Anyone have success with treatment for vaginal Lichen Sclerosus?

Coconut oil is also effective and has helped me. I now use 2-3x/week and haven't had a problem in a few years. Apply a minimal amount after bathing.

@bluesmoke
Did your ulcer or lesion hurt? Will see my gynecologist this week. Don’t want to hear anything bad!

Yes it was very sore and painful

Ive had Lichen sclerosis for about 6 years for sure now, I also have long covid and I only have 1 working kidney so internal meds or not an option. I have flareups about every 4 weeks and no creams have worked. Sex is out of the question as my skin tears and the itching is driving me crazy. My Dr. really doesn't take me seriously, she looks at it when its bad and says "oh we need to get this under control" Really??? then never does anything else. I need something to stop the itch please, any recommendations will be appreciated.

@frustratedlady50
Has she done a biopsy?
I went to my dermatologist back in early December. I read up on lichen sclerosis so much that I didn’t need a doctor to tell me that was what I had. At that time she diagnosed it LS without biopsy. I was very very inflamed, sore & up all night itching! She put me on clobetasol which helped the itching & inflammation. Shortly after being on clobetasol for 2 months I developed a sore. I thought maybe the clobetasol caused it. Went back to dermatologist & she said there was an ulcer, put me on silvadene which burned.
In the meantime had an appointment with my gynecologist. She took one look and took a biopsy. So here I am!! Waiting for the result & nervous!
Anyone else go thru this?
Women suffer so much more than men!!
Between child birth & if they have gone thru this horrible LS.
Someone help us😩

@bluesmoke
Saw my gynecologist she took one look and took a biopsy!! Never a good sign 😬 Now waiting!
Hoping not to get bad news!!

@andwho I did not. I did not have sex during that time period, wondered if a past HPV infection triggered it, and used the cream & it cured it. I believe low estrogen during that period also contributed.

@frustratedlady50 I have learned that patting with a wet piece of tp or towel after voiding and cleaning helps keep the darm bugger in control. I'm being treated by my gyno and happenstanced to tell my derma and follow his suggestions, too. I switch out from time to time the clobestesol with Mometesone, and frequently lube with vaseline or similar, KY, whatever you prefer. We all know stress and sugar complicate it. Hard to control what is out of our control, so- we deal. My sex life is no more except for my lovely shower aid- and when I get that tingly feeling, it's time for the shower! And lube, etc. Works for me. Gyno says ue clob 3 x week. Derma says once flare is over, dont use it. I've been doing that, and when it happens, I restart the program. But that technique took me years to figure out. is he right>? IDK,. He said that is what Mayo does. Well, I was so frustrated with my gyno sending off samples and they always came back as "inflammation.' When I went to mayo over my spine, they asked if anything else was going on, took a peek and biopsy and said, yep LS. then looked in my mouth (*diff doc!) lol- and biopiied Lichen Planus- Oral and Esophageal LP (they did an EGD) so my lesson from this was GO to a University lab, do not use general labs because - it was missed for me for over 15 years! I suffered with this monster mostly at nights for over 3 decades now. Ridiculous how little general gynos know about LS. Good luck, everyone. I was telling all the ladies I knew for a few years what to look for and get checked out. This is much more common that was previously thought because until the last 15 /20 years women were closed mouth and suffered in silence. Please tell the women (and men) in your life - and girls too- if they itch, to let it be known Hugs to all.

My gynecologist has put me onBetamethasone which has seemed to help

I am a retired WHNP. I treated LS for many women.. Never did a bx. But it did require high use of a strong topical steroid. I do not like steroids, but this was the only way I ever saw a woman clear her LS. I find the long stories saddens me as to the lack of care and knowledge so many seem to encounter. It did require using the steroids more than once/d, for a time, then daily, gradually decreasing to 3x/wk.. And some had to keep the Rx around in case it returned. The last woman I treated had extensive whitening/LS, and this cleared it up.