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I am 31 year old male recently diagnosed with mitral valve prolapse

Posted by shinew94 @shinew94, Jan 29 9:27pm

I have had more than 3 or 4 ekgs done , I’ve had stress tests done, I’ve had scans done of my heart , And they tell me my heart is fine, I’m on my last legs here mentally , Some days the tightness gets really bad then randomly changes up whenever , sometimes it burns extremely bad almost like a brunch pulling squeezing feeling, Feels heavy at times , And probably not even two week ago the symptoms weren’t that horrible, I’ve been dealing with this for more than 10 years and symptoms seems to be the same. I’m losing my mind . That is also including the pain I’ve been chronically dealing with n the left side of my head been to neurologists scans done of my brain multiple times , with nothing. The pain starts under my cheekbone and feels like heavy pressure and pulling and I feeling it squirming and pain radiates bad into my temple and the back side of my left side of head , it just aches and throbes .

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jgillil2 | @jgillil2 | Mar 12 12:49pm
In reply to @shinew94 "I am a 31 year old male diagnosed with mvp and trace regurgitation. I need some..." + (show)
Profile picture for shinew94 @shinew94

I am a 31 year old male diagnosed with mvp and trace regurgitation. I need some help and peace of mind , I was told I was born with this . I have had these symptoms since I was a young teenager , not much has really changed in my symptoms they are just annoying to deal with most days are same symptoms burning, squeezing sensations in chest minor aches in chest and in left arm , dizziness is probably the worst part for me I am not sure if the dizziness is from something else with me , I have trigiimnal nerulgia as well and I’ve been told I may have inner ear problems . But regardless I have dizziness , unsteady sensations . I will post my summary after report , I been using ai to decode what was told to me in the summary , which I’m hoping is correct , the fraction is 55-60% . Overall left ventricular ejection fraction is estimated to be 55-60%. Left ventricular wall motion is normal. Normal Diastolic Function. Mild mitral valve prolapse. Trace mitral regurgitation. Right ventricle is normal in size and function. Right ventricular systolic pressure is normal. Reason for Study: Precordial pain [R07.2 (ICD-10-CM)]; MVP (mitral valve prolapse) [I34.1 (ICD-10-CM)]. Procedure: 2D Echo with Doppler and color flow (93306). The exam was diagnostic. Left Ventricle: Overall left ventricular ejection fraction is estimated to be 55-60%. Normal left ventricular wall thickness. Left ventricle is normal in size. Left ventricular wall motion is normal. IVSd: 0.63 cm (0.6-1.1) LV Mass Index: 55.4 grams/m2 LVPWd: 0.71 cm (0.6-1.1) RWT: 0.26 cm LVIDd: 5.5 cm (3.6-6.0) FS: 29.2 % LVIDs: 3.9 cm EF (MOD-bp): 58.6 % Diastolic Function: Normal Diastolic Function. MV E/A: 1.4 Lateral E/E': 6.0 Medial E/E': 8.0 Right Ventricle: Right ventricle is normal in size and function. TAPSE_phl: 3.2 cm RV S Vel_phl: 20.9 cm/sec Left Atrium: Left atrial size is normal. Left Atrial Vol Index: 15.8 ml/m2 Apical 2 LA Area: 13.4 cm2 Apical 4 LA Area: 14.9 cm2 LA Volume Length: 4.7 cm Right Atrium: Right atrial size is normal. IVC size is dilated. IVC does collapse >50% with respiration. RAP systole: 8.0 mmHg Mitral Valve: Mitral valve leaflets appear normal. Trace mitral regurgitation. Mild mitral valve prolapse. Mitral valve area by the pressure half-time method is 2.1 cm^2. No mitral valve stenosis. MV V2 max: 123.1 cm/sec MV V2 VTI: 39.9 cm MV max PG: 6.1 mmHg MV mean PG: 2.3 mmHg MVA(P1/2t): 2.1 cm2 MV P1/2t-pr_phl: 103.1 msec MVA(VTI): 2.2 cm2 MV P1/2t: 103.1 msec MV dec slope: 347.0 cm/sec2 Aortic Valve: Aortic valve is normal in structure. The aortic valve is trileaflet. No aortic regurgitation is present. Aortic valve peak gradient is 8.8 mmHg. Aortic valve mean gradient is 4.5 mmHg. Aortic valve area is 2.8 cm^2. Aortic valve area is 2.8 cm^2. No hemodynamically significant valvular aortic stenosis. Aortic max: 148.4 cm/sec LV V1 VTI: 24.8 cm Ao max PG: 8.8 mmHg AV VR_phl: 0.79 Ao mean PG: 4.5 mmHg Ao V2 VTI: 31.1 cm SI(LVOT): 37.5 ml/m2 SV(LVOT): 86.8 ml AVA(I,D): 2.8 cm2 DVI: 0.80 AVA(V,D): 2.8 cm2 LVET (DOP)_phl: 0.31 sec AVA(VTI)/BSA_phl: 1.2 Flow Rate: 281.6 ml/sec CO(LVOT): 5.6 l/min LVOT diam: 2.1 cm LVOT area: 3.5 cm2 ACS: 2.1 cm CI(LVOT): 2.4 l/min/m2 Aortic Root: Aortic root is normal size. Ao root diam: 3.1 cm asc Aorta Diam: 3.2 cm Tricuspid Valve: Tricuspid valve is normal in structure and function. Trace tricuspid regurgitation is present. The right ventricular systolic pressure is 27.4 mmHg. Right ventricular systolic pressure is normal. RVSP(TR): 27.4 mmHg Pulmonic Valve/Pulmonary Artery: Pulmonic valve is not well visualized. PA acc time: 0.15 sec PA max PG: 3.4 mmHg PA mean PG: 1.8 mmHg Pericardium: No pericardial effusion. No pleural effusion. ECG/Heart Rate: Normal sinus rhythm, with a rate of 62 beats per minute. I have a cardiologist appointment Friday , what should I expect . I’m really hoping they will help me with my symptoms at least.

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Hi! I was diagnosed with mvp with regurgitation over 40 years ago when I was in my 30's (I'm almost 72 now). I was prescribed Atenolol and have been taking it ever since. I was first prescribed 5 MG, then over time it was upped to 10 MG and eventually 25 MG, which is the current dosage. My doctor explained that the Atenolol slows down the heart rate and relaxes the blood vessels. Since I was first diagnosed, I have learned from experience that certain things can trigger my heart getting out of sync, causing it to race, to include becoming overheated, walking too fast, tripping over something and overexertion via exercise (no aerobics for me, lol). As my heart pumps, a little blood flows back, then my heart tries to compensate and beats faster, until it reaches up to 120 beats a minute. The first time that happened, I got overheated and actually passed out. That was when my doctor diagnosed me with MVP. When this happens, I have to just sit and rest until it calms down and gets back in sync. Fortunately, I haven't had such an episode in a long time. Now, this may be unique to me/my body, but that has been my experience. I've never thought to read the reports of the various echos that I've undergone over the years. BTW, I believe that I inherited MVP, because my dad had it, too.

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Janell, Volunteer Mentor | @jlharsh | Mar 13 6:45pm
In reply to @shinew94 "I am a 31 year old male diagnosed with mvp and trace regurgitation. I need some..." + (show)
Profile picture for shinew94 @shinew94

I am a 31 year old male diagnosed with mvp and trace regurgitation. I need some help and peace of mind , I was told I was born with this . I have had these symptoms since I was a young teenager , not much has really changed in my symptoms they are just annoying to deal with most days are same symptoms burning, squeezing sensations in chest minor aches in chest and in left arm , dizziness is probably the worst part for me I am not sure if the dizziness is from something else with me , I have trigiimnal nerulgia as well and I’ve been told I may have inner ear problems . But regardless I have dizziness , unsteady sensations . I will post my summary after report , I been using ai to decode what was told to me in the summary , which I’m hoping is correct , the fraction is 55-60% . Overall left ventricular ejection fraction is estimated to be 55-60%. Left ventricular wall motion is normal. Normal Diastolic Function. Mild mitral valve prolapse. Trace mitral regurgitation. Right ventricle is normal in size and function. Right ventricular systolic pressure is normal. Reason for Study: Precordial pain [R07.2 (ICD-10-CM)]; MVP (mitral valve prolapse) [I34.1 (ICD-10-CM)]. Procedure: 2D Echo with Doppler and color flow (93306). The exam was diagnostic. Left Ventricle: Overall left ventricular ejection fraction is estimated to be 55-60%. Normal left ventricular wall thickness. Left ventricle is normal in size. Left ventricular wall motion is normal. IVSd: 0.63 cm (0.6-1.1) LV Mass Index: 55.4 grams/m2 LVPWd: 0.71 cm (0.6-1.1) RWT: 0.26 cm LVIDd: 5.5 cm (3.6-6.0) FS: 29.2 % LVIDs: 3.9 cm EF (MOD-bp): 58.6 % Diastolic Function: Normal Diastolic Function. MV E/A: 1.4 Lateral E/E': 6.0 Medial E/E': 8.0 Right Ventricle: Right ventricle is normal in size and function. TAPSE_phl: 3.2 cm RV S Vel_phl: 20.9 cm/sec Left Atrium: Left atrial size is normal. Left Atrial Vol Index: 15.8 ml/m2 Apical 2 LA Area: 13.4 cm2 Apical 4 LA Area: 14.9 cm2 LA Volume Length: 4.7 cm Right Atrium: Right atrial size is normal. IVC size is dilated. IVC does collapse >50% with respiration. RAP systole: 8.0 mmHg Mitral Valve: Mitral valve leaflets appear normal. Trace mitral regurgitation. Mild mitral valve prolapse. Mitral valve area by the pressure half-time method is 2.1 cm^2. No mitral valve stenosis. MV V2 max: 123.1 cm/sec MV V2 VTI: 39.9 cm MV max PG: 6.1 mmHg MV mean PG: 2.3 mmHg MVA(P1/2t): 2.1 cm2 MV P1/2t-pr_phl: 103.1 msec MVA(VTI): 2.2 cm2 MV P1/2t: 103.1 msec MV dec slope: 347.0 cm/sec2 Aortic Valve: Aortic valve is normal in structure. The aortic valve is trileaflet. No aortic regurgitation is present. Aortic valve peak gradient is 8.8 mmHg. Aortic valve mean gradient is 4.5 mmHg. Aortic valve area is 2.8 cm^2. Aortic valve area is 2.8 cm^2. No hemodynamically significant valvular aortic stenosis. Aortic max: 148.4 cm/sec LV V1 VTI: 24.8 cm Ao max PG: 8.8 mmHg AV VR_phl: 0.79 Ao mean PG: 4.5 mmHg Ao V2 VTI: 31.1 cm SI(LVOT): 37.5 ml/m2 SV(LVOT): 86.8 ml AVA(I,D): 2.8 cm2 DVI: 0.80 AVA(V,D): 2.8 cm2 LVET (DOP)_phl: 0.31 sec AVA(VTI)/BSA_phl: 1.2 Flow Rate: 281.6 ml/sec CO(LVOT): 5.6 l/min LVOT diam: 2.1 cm LVOT area: 3.5 cm2 ACS: 2.1 cm CI(LVOT): 2.4 l/min/m2 Aortic Root: Aortic root is normal size. Ao root diam: 3.1 cm asc Aorta Diam: 3.2 cm Tricuspid Valve: Tricuspid valve is normal in structure and function. Trace tricuspid regurgitation is present. The right ventricular systolic pressure is 27.4 mmHg. Right ventricular systolic pressure is normal. RVSP(TR): 27.4 mmHg Pulmonic Valve/Pulmonary Artery: Pulmonic valve is not well visualized. PA acc time: 0.15 sec PA max PG: 3.4 mmHg PA mean PG: 1.8 mmHg Pericardium: No pericardial effusion. No pleural effusion. ECG/Heart Rate: Normal sinus rhythm, with a rate of 62 beats per minute. I have a cardiologist appointment Friday , what should I expect . I’m really hoping they will help me with my symptoms at least.

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Hi @shinew94, Several members have posted helpful thoughts, some even with similar conditions. I hope you know you are not alone! You have been navigating chest/head pain, trying to figure out what is happening for a long, long time. It may not seem like you are making progress but you made a positive step posting here.

Your experience having trigiminal neuralgia plus possible inner ear problems catches my attention. I have had similar experiences, and it has been rough! Once I saw a visual of exactly where the trigeminal nerves are on the face I knew that’s where I feel my pain. I am on a path of narrowing down what is causing mine, and so far it seems like it may be a combination of more than one thing. One helpful step for relief, once an ENT ruled out ear problems was physical therapy for my neck.

Mayo Clinic has a summary of trigeminal neuralgia you may find useful if you haven’t seen it.
- Mayo Clinic Trigeminal Neuralgia Overview
https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/symptoms-causes/syc-20353344
You mentioned an upcoming cardiology appointment scheduled (maybe today) hoping they help with your symptoms. Would you share what you found out, and how you are feeling now? Do you have a next step?

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bigj | @bigj | Mar 14 8:21pm

Im no Dr. get a pet scan

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wundernwanderer | @wundernwanderer | Apr 14 1:33pm

I have a mitral prolapse with moderate to severe regurgitation and a large mitral annular disjunction (not good). I sometimes have symptoms but mostly just put it out of my mind because I am told that my heart is performing in the top 10% of women my age (67). I worry but am comforted by remembering that my father had a lifelong mitral valve prolapse and died at 96 of simple old age. No “sudden cardiac death”. Surgery is risky and good maintenance goes a long way. I don’t think this really gives you any good info other than the reassurance that mitral valve prolapse is survivable. Good luck!!

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