@frustratedlady50
Has she done a biopsy?
I went to my dermatologist back in early December. I read up on lichen sclerosis so much that I didn’t need a doctor to tell me that was what I had. At that time she diagnosed it LS without biopsy. I was very very inflamed, sore & up all night itching! She put me on clobetasol which helped the itching & inflammation. Shortly after being on clobetasol for 2 months I developed a sore. I thought maybe the clobetasol caused it. Went back to dermatologist & she said there was an ulcer, put me on silvadene which burned.
In the meantime had an appointment with my gynecologist. She took one look and took a biopsy. So here I am!! Waiting for the result & nervous!
Anyone else go thru this?
Women suffer so much more than men!!
Between child birth & if they have gone thru this horrible LS.
Someone help us😩

@frustratedlady50 I have learned that patting with a wet piece of tp or towel after voiding and cleaning helps keep the darm bugger in control. I'm being treated by my gyno and happenstanced to tell my derma and follow his suggestions, too. I switch out from time to time the clobestesol with Mometesone, and frequently lube with vaseline or similar, KY, whatever you prefer. We all know stress and sugar complicate it. Hard to control what is out of our control, so- we deal. My sex life is no more except for my lovely shower aid- and when I get that tingly feeling, it's time for the shower! And lube, etc. Works for me. Gyno says ue clob 3 x week. Derma says once flare is over, dont use it. I've been doing that, and when it happens, I restart the program. But that technique took me years to figure out. is he right>? IDK,. He said that is what Mayo does. Well, I was so frustrated with my gyno sending off samples and they always came back as "inflammation.' When I went to mayo over my spine, they asked if anything else was going on, took a peek and biopsy and said, yep LS. then looked in my mouth (*diff doc!) lol- and biopiied Lichen Planus- Oral and Esophageal LP (they did an EGD) so my lesson from this was GO to a University lab, do not use general labs because - it was missed for me for over 15 years! I suffered with this monster mostly at nights for over 3 decades now. Ridiculous how little general gynos know about LS. Good luck, everyone. I was telling all the ladies I knew for a few years what to look for and get checked out. This is much more common that was previously thought because until the last 15 /20 years women were closed mouth and suffered in silence. Please tell the women (and men) in your life - and girls too- if they itch, to let it be known Hugs to all.

@frustratedlady50
Has she done a biopsy??
Was it ever confirmed that you had LS? Have you ever been on clobetasol? If she doesn’t do anything then it’s time to find a new doctor. We should not have to suffer. LS is a very real thing & should be treated as such!
It’s not all in our heads!
Why do we have to do all the research and end up educating our doctors on this. LS is exhausting. We need doctors to step up to the plate & learn more about this & help us. Please help us. Does anyone else feel this way?