Has anyone been diagnosed with Meningioma with edema?
Had MRI two days ago and found 1.8 cm meningioma Met with internist today, said this is what they call a “mass affect” which is causing the brain to shift off center. If it was just a small 1.8 cm they would do a wait and see approach, but due to the swelling they will probably want to do surgery. Scheduled two appointments with neurosurgeons, one next week and week after at Cedar Sinai for two opinions. Still getting headaches. Because there are neurological symptoms my guess is they will want to do surgery. Frightening!
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@kdog1957 Hello can you tell me if your meginoma was on the right or left frontal lobe? Thank you for all your help! I’m so happy you’re doing so much better. Always so many to pray for.
@randallshields56 Hello thank you so much for the prayers. Jesus Christ is the great physician!! He has healed me so much here and I know also he can heal me in heaven!! I hope you are doing great now and will be sending you my prayers.
@tprewitt67
Hi, thanks for the sentiment. Mr. Meningioma was a 6 cm monster located in the right frontal lobe at the midline. There was a lot of swelling and edema associated with it. Fortunately it was right at the top of my head and relatively easy to access and remove. The surgery took “only” 4 hours and there was minimal pain. Where is your tumor located? Has the surgeon discussed the approach?
All the best.
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1 Reaction@kdog1957 did they do a resection and remove part of scull to get to it? If so, any numbing or hollowing?
@kdog1957
I have an MRI coming up March 24 and hoping it hasn’t grown. There’s edema and hoping there’s no change or possibly disappeared. My son said he asked if the edema could possibly shrink or disappear and said it wouldn’t without surgery. It’s frightening what they may find. Hoping for the best.
@as72
Hi, replying to both comments above. The surgery was a craniotomy with gross total resection, meaning a section of skull was removed and replaced to get at the tumor. The tumor location was in the forehead area, so the incision was made above the hairline to avoid scarring of the forehead. A nerve supplying sensation to the top of the head was cut. A year after surgery I still have diminished sensation at the crown of the head. The prospect of brain surgery is no doubt frightening. Hopefully the surgeon is walking you through the procedure. Good luck with the MRI. I had adjuvant radiation treatment a few months after surgery and I have the first post radiation MRI in 10 days.
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1 Reaction@tprewitt67 Thank you also for the prayers, it means a lot to me and those that believe and Thank You for the uplift too. sending continued prayers =========== and blessing for a great day and always.
@randallshields56 your welcome.
@as72 they are saying I have a meginoma on my left frontal lobe and want to do surgery . They said I had edema is the reason for the surgery and it’s like 3.5 cm something .
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1 Reaction@tprewitt67 I have edema as well and 2.7 cm left anterior frontal lobe. I’m still getting head pressure like headaches. MRI next week. When and where are you having surgery? Wishing you the best. Keep in touch if possible.