Do you wonder about the advancements AI might bring to bonchiectasis?

Interesting share.
Yes, I look forward to having AI be a good tool for helping in many ways....and of course with having BE, Bronchiectasis.....do help it helps directly and indirectly.
With how things are going in the educational areas, here in the U.S......many will not be able to function without seeking out AI. Let's just hope is used correctly no less than 90% of the time.
Barbara

read about a Siemens naeotom alpha CT scan, worlds first photon counting CT (pcct) and somotom force- suppose to be much lower radiation and with all the ct's we get, figured this would be much better. my one Dr I see (not lung) said CT scan 70x more radiation than xray. mentioned Simon med, but any labs I've contacted don't seem to be familiar with it. anyone else heard of it or used it

@akron3 That sounds interesting. My pulmologist has said something similiar about CT scans. We don’t want to expose ourselves to them unless they are medically required. It decreases our risk of developing cancer in the long term.

When I mentioned that CT scans seem to be more widely utilized in the USA, he did say that the medical system in the United States is more profit driven.

It is just a reminder that if there is no change in our lung function results with few flare ups and we have mild and/or stable bronchiectatsis that we don’t need annual CT scans.

@jnmy This is a good reminder. My pulmonologist does a CT scan every 2-3 years for my stable Bronchiectasis. Even with an exacerbation, they order an x-ray, sputum culture, and pulmonary function testing first, as these often provide enough information to determine treatment.

I rely on Chatgbt for guidance on how I take care of myself with bronchiectasis. My doctors therapist gave me little guidance other than how to load and do saline and then use an acapella and blow on it as hard as I can for 60 times and that was it. After two years and guidance from AI I have been adjusting and fine tuning my procedures all the way from cleaning and sterilizing equipment, how hard I need to do my Aerobika and how to eliminate nighttime coughing and it is working beautifully. Open AI, which is chatgbt, is heavily involved in medicine now and I use them for other medical issues both I and my wife have. I also subscribe to Google's Gemini, however, they are heavily leaning towards recommending stuff so I just use them for everything other than medical.

@blm1007blm1007 I use OpenAI (Chatgbt) for all my medical advice and it has helped me tremendously. It is like having a medical person in the room with me 24/7 which is not the case with doctors. AI Bots accumulated their information in seconds and it is gleaned from all over the world so they get studies and other data to get specifics on what my doctor tells me during that five or ten minute visit. I highly recommend subscribing and using it for guidance on just about everything.

@picartist @blm1007blm1007 and all members - I strongly recommend that anyone using ChatGPT or other AI providers read this new Mayo article:
https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/can-you-trust-ai-for-health-advice/
The problem with this "...AI Bots accumulated their information in seconds and it is gleaned from all over the world..." is exactly that. AI is NOT transparent about the algorithm used to gather information (considered proprietary), nor sources of their information (in most cases). It could be from a FaceBook post, a scam website, an unqualified person with personal biases, or a true unbiased scientific study or noted authority. For example, we have seen AI responses that directly quote posts on Mayo Connect - not an authoritative source.

The EXACT wording of your inquiry can affect the result drastically.

Please do not use AI as a diagnostic tool. It is okay to use ChatGPT or similar to fill in gaps in your knowledge by finding reputable sources you can go to for information, but one should never rely on the AI summary without delving into the underlying source.

All decisions made using AI sources should be shared with and confirmed by your healthcare providers.

@sueinmn I would never recomend anyone use AI for diagnose a medical issue. However, it is perfectly fine to mention your complaints and see what it says. Always see a physician. However, medical institutions are using it heavily now and here is something I pulled off Mayo showing how they are using it.
https://newsnetwork.mayoclinic.org/discussion/mayo-clinics-2025-performance-advances-its-patient-centered-mission/

@sueinmn I agree that we must always know the underlying source of information if anyone is attempting to rely on AI to make decisions about our health. I do think it has a place, as you and others have mentioned, to add details to doctor recommendations or even suggest new information that we can confirm afterwards with reliable medical sources.

What I’m excited about is how AI technology is being used by some scientists and researchers to aid them in their work. New antibiotics, medical equipment and other treatments are in the realm of possibility.

Just best to be wary about medical information gleaned from ChatGPT until we understand more about how it can be manipulated and how these systems could manipulate folks using it. I’ll read the article you posted.

@picartist I am familiar with this article from Mayo Clinics - but the big difference between ChatGPT and other public-forum AI platforms and the ones in the article is that PSA Control Tower, Nurse Virtual Assistant, and the others draw their data from a tightly controlled and vetted set of resources.

In the interest of clarity for our members and other readers, would you mind adding something similar to your statement "...I would never recomend anyone use AI for diagnose a medical issue. However, it is perfectly fine to mention your complaints and see what it says. Always see a physician..." whenever you mention using ChatGPT?