So exhausted after a little exertion makes me not want to do anything

Posted by judyhodgern @judyhodgern, Jan 25 8:56am

I am a 79 year-old woman who tries to keep active I play 18 holes of golf once a week and I go to PT once a week and I play bridge several times a week but I'm just lazy I don't do other exercises and I know I should I just need somebody to help me Get off my chair and do things for my body thank you

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Profile picture for lilianna @lilianna

Do you see a pulmonologist? Did you have pulmonary function test? And do you have oxymeter and check your oxygen level? Something is definitely wrong and please call your family doctor, say everything and ask for tests and a referral to a pulmonologist- Insist do not ask although I know how hard it is tomorrow demand things. Please get help

Jump to this post

@lilianna I have had pulmonary function test and my lungs are functioning at 42%.

REPLY
Profile picture for irenea8 @irenea8

@rpec
That is good news if your gases are ok! My blood gases are quite high and I do have hypercapnia and hypoxia. Drs say if anyone were to have my levels all of a sudden they would die. But my body has acclimated over time. My kidneys compensate by producing bicarbonate. The body is amazing.

Also when I was put on Oxygen in 2025 my O2 levels were in the 60's. I should not have lived with that but my body slowly adjusted. I must have been struggling with levels in the 80's for a long time not realizing it. Then it kept going down until it became critical and I was hospitalized. For some time I thought my Oximeter was inaccurate but it was not. So get a good high quality one and trust it and use it.

I wonder why some of you use Oxygen at night but not during the day. At night I can turn mine down to almost 1. During the day it has to be 2.5 or 3. Even so cannot do much that is physically active. Sitting feels the best.

Jump to this post

@irenea8 you are saying when you are on O2 you still can't do anything physical? If so, that's the way I was. I thought it would give me a boost to do things. All I can say is all these commercials and ads that show people on portable O2 playing golf and doing physical stuff must be fake. That's why I rarely use it. Normally my O2 is 93, 94, 95 when doing nothing.

REPLY
Profile picture for Sue, Volunteer Mentor @sueinmn

@rpec Has the doctor talked about using supplemental oxygen? It really is important to keep moving to avoid losing even more capability.

Jump to this post

@sueinmn I have 02 at home but rarely use it because it doesn't really help with shortness of breath. I only ended up with O2 because I had Covid and spent 1 night therr for them to make sure my lungs had not been damaged anymore. They never suggested for me to be on 02 but one of the nurses just said if I was interested in getting O2 at home, told me who to call. My pulmonologist never mentioned getting on 02. The 6 minute walk i have done several times indicates my level does not drop below 93 even though I'm panting like crazy while walking.

REPLY
Profile picture for rpec @rpec

@irenea8 you are saying when you are on O2 you still can't do anything physical? If so, that's the way I was. I thought it would give me a boost to do things. All I can say is all these commercials and ads that show people on portable O2 playing golf and doing physical stuff must be fake. That's why I rarely use it. Normally my O2 is 93, 94, 95 when doing nothing.

Jump to this post

@rpec
If I were not on Oxygen I would not be able to breath. My levels went down into the 60's without it (back when I was put on Oxygen). So I can certainly do more on Oxygen than off it! I can at least function now. But I cannot do much that is physical. Without the Oxygen I would not even be able to sit. By late afternoon I can usually get on the treadmill for 20 minutes. I have it set without any incline and just walk easily. Otherwise I can walk around our small house and do little tasks and sit often inbetween.

REPLY

I had one thought. Ask you family doctor for checking your vitB12 and D3 levels. May be you need supplementation and may be somehow it helps a little

REPLY
Profile picture for irenea8 @irenea8

@rpec
If I were not on Oxygen I would not be able to breath. My levels went down into the 60's without it (back when I was put on Oxygen). So I can certainly do more on Oxygen than off it! I can at least function now. But I cannot do much that is physical. Without the Oxygen I would not even be able to sit. By late afternoon I can usually get on the treadmill for 20 minutes. I have it set without any incline and just walk easily. Otherwise I can walk around our small house and do little tasks and sit often inbetween.

Jump to this post

@irenea8 Glad O2 helps you. Wish it helped me. My O2 is pretty normal for having bronchiestis. It's my lungs that are functioning at 42%. Lungs are struggling to pump the O2 through the body.

REPLY
Profile picture for rpec @rpec

@irenea8 Glad O2 helps you. Wish it helped me. My O2 is pretty normal for having bronchiestis. It's my lungs that are functioning at 42%. Lungs are struggling to pump the O2 through the body.

Jump to this post

@rpec
Possible Reasons for Shortness of Breath (Normal O2)

Anxiety or Panic Attack: Can cause hyperventilation, creating a feeling of breathlessness.
Heart Conditions: Heart failure, arrhythmia, or valve problems.
Lung Issues: Asthma, COPD, bronchitis, pneumonia, or pulmonary embolism.
Structural Factors: Stiff lungs, fluid buildup, or scarring (pulmonary fibrosis).
Other Factors: Anemia, extreme fatigue, obesity, or lingering effects of COVID-19 ("long-hauling").

REPLY
Profile picture for rpec @rpec

@irenea8 Glad O2 helps you. Wish it helped me. My O2 is pretty normal for having bronchiestis. It's my lungs that are functioning at 42%. Lungs are struggling to pump the O2 through the body.

Jump to this post

@rpec
I remember my pulmo saying you can have normal O2 levels but still feel SOB due to "lung mechanics"

REPLY
Profile picture for irenea8 @irenea8

@rpec
Possible Reasons for Shortness of Breath (Normal O2)

Anxiety or Panic Attack: Can cause hyperventilation, creating a feeling of breathlessness.
Heart Conditions: Heart failure, arrhythmia, or valve problems.
Lung Issues: Asthma, COPD, bronchitis, pneumonia, or pulmonary embolism.
Structural Factors: Stiff lungs, fluid buildup, or scarring (pulmonary fibrosis).
Other Factors: Anemia, extreme fatigue, obesity, or lingering effects of COVID-19 ("long-hauling").

Jump to this post

Thanks for information

REPLY
Please sign in or register to post a reply.