Whipple or no Whipple?

Posted by casey1959 @casey1959, Feb 22 12:20pm

I know we're all different in what we decide is best for us. Just need some comfort knowing my husband might decide to not go further by having the Whipple procedure. I respect his decision if that's what will be. Has anyone decided on not having the procedure. Ty

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Profile picture for johnny1955 @johnny1955

@johnny1955 actually the pancreas did not work.

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@johnny1955 today I got results of my recent PT scan. The pancreatic cancer has returned. Apparently chemo won't do anything except prolong the inevitable so I may not try it. Anybody else with this diagnosis. By the way, I am 87 years old.

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Profile picture for gsf @gsf

@casey1959 My 73 year old wife has locally advanced pancreatic cancer and opted not to have the Whipple after getting the opinions of 3 surgeons. My wife's tumor is wrapped around the SMV and SMA arteries. Dr. Truty of Mayo Clinic Rochester, MN (https://www.mayoclinic.org/biographies/truty-mark-j-m-d-m-s/bio-20055639), told her that her surgery would be "way beyond a Whipple". Dr. Truty is nationally known for doing "tricky" Whipple's. He was very forthcoming on what the surgery might do to my wife's quality of life if she elected to have it done. He told her she wouldn't feel as good as she did when we met. He also told us that neither chemo nor radiation would shrink the tumor off of the arteries. Dr. Truty was totally honest and we are very glad we went to see him. Before going to Mayo, my wife had 11 rounds of folfirinox (which shrunk the tumor a significant amount) and after visiting with Dr. Truty had radiation done at Dana Farber in Boston since they have an MRI guided radiation machine (Linac?) which allowed for intensive doses over 5 days. So far, knock on wood, no evidence of spread! You're facing a very tough decision and I wish you good luck in that and in combatting the cancer!

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@gsf look up Dr Nissen at cedar Sinai in California.. he performs whipple with vascular reconstruction… we will be getting his opinion and was recommended to us from someone whose family member had this procedure done

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Profile picture for cwilliams34 @cwilliams34

@gsf look up Dr Nissen at cedar Sinai in California.. he performs whipple with vascular reconstruction… we will be getting his opinion and was recommended to us from someone whose family member had this procedure done

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@cwilliams34 Thank you for the suggestion. Dr. Truty also does the vascular reconstruction but, given what he told us about the increased risk of death and the ongoing side effects of the surgery, my wife opted to not have it done. I wish you luck with Dr. Nissen!

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Profile picture for jerryc131 @jerryc131

I guess I just jump into this forum. Still in discovery stage. My 85-yr. Old healthy husband through a weird set of circumstances, found out he has a solid mass 2.6 cm at the neck of his pancreas situated next to portal vein. First biopsy and brushing were at a local hospital, and they came back non-malignant.
We’re going to UVA in Charlottesville, VA for new biopsy, etc. the care here is already 100% better! They’re saying 90% sure it’s cancer. We have a world-renowned gastroenterologist performing the biopsy, and theyve already set up appt. w/oncologist to determine purse of chemotherapy.
What I love about this team is that they treat my husband as a human in need of medical attention, or like an invisible old man!
We need lots of prayers. We know we have a long row to hoe.
Thanks for letting me share. I really need this outlet.
J

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@jerryc131 It's good you have a great team behind you. Took the Doctors 8 months to finally get my husband's stage 3 diagnosed. Also at the head. We have a repeat scan today to see if the arteries ECT are intended. Prayers it isn't. It can be a long journey for sure. Im preying for you BOTH. It's hard for both of you. 🙏

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Prayers it’s a clean scan🙏🏻🙏🏻
Husband had the biopsy Monday. Pathologist said initial look of the pancreas mass is suspicious and is probably cancer. Full report in another few days.
How do they determine what “stage” one is in?

Again, prayers there is no further involvement in your husband’s cscan.

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Profile picture for jerryc131 @jerryc131

Prayers it’s a clean scan🙏🏻🙏🏻
Husband had the biopsy Monday. Pathologist said initial look of the pancreas mass is suspicious and is probably cancer. Full report in another few days.
How do they determine what “stage” one is in?

Again, prayers there is no further involvement in your husband’s cscan.

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@jerryc131 ty so much for the ,🙏I not quite sure yet I believe between the blood work & the scans determine staging. I'm sure other members here have a definite answer in staging for you.

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@casey1959 When is the appointment?

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@tomrennie at Scan now. 1:52 3/4. I'm stressed yet 🙏

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Profile picture for johnny1955 @johnny1955

@johnny1955 today I got results of my recent PT scan. The pancreatic cancer has returned. Apparently chemo won't do anything except prolong the inevitable so I may not try it. Anybody else with this diagnosis. By the way, I am 87 years old.

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@johnny1955 Preying for you as you move forward. 🙏❤️

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Profile picture for casey1959 @casey1959

@tomrennie at Scan now. 1:52 3/4. I'm stressed yet 🙏

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@casey1959 Scanziety is the worst isn't it? Please let us know how it goes. I have my scan and associated scanziety tomorrow.

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@casey1959 Scanziety is the worst isn't it? Please let us know how it goes. I have my scan and associated scanziety tomorrow.

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@tomrennie Scaniety is definitely real. However if religious, say the short prayer, “Jesus I TRUST in you”. Jesus loves you and only wants the Best for you - whatever the outcome is. God works in mysterious ways. It’s Gods will,…offer your stress up to go.

I understand easy to say, but hard to do. I try every 6 months when I go to Mayo for my MRI.

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