely accurate. I had marked the last date Repatha could be in my body on a calendar and looked forward to freedom day (full detox). Never any problem at all after that date.

@tatiana987 Thank you for the response. Did your side effects lessen as you approached the end date, or did they stay at the same intensity until the end of the half-life?

I've been seeing 60–90 days roughly to clear. I'm at day 87 and I had just started to think I was feeling better, not so stiff, but today the stiffness is back full force.

TIA

No one can tell you the answer. My experience was that every statin, every dose caused intolerable pain. So, if you had pain on one you probably had pain on the other. And, sadly, will probably have pain on Repatha. The pain takes longer to show up on Repatha, for me, about 2 months. I thought I had finally found one I could take, but, when the pain came, it can hard. Just my experience. I wish you well. Unfortunately, doctors just want you to take it no matter what pain you are in. A lot of people take statins without a problem which makes it hard on those that have bad side effects. The doctors tend not to believe us, which is ridiculous. I’m not a whiny toddler, I am a 77 year old smart woman that wishes she could take them, it would be so easy if I could. Instead I have spent a decade having terrible life disrupting side effects as doctors keep trying different brands and different doses after which I spend months each time nursing myself back to health. I finally said “I quit” to which my doctor said “then I can’t help you.” A stunning statement to hear from your heart doctor. Actually, if he really cared, he would work with me on other things that might help and, at least, be sympathetic. On my own I got a base line Lipid Panel and started taking Beta-Sitosterol PlantSterols which are supposed to to lower my LP(a). So far no side effects. I will do another Lipid Panel in 6 months. I have to do something.

That’s what I need but I don’t think it exists in Baton Rouge. I saw my internist today. Even though my total cholesterol is 265 when that number is divided by my HDL which is 91 I get a very low ratio which is super good. He said he wasn’t worried about my health because of my high HDL and my low ratio number. I did have a LPa run today, I’ll probably get the result tomorrow so I can see if the Beta-Sitosterol lowered that of not. The cardiologist was ruining my life. I’m not stressed about it anymore. I won’t be returning to that cardiologist. My internist said I was strong, not overweight, exercise daily, eat healthy and have a low ratio number. I’m good in spite of 265 total cholesterol.

Repatha caused my muscle and joint pain. I’m hoping it’s temporary. When I took statins I had to stop because the painful side effects did not go away.

@llynch17056
Are you still on the repatha? I had one shot and I am afraid to get another. Diarrhea, nausea, sore throat and fee miserable.

My doctor recently told me that Repatha wont get rid of plaque, but it will stabilize it to prevent it breaking off.

@llynch17056 it’s not the hard plaque that breaks off. It’s the soft plaque rupturing leading to a clot that gets you. Hard plaque is stable and as long as it doesn’t block anything I’d live with that any day. Statin, Repatha , Whole Foods and exercise creates an environment that plaque won’t like