Has anyone been diagnosed with Meningioma with edema

@as72
Hi, good to hear that the headache is gone. Hopefully you won’t have to be on steroids for too long; they can cause some issues. They made me temporarily diabetic. Strangely, I didn’t have any headaches. But the large tumor size and the edema and swelling were making me slowly go insane. My symptoms were similar to stroke or dementia. I’m lucky I didn’t have a stroke. Emergency craniotomy surgery was done a few days after the tumor was discovered. That was 10 months ago. Went home using a walker two weeks after surgery after a long period of physical and occupational therapy. I was walking unaided and biking two weeks after getting home. I had follow-up radiation treatment in the summer. For me the treatments were easy with just some minor hair loss at the temple. It’s starting to grow back 3 months after finishing treatment. I’m doing fine now, no after effects except the incision is a bit irritated. This may be lifelong as I have some surgical scars from more than 40 years ago that still get irritated. Plus I get to look forward to periodic MRI’s for the rest of my life. Huzzah! Since everyone’s case is different, I can’t predict what the neurosurgeon will recommend. Sorry for the long post. Good luck with the appointment.

Hi! I had an incidental finding of a 1.7 cm probable meningioma in Sept. I am considered to have no symptoms but I get mild headaches and a mild feeling of being off balance that lasts a couple of seconds. Not sure if it's related. I also have swelling and mass effect. It's left occipital lobe midline involving the sagital sinus but no obstruction. A neurologist advised watching it, and 2 neurosurgeons recommended gamma knife with only one of them saying watch and wait is not unreasonable. A neurosurgeon who only does surgery advised that I am a candidate for surgery but also referred me to one on the surgeons who advised gamma knife. I had a repeat 3 mo. Scan which called it 1.8 cn. but no significant change from the original. I have an appointment in 2 weeks to discuss the results. Not at all sure what I'll do. I am 73 so that factors in for me also. Let's keep in touch!

Congratulations on your son's wedding! That's wonderful. I have a married daughter and grandson and a son not yet married.
Funny thing about the tumor, if I hadn't been in a car accident I would not even know about it.
Our situations have many similarities. I'm glad to share my journey!

@kdog1957
Thank you for responding. How large was your tumor and how was it found? I didn’t know they do radiation after surgery, thought it was gamma knife, cyber or crainiology? Hope the irritation subsides soon. I’ve been hearing once you get a meningioma they do routine MRI’s.

@dailygift
Thank you for sharing.
Looking forward to having grandchildren. Hope my health holds up to get to know them. My youngest (34) is living his best life traveling the world.
Slipping on my hardwood floor was a blessing in disguise.
Four weeks yesterday, still have a some bruising on my cheek.
Glad to know why I get morning headaches, occasional dizziness, and didn’t feel like myself.
Where do you live? I’m in SF Bay Area. Please keep in touch.

Hi! I had an incidental finding of a 1.7 cm probable meningioma in Sept. I am considered to have no symptoms but I get mild headaches and a mild feeling of being off balance that lasts a couple of seconds. Not sure if it's related. I also have swelling and mass effect. It's left occipital lobe midline involving the sagital sinus but no obstruction. A neurologist advised watching it, and 2 neurosurgeons recommended gamma knife with only one of them saying watch and wait is not unreasonable. A neurosurgeon who only does surgery advised that I am a candidate for surgery but also referred me to one on the surgeons who advised gamma knife. I had a repeat 3 mo. Scan which called it 1.8 cn. but no significant change from the original. I have an appointment in 2 weeks to discuss the results. Not at all sure what I'll do. I am 73 so that factors in for me also. Let's keep in touch!

@dailygift sending out a prayer for you to make a great decision, im no doctor but recovering from TBI . its taken a long time to recover as much as i have. i did not have an option my tumor dropped me like a dime. here is your prayer--------------sent. prayer groups help more than i can say which is a lot. have a blessed evening and feel free to message me anytime.
randy.

@dailygift sending out a prayer for you to make a great decision, im no doctor but recovering from TBI . its taken a long time to recover as much as i have. i did not have an option my tumor dropped me like a dime. here is your prayer--------------sent. prayer groups help more than i can say which is a lot. have a blessed evening and feel free to message me anytime.
randy.