Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for jillemckeon @jillemckeon

I took the following steps when I noticed things "weren't right" with my DH and it lead to his MCI diagnosis. Maybe this could be helpful to others:

*I started to keep of log of issues that I saw; all those little things that were odd, not right, not his usual self. I used my Notes app on my iPhone and included the date and a description of what happened. Once I saw from my own notes that there were some patterns and it wasn't just me thinking weirdly, we went to the neurologist, thank goodness. Those notes were also helpful to the neurologist and neuro-psychologist.

*Once we got the MCI diagnosis, I had a private conversation with our financial planner to explain the situation and asked that absolutely no transactions be conducted unless we both had approved it. He also suggested that I fill out a form that would allow me to do certain future account transfers more easily once DH wasn't capable.

*I had to accept the fact that I have to go to every doctor's appointment with him; the audiologist for his hearing aids, the cardiologist, the orthopedist, the primary care physician, etc. I take notes and (I'm a nerd) I keep a spreadsheet of all the different medical issues because I can't remember all of it myself. DH doesn't write anything down and doesn't remember important information so it is my job to understand everything now. He can still go to the dentist and optometrist himself though. My days are often filled with just his doctor appointments.

Appreciate everyone's contributions in this forum. It is so comforting to know we are not alone as we walk these very very difficult paths.

Jump to this post

@jillemckeon
I’ve done same. One time at a doctor appt he showed his “mean” side with the doctor’s
Student. I waz i. Tears- actually crying hard. The dr walked in and asked what was going on. To cut to the chase the dr told him he should take meds ( i ageeed) . Otherwise he
May have to place him in a facility for my sake. That’s how we got him to take meds.

REPLY
Profile picture for kmliste @kmliste

@jillemckeon
I’ve done same. One time at a doctor appt he showed his “mean” side with the doctor’s
Student. I waz i. Tears- actually crying hard. The dr walked in and asked what was going on. To cut to the chase the dr told him he should take meds ( i ageeed) . Otherwise he
May have to place him in a facility for my sake. That’s how we got him to take meds.

Jump to this post

@jillmckeon
Sorry for the typos!

REPLY
Profile picture for jillemckeon @jillemckeon

I took the following steps when I noticed things "weren't right" with my DH and it lead to his MCI diagnosis. Maybe this could be helpful to others:

*I started to keep of log of issues that I saw; all those little things that were odd, not right, not his usual self. I used my Notes app on my iPhone and included the date and a description of what happened. Once I saw from my own notes that there were some patterns and it wasn't just me thinking weirdly, we went to the neurologist, thank goodness. Those notes were also helpful to the neurologist and neuro-psychologist.

*Once we got the MCI diagnosis, I had a private conversation with our financial planner to explain the situation and asked that absolutely no transactions be conducted unless we both had approved it. He also suggested that I fill out a form that would allow me to do certain future account transfers more easily once DH wasn't capable.

*I had to accept the fact that I have to go to every doctor's appointment with him; the audiologist for his hearing aids, the cardiologist, the orthopedist, the primary care physician, etc. I take notes and (I'm a nerd) I keep a spreadsheet of all the different medical issues because I can't remember all of it myself. DH doesn't write anything down and doesn't remember important information so it is my job to understand everything now. He can still go to the dentist and optometrist himself though. My days are often filled with just his doctor appointments.

Appreciate everyone's contributions in this forum. It is so comforting to know we are not alone as we walk these very very difficult paths.

Jump to this post

@jillemckeon I sort of did the same thing, documenting odd behaviors, but it had not yet dawned on me that there was any sort of pattern, or that he was overall different I thought it was because he retired and I was around him too much. I would constantly ask google “if a person says this or that” or “if a person does this or that” and then when the answer came back, there would be extended info about it and I would click on the square with the arrow and either send it directly to the printer or to my own email to look into further. I have also used a couple of in phone journaling sites. This went back as far as early ‘21 and he was diagnosed in December’24!! So many things that scream dementia!! But I still didn’t add it up in a timely manner.
I go to appointments with him, like you, but luckily not as many.
We have our financial & legal ducks in a row. Financially he is still pretty sensible, but sometimes I wonder if I’m naive about his decisions because they don’t seem far fetched. (But sometimes they do…). 🤔
Aurgh!!!
Hang in there, we’re here and we hear you.

REPLY

Yes I can very much relate to your feelings.

REPLY

OMGosh! Sounds just like me. Married 53 years to a needy husband who now has MCI and is low key somedays and all over the place other days. I'm trying to find a therapist for myself to deal with the emotional stress but meanwhile, my daily devotionals and Abide meditations are really helping. Having huge meltdowns are not good for my own health. I've made the commitment AGAIN to try to be kind and not say hurtful words which I end up feeling guilty about later. It's hard because I'm half Italian and have a temper. It's not worth the stress at my age to yell at someone who can't understand how or why he upset me anyways. I'm back to prayer which is the only place I am able to find comfort and peace. This helps me stand back and be a little more objective. AI answers on the internet are helpful too when asking about dealing with a husband with MCI. I'm here if you need someone to share your feelings with. I get it and it ain't fun.

REPLY
Profile picture for lkbous @lkbous

@jillemckeon I sort of did the same thing, documenting odd behaviors, but it had not yet dawned on me that there was any sort of pattern, or that he was overall different I thought it was because he retired and I was around him too much. I would constantly ask google “if a person says this or that” or “if a person does this or that” and then when the answer came back, there would be extended info about it and I would click on the square with the arrow and either send it directly to the printer or to my own email to look into further. I have also used a couple of in phone journaling sites. This went back as far as early ‘21 and he was diagnosed in December’24!! So many things that scream dementia!! But I still didn’t add it up in a timely manner.
I go to appointments with him, like you, but luckily not as many.
We have our financial & legal ducks in a row. Financially he is still pretty sensible, but sometimes I wonder if I’m naive about his decisions because they don’t seem far fetched. (But sometimes they do…). 🤔
Aurgh!!!
Hang in there, we’re here and we hear you.

Jump to this post

@lkbous
Yes, very random stuff. Some days ok but other days not so much. He knows he's got a problem with memory and figuring things out. Our kids and my sister can see it in his eyes and facial expressions but he still drives ok 🙏 Gets himself to the pool everyday to swim, does a bible study with a few guys, plays 9 holes of golf and comes home pooped. Since he never has been a good communicator, I've always missed that but now it's even worse so I keep our exchanges very simple. I watched my poor sister deal with her husband for 10 years! 8 of those he was in a facility. Aaaargh. I did hear the MCI can get better but his sister is in a facility now with full on dementia(!) so, just say'n... Thank God, I have no family members with this horrible disease.

REPLY
Profile picture for oneputt @oneputt

OMGosh! Sounds just like me. Married 53 years to a needy husband who now has MCI and is low key somedays and all over the place other days. I'm trying to find a therapist for myself to deal with the emotional stress but meanwhile, my daily devotionals and Abide meditations are really helping. Having huge meltdowns are not good for my own health. I've made the commitment AGAIN to try to be kind and not say hurtful words which I end up feeling guilty about later. It's hard because I'm half Italian and have a temper. It's not worth the stress at my age to yell at someone who can't understand how or why he upset me anyways. I'm back to prayer which is the only place I am able to find comfort and peace. This helps me stand back and be a little more objective. AI answers on the internet are helpful too when asking about dealing with a husband with MCI. I'm here if you need someone to share your feelings with. I get it and it ain't fun.

Jump to this post

@oneputt
It was recommended that I search for a therapist that has experience working specifically with caregivers. I did find one, there is one in our small town and I have to wait 5 months to see them. Meanwhile, I am my own therapist. 😀

REPLY

I am just starting on this journey with my husband.
We have no close family to support us, only 1-2 friends who understand.
I am already running out of patience, we have an argument and both of us upset when trying to accomplish anything on the computer.
I am great full for online groups for support.
The future frightens me.

REPLY
Profile picture for rutgersmom123 @rutgersmom123

Yes I can very much relate to your feelings.

Jump to this post

@rutgersmom123, are you also caring for someone with mild cognitive impairment? How are you doing?

REPLY
Profile picture for allalone @allalone

I am just starting on this journey with my husband.
We have no close family to support us, only 1-2 friends who understand.
I am already running out of patience, we have an argument and both of us upset when trying to accomplish anything on the computer.
I am great full for online groups for support.
The future frightens me.

Jump to this post

@allalone I think the future frightens all of us. As I move through my own husband's diagnosis, the one thing I keep feeling over and over - is fear. I have found running out of patience is something I also felt in the beginning - but I realize that he isn't doing it on purpose. It's whatever is happening in his brain. And I also recognize that fighting about the computer, and accomplishing anything is much more difficult than it used to be. So I've started to go in and clean his computer mail out, as he keeps getting things from the doctor, but doesn't say anything. I'm helping him on his text too, to clean that out. We do it together, although it does make him nervous at times. I have all the passwords in one place, his and mine. and Health Portals. I froze our credit bureaus, and did a fraud alert since he was hacked into last year, which was a mess to get everything straightened out. I don't have any close family to support us either. We're in this alone. But for me, I've reached out for support groups, and attending a caregiver set of classes at our local hospital for MCI - Alzheimer's. Dr. Natali, Careblazers has helped, (on line) and Teepa Snow, I keep reading there are classes on line to take. I haven't done that yet. I'm Meeting with the lawyer again next week, to get help there, since the wills/trust are going to have to be adjusted for the medical diagnosis, etc. Just try to set the same time, to help him with the computer. That way, it becomes consistent and he doesn't fight it. My husband has now gotten to the point, that he's handing me his phone to look at what he's getting so I can delete or save it. That didn't happen right away. It's just a slow process and one, that we as caregivers, have to know what to say and do, to minimize the "melt downs" at the computer or wherever.

REPLY
Please sign in or register to post a reply.