C Scan timing and scheduling

Posted by blm1007blm1007 @blm1007blm1007, Apr 17, 2025

Has anyone heard of a standard scheduling for follow up C Scans to show what is or is not happening in the lungs.?
Has anyone been told by their BE pulmonologist doctor how often one should have a C Scan as a follow up to show what is or is not happening in the lungs?
I ask because I sure would like to know, since October of 2024 was my last C Scan, what is and is not going on in my lungs.....improvement, worse, stable etc.?
With all the work we must do for ourselves in hopes of improvement is why I ask and as well because of what they are saying medically about having too many C Scans due to possibly causing the big C.
I guess most of the times in between C Scans to know how we are doing it is based on is our symptoms, the doctors stethoscope and sputum submission????? Any thoughts or information?
Barbara

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oaktree | @oaktree | Apr 24, 2025

Good morning! I used the acetylcisteine for a few months but didn’t really notice any difference between using just saline and acetylcisteine followed by saline. I don’t use it anymore for that reason. The smell was pretty strong when I opened the capsule but after a few weeks I didn’t notice it anymore! You might try it….i know that all of us respond differently. Best of luck to you.

blm1007blm1007 | @blm1007blm1007 | Mar 9 10:25pm

In reply to @sueinmn "That was me for the first 2 years after diagnosis, then annually, and because my BE..." + (show)

@sueinmn Going through this thread that I apparently started back then in 2025 due to my CScan results to day. A good one.
FINDINGS:
The lungs show findings typical of chronic mycobacterial infection. There are
scattered areas of bronchiectasis and bronchial thickening along with scattered
peribronchial nodularities and opacities.

The good part: When compared with previous exams, the
opacities in the left lower lung are less solid and likely improved. There is
also some modest improvement in right lower lobe opacities.
No new lobar type consolidation. No pleural effusion. No definite concerning
pulmonary lesions.

So onto continued work to get, hopefully, a better report next C Scan.

I an waiting on the latest sputum test results. Last one no indication of the culture showing an infection..no +, no colonies nothing reported as MAI etc. Hope it doesn't go back and forth, positive, negative, positive. Finger crossed.

Sue when you said above: "because my BE is stable"...what all does that mean??
Thanks again your suggestion and Irene8's suggestion regarding my low count and antibiotics...stay on watchful waiting. Done and good so far.
It's just that darn need to clear the throat area nearly all day long and it just might be something that needs to be rechecked. Will discuss with the pulmonologist tomorrow and see what he thinks.
Barbara

bernadene24 | @bernadene24 | Mar 16 10:50am

In reply to @blm1007blm1007 "@sueinmn Going through this thread that I apparently started back then in 2025 due to my..." + (show)

@blm1007blm1007 Could your need to clear the throat be related to sinus drainage? Have you checked that out?

blm1007blm1007 | @blm1007blm1007 | Mar 16 11:26am

In reply to @bernadene24 "@blm1007blm1007 Could your need to clear the throat be related to sinus drainage? Have you checked..." + (show)

@bernadene24 Not recently. But did have a C T Scan of sinus in 2024 and nothing showed, no problem noted. ENT's three endoscopes nothing showed, 2022, 2023,2024.
So hopefully nothing has changed...and no sinus drainage.
Thanks for your question.
Barbara