Cerebellar stroke experience, treatment, recovery

Posted by strokesurvivordynamo @strokesurvivordynamo, Apr 21, 2017

I suffered a Cerebellar Stroke in Dec 2015 in my 40s and am interested in connecting with other cerebellar stroke survivors to share our experiences, testing/therapy options, struggles on the path to recovery.

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

sophie98 | @sophie98 | Nov 21, 2025

Not exactly. The NHS does still commission PFO closure, but only for specific situations- mainly for people around age 60 or under who have already had a stroke linked to a PFO. It isn’t routinely funded just to ‘prolong life’ or for people without a prior stroke. So the NHS no longer commissions PFO closures isn’t correct, it’s just limited to certain criteria.

Lisa Lucier, Moderator | @lisalucier | Feb 3 3:59pm

In reply to @4santajoe "Hello everyone, My husband and I are very new to this... he is 56yrs old and..." + (show)

Hi @4santajoe - wondering how things are going lately with your husband? Has he gotten to do the OT and PT you were planning on?

Lisa Lucier, Moderator | @lisalucier | Feb 3 4:17pm

In reply to @barbarajean100 "I know it’s kind of crazy to “report” what would seem insignificant to a lot of..." + (show)

@barbarajean100 - are you still picking up your groceries as you mentioned in this post a few years back? How is your body feeling lately?

Lisa Lucier, Moderator | @lisalucier | Feb 3 4:31pm

In reply to @bigpaper1 "I had my stroke Dec. 3, 2016. I got help quick but left side was impaired..." + (show)

@bigpaper1 - just wanted to check in and see how you are doing lately? Are you still experiencing impairment on your left side?

Lisa Lucier, Moderator | @lisalucier | Feb 3 5:21pm

In reply to @crewsr "My doctor gave me a prescription for Lorazepam 1 mg when the anxiety gets too much..." + (show)

@crewsr - just wanted to see how you are doing after your basal artery stroke? Are your shingles all gone? Did you have postherpetic neuralgia?

johnsons0405aol | @johnsons0405aol | Feb 6 12:19am

I was also in my 40’s when I had my Aneurysm it’s a blessing to have survived it’s nice to meet you. I do have a couple deficiencies that I’m trying to cope withbutI’m not giving up.

Teresa, Volunteer Mentor | @hopeful33250 | Feb 6 5:32am

In reply to @johnsons0405aol "I was also in my 40’s when I had my Aneurysm it’s a blessing to have..." + (show)

Hello @johnsons0405aol and welcome to Mayo Clinic Connect. How wonderful that you can share your survival story here with others on Connect.

As this your first post, please share a little about your history with the Aneurysm. For example, what type of therapies were most helpful in your recovery? You mention having a few deficiencies, yet. How are they impacting your life?

I look forward to hearing from you!

Lisa Lucier, Moderator | @lisalucier | Feb 13 9:33am

In reply to @johnsons0405aol "I was also in my 40’s when I had my Aneurysm it’s a blessing to have..." + (show)

Hi @johnsons0405aol - wondering how you are doing these days?

suzyq1971 | @suzyq1971 | Feb 17 11:01pm

In reply to @elizabethmm "My Stroke was about two years ago, I had no or little symptoms at the time,..." + (show)

@elizabethmm
I had a cerebellar stroke in June 2023. I woke up with vertigo and I felt nauseous so I tried to get to bathroom but fell face first on carpet no hands. I crawled to my phone and texted my daughter who lives nearby. She came over and called 911. That was a Wednesday at 0530. Am o took me across the street to hospital where they determined I had Kaiser so was transported 20 miles to their hospital. The ct scan didn’t show a stroke. At Kaiser I was given tests but Sunday they were going to release me because I was sleeping a lot. I remember nothing. My dtr told the night nurse that I thought it was 1971 and it became an emergency. I was given an MRI that showed hydrocephalus and a stroke. I was transported to LA where a neurosurgeon put a stent in my braid to relieve the pressure. I was in a coma for 6 days and on a ventilator. I had to learn to walk again but I was throwing up even on the vent. I threw up for 4 months. I was moved to a rehab facility for 2 weeks getting PT. Long story short, it’s been almost 3 years and I’m still feeling like a drunk with dizziness that doesn’t improve. I walk every day and am back at PT. They keep saying I need to keep doing exercises to Improve but it feels worthless. I think they waited too long to decide I had a stroke and treat it. My depression makes me not want to be around people as I’m not fun to be around. Im Hoping some other survivor can shed light and give me hope. TY

Scott R L | @scottrl | Feb 17 11:51pm

What a scary experience!
I can relate. I had an ischemic stroke on Christmas Eve, 2018. I was 350 miles from home, visiting relatives.
I spent 8 days in Acute Care, then 2-1/2 weeks in a rehab hospital before being released to travel home.

It's been a tough journey -- lots of pain, dizziness, isolation, frustration, and hard work.
But it's also been instructive, rewarding, and even successful in unexpected ways. For example, last year I had several appearances on TV telling Dad Jokes.

You can see my ongoing story here, on my YouTube channel, "From Recovery to Discovery". Please take a look.
https://m.youtube.com/@srlucado/videos

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