Has anyone been diagnosed with Meningioma with edema?

Posted by as72 @as72, Dec 4, 2025

Had MRI two days ago and found 1.8 cm meningioma Met with internist today, said this is what they call a “mass affect” which is causing the brain to shift off center. If it was just a small 1.8 cm they would do a wait and see approach, but due to the swelling they will probably want to do surgery. Scheduled two appointments with neurosurgeons, one next week and week after at Cedar Sinai for two opinions. Still getting headaches. Because there are neurological symptoms my guess is they will want to do surgery. Frightening!

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Profile picture for kdog1957 @kdog1957

@tprewitt67
Hello, my tumor location was also frontal lobe. Because of the severe neurological symptoms pre surgery I had a long hospital stay. Fortunately Medicare covered almost all the bills. I had to use a walker then a cane after I got home. I had a shower chair and some suction cup handles in the shower to help with balance. You may not need all this stuff as it sounds like you’re doing okay now. These items can be purchased through Amazon or at Walgreens or Lowe’s. I improved rapidly after the surgery. I had follow-up radiation therapy a few months after surgery. I went on a fitness kick before and during radiation treatment that resulted in Achilles tendinitis, so that’s where I’m at now🙄

Jump to this post

@kdog1957 Hello can you tell me if your meginoma was on the right or left frontal lobe? Thank you for all your help! I’m so happy you’re doing so much better. Always so many to pray for.

REPLY
Profile picture for Randy Shields @randallshields56

@tprewitt67 its nice that they caught it in time and i wish you nothing but good will and strength to recover. well i am going to guess you will go through PT in the hospital and advise from many staff members. i needed to have my shower modified with handles and slip resistant stickers , a chair to sit on and different shower head with line to reach my chair, i had many balance issues and had a caregiver help me so i didn't fall or injure what was already damaged. patience with your progress. takes longer that a lot of other surgery's you would be doing healing different pace. im sure that you will have many people here that can help you with lists of things. we all have suggestions. because of my age and family help caregiving me those first months meant a lot. Family its worth fighting for to get better. prayer is a big factor in my case, i had prayer chains and hundreds of people sending prayers so ill start by sending you one for health, strength and healing ==========sent and have a blessed day and safe travels.

Jump to this post

@randallshields56 Hello thank you so much for the prayers. Jesus Christ is the great physician!! He has healed me so much here and I know also he can heal me in heaven!! I hope you are doing great now and will be sending you my prayers.

REPLY
Profile picture for tprewitt67 @tprewitt67

@kdog1957 Hello can you tell me if your meginoma was on the right or left frontal lobe? Thank you for all your help! I’m so happy you’re doing so much better. Always so many to pray for.

Jump to this post

@tprewitt67
Hi, thanks for the sentiment. Mr. Meningioma was a 6 cm monster located in the right frontal lobe at the midline. There was a lot of swelling and edema associated with it. Fortunately it was right at the top of my head and relatively easy to access and remove. The surgery took “only” 4 hours and there was minimal pain. Where is your tumor located? Has the surgeon discussed the approach?

All the best.

REPLY
Profile picture for kdog1957 @kdog1957

@tprewitt67
Hi, thanks for the sentiment. Mr. Meningioma was a 6 cm monster located in the right frontal lobe at the midline. There was a lot of swelling and edema associated with it. Fortunately it was right at the top of my head and relatively easy to access and remove. The surgery took “only” 4 hours and there was minimal pain. Where is your tumor located? Has the surgeon discussed the approach?

All the best.

Jump to this post

@kdog1957 did they do a resection and remove part of scull to get to it? If so, any numbing or hollowing?

REPLY
Profile picture for kdog1957 @kdog1957

@tprewitt67
Hi, thanks for the sentiment. Mr. Meningioma was a 6 cm monster located in the right frontal lobe at the midline. There was a lot of swelling and edema associated with it. Fortunately it was right at the top of my head and relatively easy to access and remove. The surgery took “only” 4 hours and there was minimal pain. Where is your tumor located? Has the surgeon discussed the approach?

All the best.

Jump to this post

@kdog1957
I have an MRI coming up March 24 and hoping it hasn’t grown. There’s edema and hoping there’s no change or possibly disappeared. My son said he asked if the edema could possibly shrink or disappear and said it wouldn’t without surgery. It’s frightening what they may find. Hoping for the best.

REPLY
Profile picture for as72 @as72

@kdog1957
I have an MRI coming up March 24 and hoping it hasn’t grown. There’s edema and hoping there’s no change or possibly disappeared. My son said he asked if the edema could possibly shrink or disappear and said it wouldn’t without surgery. It’s frightening what they may find. Hoping for the best.

Jump to this post

@as72
Hi, replying to both comments above. The surgery was a craniotomy with gross total resection, meaning a section of skull was removed and replaced to get at the tumor. The tumor location was in the forehead area, so the incision was made above the hairline to avoid scarring of the forehead. A nerve supplying sensation to the top of the head was cut. A year after surgery I still have diminished sensation at the crown of the head. The prospect of brain surgery is no doubt frightening. Hopefully the surgeon is walking you through the procedure. Good luck with the MRI. I had adjuvant radiation treatment a few months after surgery and I have the first post radiation MRI in 10 days.

REPLY
Profile picture for tprewitt67 @tprewitt67

@randallshields56 Hello thank you so much for the prayers. Jesus Christ is the great physician!! He has healed me so much here and I know also he can heal me in heaven!! I hope you are doing great now and will be sending you my prayers.

Jump to this post

@tprewitt67 Thank you also for the prayers, it means a lot to me and those that believe and Thank You for the uplift too. sending continued prayers =========== and blessing for a great day and always.

REPLY
Profile picture for Randy Shields @randallshields56

@tprewitt67 Thank you also for the prayers, it means a lot to me and those that believe and Thank You for the uplift too. sending continued prayers =========== and blessing for a great day and always.

Jump to this post

@randallshields56 your welcome.

REPLY
Profile picture for as72 @as72

@kdog1957 did they do a resection and remove part of scull to get to it? If so, any numbing or hollowing?

Jump to this post

@as72 they are saying I have a meginoma on my left frontal lobe and want to do surgery . They said I had edema is the reason for the surgery and it’s like 3.5 cm something .

REPLY
Profile picture for tprewitt67 @tprewitt67

@as72 they are saying I have a meginoma on my left frontal lobe and want to do surgery . They said I had edema is the reason for the surgery and it’s like 3.5 cm something .

Jump to this post

@tprewitt67 I have edema as well and 2.7 cm left anterior frontal lobe. I’m still getting head pressure like headaches. MRI next week. When and where are you having surgery? Wishing you the best. Keep in touch if possible.

REPLY
Please sign in or register to post a reply.