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Cerebellar stroke experience, treatment, recovery

Posted by strokesurvivordynamo @strokesurvivordynamo, Apr 21, 2017

I suffered a Cerebellar Stroke in Dec 2015 in my 40s and am interested in connecting with other cerebellar stroke survivors to share our experiences, testing/therapy options, struggles on the path to recovery.

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Profile picture for Lisa Lucier, Moderator
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Lisa Lucier, Moderator | @lisalucier | Mar 17 1:08pm
In reply to @midnightsun18 "I wouldn't mind some insight. My spouse age 42 suffered a stroke I was told Left..." + (show)
Profile picture for midnightsun18 @midnightsun18

I wouldn't mind some insight. My spouse age 42 suffered a stroke I was told Left Inferior cerebellum and middle cerebral. We have been separated so I have no details on the events leading up to it. He is currently paralyzed on the right side, can only say no, yeah and uh. Responds to questions with headshakes which lead me to believe he understands. Has shown emotion (sadness, I mentioned our dog died). His health wasn't the best leading up to this, he is not overweight just didn't eat well and take care of himself. Its been 13 days, I wouldn't mind some information on where you began and how you progressed. I don't know what to think, although he does have an infection in the heart which he is received 6 weeks antibiotics for and may need a heart valve replacement in the future.

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@midnightsun18 - you mentioned your spouse from whom you were separated at the time had a stroke. Not sure what your marital status is at this juncture, but wondering how he is doing?

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Profile picture for Lisa Lucier, Moderator
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Lisa Lucier, Moderator | @lisalucier | Mar 25 9:35am
In reply to @neverquit72450 "Thank you! I’m learning…. We have no choice!! I’m sorry to hear your story. I am..." + (show)
Profile picture for neverquit72450 @neverquit72450

Thank you!
I’m learning…. We have no choice!!

I’m sorry to hear your story. I am very empathetic to everyone that has had to endure this struggle. Although I know everyone has their own set of challenges, I feel for every one that has to accept their “new life”. It’s terrible and it’s not fair…. I guess that’s life

I have still have some issues with dizziness/vertigo, but not as bad as it was in the beginning. My main struggle is ataxia and tremor which makes it very difficult and painful to walk and balance. I keep trying new things and praying for another miracle!!

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@neverquit72450 - wondering how things are going with some of the symptoms you'd mentioned you were dealing with, like ataxia and tremor?

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