Interstitial Lung Disease and Autoimmune Diseases

@narelled23
Thank you for your reply. Know my diagnosis is on the rare side albeit not an official “rare disease” so there’s not alot of data out in the literature. So seek others and their relevant experiences.
Sounds like you’re still seeking a diagnosis. The autoimmune stuff can be so tricky!
Have you been checked for exercise induced asthma? I had this in my early 20s. Was fine unless I worked out and then severe asthma attack. Since my workouts were usually distance cycling, power walking and Nordic skiing outdoors it mostly happened when outdoors but not exclusively. I resolved over a couple years of allergy desensitization shots. Never recurred for me thankfully.
Hope you get some answers soon. It can be so scary to not be able to breathe!
Kind regards, LC

@loriach
I don't think mine is exercise induced but I do have allergic asthma.

Sending you very best wishes for the best health possible. 🙏

I have interstitiall lung damagedue to long covid not curable on 02 24/7. 3 to 5 years life span is usual.

Can anyone explain how the Autoimmune system affects Pulmonary Fibrosis.? I have been diagnosed with early stages of PF last Nov and am still waiting for my chest CT. I currently have no serious symtoms but am wondering what are the treatment for early stages if any?

@pkoschak
So sorry to hear that. Sending love. 🙏

@nursek75
Sorry I don't know. My diagnosis turned out to be mod/severe COPD on top of bronchiestases and non allergic asthma.

I hope you can get the answers you need. 🙏

@barryh

Amazing!

@pkoschak Since your comment was so brief it left me wondering if your treatment includes something like Ofev (Pulmonary Fibrosis type ILD) or the newest drug called Jascade (for IPF). I was originally told 11 years ago that I have IPF but went to a Pulmonary specialist in ILD including a doctor at the Mayo Clinic. It seems I have Hypersensitivity Pneumonitis but the cause is unknown still. It’s hard to get a diagnosis since not enough is known about ILD type disease. I basically have an incurable progressive lung fibrosis disease and just hoping to slow it down. I just wanted to share a little bit to make sure you have had a thorough diagnosis with someone who specializes in ILD. Sorry to hear your problem is from long covid. Scary enough to just get covid.