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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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landrew62 | @landrew62 | Mar 6 9:17am

Hello all,
Do any of you have any suggestions or resources to make the case for short and/ or long term disability? Chronic pain is making it difficult to sustain sitting and standing at a desk for prolonged periods of normal work hours. Tried part time. Still too much for the pain. Insurance, of course, is the main issue as I am not old enough for Medicare and Cobra is so expensive and I need extensive medical coverage. Thank you for considering.

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mysporby1940 | @mysporby1940 | Mar 6 11:08am

can anything help hip pain that goes down the leg!!!!

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akristykat | @akristykat | Mar 7 12:09am
In reply to @ailsas "@akristykat I really hope your doctors are giving you sufficient pain meds. If not try 1)..." + (show)
Profile picture for ailsas @ailsas

@akristykat I really hope your doctors are giving you sufficient pain meds. If not try 1) different doc, and 2) if not forceful. can you learn? I find it helps and if the doctor is alienated it means their egos are too important. I find, I know many can’t handle it, but larger doses of gabapentin for fibromyalgia and other neurological disorders. I occasionally use Tylenol 3 because all the others have so many side effects. I find being assertive helps otherwise the depression wins.

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@ailsas all I get for pain is meloxicam.

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akristykat | @akristykat | Mar 7 12:10am
In reply to @jcoleary "@akristykat Has anyone discussed a pain pump with you. I have no idea if it will..." + (show)
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@akristykat Has anyone discussed a pain pump with you. I have no idea if it will help, but it is worth looking into.

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@jcoleary all they give me is meloxicam and steroid injections

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akristykat | @akristykat | Mar 7 12:11am
In reply to @blowerk1216 "@akristykat have you heard about the Spero clinic in Fayetteville AR, they have unique treatment programs..." + (show)
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@akristykat have you heard about the Spero clinic in Fayetteville AR, they have unique treatment programs to address pain such as CRPS and Long Covid.

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@blowerk1216 unfortunately I am in michigan

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ailsas | @ailsas | Mar 7 12:57am
In reply to @akristykat "@ailsas all I get for pain is meloxicam." + (show)
Profile picture for akristykat @akristykat

@ailsas all I get for pain is meloxicam.

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Meloxicam is an NSAID, ie fairly unhelpful. I recommend not giving up -
get politely persistent -- maybe find a different doctor. I hope you live
in an area where there are other providers. The medical profession really
needs to experience pain themselves. Can you handle gabapentin?

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1 reply
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annamwbanana | @annamwbanana | Mar 7 1:07am

Hi! I'm Anna. I have Ehlers-Danlos syndrome and its umbrella of comorbidities such as POTS, and chronic pain. I also have Chronic Bilateral Osteomyelitis in both of my femurs. I've broken both femurs and have had 8- about to have 9 surgeries on them. I have acute on chronic pain- and am wondering if I have CRPS.

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tiny28 | @tiny28 | Mar 7 6:31am
In reply to @ahrensburg75 "Hi . I have chronic pain after a fall down the stairs and a t 11..." + (show)
Profile picture for ahrensburg75 @ahrensburg75

Hi . I have chronic pain after a fall down the stairs and a t 11 spinal fracture 2 years ago. I can't take anti inflammatories because I am on blood thinners. I also have osteoporosis. I don't take any bone medication because of their side effects, but I think I will have to start taking something. Can anyone recommend the safest bone medication please. I know that they all have side effects especially prolia which I won't go back on. I was put on it years ago when it was first on the market, I was only in my fifties and I wasn't informed about it's side effects. I stopped it for dental work not knowing at the time that my bones would lose more density by stopping it. I have just turned 70 .
Thank you for reading this and any advice is welcome.

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@ahrensburg75 in reply to your message. I am 75 female with severe osteoporosis (or at least that is what the dexascan said!! However I have just had a spinal fusion for L4/5 degenerative. I also suffer chronic pain , fibromyalgia, chronic fatigue . It’s a hard fight isn’t it . I can recommend Fortibone a side effect free natural supplement. the Professor who operated on me said although my bones are small they are strong !! I am now in recovery stages , trying to build muscle is the hardest . I wish you much luck.

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salty2 | @salty2 | Mar 7 6:37am

I am a 88 year old woman with, among other things, burning mouth syndrome. I’ve had it for over 2 years with no relief. Went to UC Oral medicine clinic. Gave me topical salve, mouth wash, etc. Nothing changes. Hope some others have found relief.

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blowerk1216 | @blowerk1216 | Mar 7 8:04am
In reply to @akristykat "@blowerk1216 unfortunately I am in michigan" + (show)
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@blowerk1216 unfortunately I am in michigan

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@akristykat I have had personal experience of Spero clinic and have seen people from all over this country and some from other countries. Many people have financed the treatment using a go-fund-me program.

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