Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

You’re going to be fine. You know now. I suddenly dissected in 2015 on a business trip 1600 miles from home. That’s a nightmare. You know what’s wrong and plan for a fix. That’s a gift. No planking, lifting, grunting or spiking your BP. Make friends with the best cardiothoracic surgeon you can in a high volume aorta care hospital. You can do this. I did and I found out when I hit the ground. That’s not what you’re facing. You know and you can make a really good plan for surgery. You’ve got this. Peace. (Me and my daughter on college visits two weeks ago at UCSD La Jolla—same hospital that saved my life in 2015)

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Profile picture for hollikal @hollikal

Hello all.
I am new here. I am 69 yrs young.
I was diagnosed with AAA in 2016 when the Dr. were trying to find a reason for my arrythmia- afib. couldn't find anything. At that time, it was 4.2cm. Has been growing very slowly. It has been at 4.5 for a couple of years. In Aug of last year, I took a tumble and fell on my chest, hit hard enough to displace my pacemaker slightly. In Oct. I asked my cardiologist about doing an echo to see if the fall had any effect on the aneurysm. I explained to her why I was requesting it. At first, she said I didn't need one until April of this year, but I was persistent. She finally consented to doing a "limited Echo". Result of that showed it had grown to 4.7cm. She then ordered a CTw/contrast to get a better look it. Had the CT scan first part of Dec., and it at 4,8cm.
Dr upped my metoprolol and re-ordered another CT for 3 months. She also told me to avoid strenuous activities. My repeat Ct is on this Wednesday, I'm anxious to find out where it is at now.
I have other health issues as well. Persistent Afib, low heart rate, sleep apnea and am way over wt. I take Flecainide 2xday for irregular hr, Metopolol for my blood pressure control, but it drops my Heart rate into upper 30-40, so the Electrophysiologist decided to finally implant a pacemaker to help control HR and irregular rhythm.
Sorry this got long.
I am trying to get in routine of exercise and eating healthier. I am hoping it was just the fall that caused the increase in size and it hasn't grown any more

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@hollikal
Hello....I'm in a similar situation as you, 70 y.o. with afib, BP issues and an enlarged thoracic ascending aortic aneurysm...4.5cm from a recent scan. It's important to be your own best advocate with regard to doctors and medical help. Inform/educate yourself as much as possible about your health challenges, act on the recommended guidance, and insist on regular monitoring! Things may go well, and result in no growth, or at least slow growth. Find an aortic center near you where you can get some expert support. Too often, as evidenced by other stories you read here, cardiologists are uninformed, or under educated about aneurysms, but won't admit it. Find a Dr willing to monitor you regularly that is familiar with your problem. If you have the interest, look to the "Virtual Second Opinion" offered by Cleveland Clinic, which is in the top-tier of aortic centers in this country. Best of luck in your efforts going forward!! Knowledge is power, and may save your life!!

REPLY
Profile picture for ctflyr @ctflyr

@hollikal
Hello....I'm in a similar situation as you, 70 y.o. with afib, BP issues and an enlarged thoracic ascending aortic aneurysm...4.5cm from a recent scan. It's important to be your own best advocate with regard to doctors and medical help. Inform/educate yourself as much as possible about your health challenges, act on the recommended guidance, and insist on regular monitoring! Things may go well, and result in no growth, or at least slow growth. Find an aortic center near you where you can get some expert support. Too often, as evidenced by other stories you read here, cardiologists are uninformed, or under educated about aneurysms, but won't admit it. Find a Dr willing to monitor you regularly that is familiar with your problem. If you have the interest, look to the "Virtual Second Opinion" offered by Cleveland Clinic, which is in the top-tier of aortic centers in this country. Best of luck in your efforts going forward!! Knowledge is power, and may save your life!!

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@ctflyr thanks for the information. I will check on that, but it will come down to what will be covered by my insurance- in- network.

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Profile picture for moonboy @moonboy

You’re going to be fine. You know now. I suddenly dissected in 2015 on a business trip 1600 miles from home. That’s a nightmare. You know what’s wrong and plan for a fix. That’s a gift. No planking, lifting, grunting or spiking your BP. Make friends with the best cardiothoracic surgeon you can in a high volume aorta care hospital. You can do this. I did and I found out when I hit the ground. That’s not what you’re facing. You know and you can make a really good plan for surgery. You’ve got this. Peace. (Me and my daughter on college visits two weeks ago at UCSD La Jolla—same hospital that saved my life in 2015)

Jump to this post

@moonboy thanks. I am wondering if flying is ok to do right now. I am going to discuss with my cardiologist tomorrow when I see her. After I see her in the morning, the afternoon, I go have the CT/contrast done to check on the aneurysm.

REPLY
Profile picture for hollikal @hollikal

Hello all.
I am new here. I am 69 yrs young.
I was diagnosed with AAA in 2016 when the Dr. were trying to find a reason for my arrythmia- afib. couldn't find anything. At that time, it was 4.2cm. Has been growing very slowly. It has been at 4.5 for a couple of years. In Aug of last year, I took a tumble and fell on my chest, hit hard enough to displace my pacemaker slightly. In Oct. I asked my cardiologist about doing an echo to see if the fall had any effect on the aneurysm. I explained to her why I was requesting it. At first, she said I didn't need one until April of this year, but I was persistent. She finally consented to doing a "limited Echo". Result of that showed it had grown to 4.7cm. She then ordered a CTw/contrast to get a better look it. Had the CT scan first part of Dec., and it at 4,8cm.
Dr upped my metoprolol and re-ordered another CT for 3 months. She also told me to avoid strenuous activities. My repeat Ct is on this Wednesday, I'm anxious to find out where it is at now.
I have other health issues as well. Persistent Afib, low heart rate, sleep apnea and am way over wt. I take Flecainide 2xday for irregular hr, Metopolol for my blood pressure control, but it drops my Heart rate into upper 30-40, so the Electrophysiologist decided to finally implant a pacemaker to help control HR and irregular rhythm.
Sorry this got long.
I am trying to get in routine of exercise and eating healthier. I am hoping it was just the fall that caused the increase in size and it hasn't grown any more

Jump to this post

@hollikal Hello again to all. I realized I forgot to mention I am a female (not that it probably matters) and I listed my aneurysm wrong. It is not an AAA. but an ascending aortic aneurysm- TAA.

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Understood. Mine was ascending aortic as well. As for flying, here's what I can say: If it's domestic it's probably fine. Wear compression socks, keep your blood pressure (BP) down. Check your bags and travel with a friend who's aware of your problem and can help if necessary. Wear a medical ID on your wrist. I dissected 24 hours after a flight from MSP to SAN (1,600 miles). Travel is stressful. We were also out tromping around sightseeing in the 113F Anza Borrego desert the day before the dissection. I genuinely did not know that HEAT spikes your BP. The day I dissected, I had been on my feet lecturing to a group of 55 lawyers for 13 straight hours. That was stupid. None of these things helped. Collectively they all added up to what was ultimately a a savage and life threatening complete dissection. So, do you fly? Sure, as long as you're cleared by your doctor, have a medical ID bracelet on describing your condition, and you TAKE IT EASY at all levels. Here's a picture of me the day before I dissected in 2015, then the following day after 13 hours of emergency open heart surgery. I'm on the left and I look really hot (and not the good hot). 113F in the California desert seemed like a lot of fun until it wasn't. All that said, I am here. I am alive. I have tears in my ears as I write to you. I am thankfully every single day for the life I got back from UCSD La Jolla. Thank you! You're going to be fine, but be smart and not dumb like me. Peace.

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Hello everyone. I’m new today to the group. I am 73 and live in LA. I was diagnosed yesterday with AA (4cm) and stenosis and high cholesterol. I am waiting for my cardiologist appointment this coming Monday in LA, but wanted to learn more about my condition from other patients. And if surgery is necessary in the future, I would have it at Mayo. I made an appointment with the Intake Coordinator for tomorrow afternoon to discuss a possible appointment with a Mayo doctor. ( Note: don’t fully trust my LA cardiologist.) My first question is whether an aneurysm is reversible? And if not, is there such a thing as rate of growth? Do beta blockers or calcium channel blockers work for this condition? Thanks in advance for any information you may share!

REPLY
Profile picture for ctflyr @ctflyr

@hollikal
Hello....I'm in a similar situation as you, 70 y.o. with afib, BP issues and an enlarged thoracic ascending aortic aneurysm...4.5cm from a recent scan. It's important to be your own best advocate with regard to doctors and medical help. Inform/educate yourself as much as possible about your health challenges, act on the recommended guidance, and insist on regular monitoring! Things may go well, and result in no growth, or at least slow growth. Find an aortic center near you where you can get some expert support. Too often, as evidenced by other stories you read here, cardiologists are uninformed, or under educated about aneurysms, but won't admit it. Find a Dr willing to monitor you regularly that is familiar with your problem. If you have the interest, look to the "Virtual Second Opinion" offered by Cleveland Clinic, which is in the top-tier of aortic centers in this country. Best of luck in your efforts going forward!! Knowledge is power, and may save your life!!

Jump to this post

@ctflyr thanks for the recommendation!

REPLY
Profile picture for moonboy @moonboy

Understood. Mine was ascending aortic as well. As for flying, here's what I can say: If it's domestic it's probably fine. Wear compression socks, keep your blood pressure (BP) down. Check your bags and travel with a friend who's aware of your problem and can help if necessary. Wear a medical ID on your wrist. I dissected 24 hours after a flight from MSP to SAN (1,600 miles). Travel is stressful. We were also out tromping around sightseeing in the 113F Anza Borrego desert the day before the dissection. I genuinely did not know that HEAT spikes your BP. The day I dissected, I had been on my feet lecturing to a group of 55 lawyers for 13 straight hours. That was stupid. None of these things helped. Collectively they all added up to what was ultimately a a savage and life threatening complete dissection. So, do you fly? Sure, as long as you're cleared by your doctor, have a medical ID bracelet on describing your condition, and you TAKE IT EASY at all levels. Here's a picture of me the day before I dissected in 2015, then the following day after 13 hours of emergency open heart surgery. I'm on the left and I look really hot (and not the good hot). 113F in the California desert seemed like a lot of fun until it wasn't. All that said, I am here. I am alive. I have tears in my ears as I write to you. I am thankfully every single day for the life I got back from UCSD La Jolla. Thank you! You're going to be fine, but be smart and not dumb like me. Peace.

Jump to this post

@moonboy : May I ask what you were lecturing other lawyers about? ( Hopefully not about desert survival!)

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