So exhausted after a little exertion makes me not want to do anything

Posted by judyhodgern @judyhodgern, Jan 25 8:56am

I am a 79 year-old woman who tries to keep active I play 18 holes of golf once a week and I go to PT once a week and I play bridge several times a week but I'm just lazy I don't do other exercises and I know I should I just need somebody to help me Get off my chair and do things for my body thank you

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Profile picture for rpec @rpec

@lilianna I have a regular pulmonologist who specializes in bronchiestis. I have done the 6 minute walk and it does not drop below 93 which is hard for me to understand when I'm panting and I had to stop twice during the walk to try and get some breath. Oxygen is there lungs just can't get it out. I constantly check my oxygen level at home.

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@rpec In addition to what @irenea8 suggested, here are some thoughts. She is correct about staying on oxygen, failing to do so "starves" your body and brain of properly enriched blood, which can cause many problems.
Is it possible you are panting because you are deconditioned? Have you done a course of respiratory rehabilitation to try to improve your situation?
Is it possible that you also have cardiac issues complicating your situation?

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Profile picture for rpec @rpec

I have been on oxygen but it doesn't help. I can be on oxygen and try to do anything I still pant just as much as with no oxygen. Normally doing nothing my oxygen will be 93/94. Now with or without oxygen and do anything physical it will drop to 87/88 but soon as I sit it goes back up. I rarely use it anymore. My problem is my lungs are working hard to try and pump the oxygen out. Since they are functioning at 42%, that's why.

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@rpec I am in similar situation. On O2 at night using concentrator in upstairs bedroom. Problem is downstairs where I would have to use a portable. Medicare helps with one stationary and one portable but not another. Carrying a portable and doing work around the house is difficult. I doubt I could do a six minute walk test without O2. I do go to BE specialist. Albuterol 7% saline, aerobica, autogenic drainage, and positional drainage. Pulmonary Rehab helped and once my back issues resolve I hope to go back.

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Profile picture for rpec @rpec

@lilianna I have a regular pulmonologist who specializes in bronchiestis. I have done the 6 minute walk and it does not drop below 93 which is hard for me to understand when I'm panting and I had to stop twice during the walk to try and get some breath. Oxygen is there lungs just can't get it out. I constantly check my oxygen level at home.

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@rpec I find using the small oximeters do not work well on me. At poulmonary they will read low 80s buy using the more professional oximeters it will read 93 or more. Low Percussion index maybe due to RA in fingers.

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No problem with CO2. I have done pulmonary rehab not sure what respiratory rehabilation is. I have been on steroids but not on them now.
The only reason I ended up with O2 is because I had Covid about 6 months ago and spent one night in hospital to make sure my lungs were not damaged anymore. The local hospital suggested O2. I thought when I was on it I would be able to do things in the house. I have the big O2 at home with long tubing and ordered a portable one for $3200. I never opened it because i wanted to make sure the O2 would help. Didn't work...still panted just as much while on it. Dr told me to send
portable back and suggested just to use the one I have at home at night. Which I have been doing. Can't tell any difference.

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Profile picture for nicholslg @nicholslg

@rpec I am in similar situation. On O2 at night using concentrator in upstairs bedroom. Problem is downstairs where I would have to use a portable. Medicare helps with one stationary and one portable but not another. Carrying a portable and doing work around the house is difficult. I doubt I could do a six minute walk test without O2. I do go to BE specialist. Albuterol 7% saline, aerobica, autogenic drainage, and positional drainage. Pulmonary Rehab helped and once my back issues resolve I hope to go back.

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@nicholslg what is your O2 level when you are not on O2? You seem to say O2 gives you extra breath to do things in the house? I would love for that to work for me. I did pulmonary rehab. Didn't have a problem doing the treadmill, bicycle, weights, and arm peddle. Using the arms to peddle was the most difficult. Glad it helped you but I couldn't tell much difference.

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Profile picture for nicholslg @nicholslg

@rpec I find using the small oximeters do not work well on me. At poulmonary they will read low 80s buy using the more professional oximeters it will read 93 or more. Low Percussion index maybe due to RA in fingers.

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@nicholslg you are right..the home oximeters are not as accurate as the ones in the Dr's office. In fact, when dr checks it my O2 is 96/97. When I check it at home it runs 93-94. Maybe sometimes 95. All this w/o O2.

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Profile picture for Sue, Volunteer Mentor @sueinmn

@rpec In addition to what @irenea8 suggested, here are some thoughts. She is correct about staying on oxygen, failing to do so "starves" your body and brain of properly enriched blood, which can cause many problems.
Is it possible you are panting because you are deconditioned? Have you done a course of respiratory rehabilitation to try to improve your situation?
Is it possible that you also have cardiac issues complicating your situation?

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@sueinmn I do not have any cardiac problems. I have had a couple of cardiac test and heart is fine. I know I'm reconditioned. Used to exercise regularly until I got this and do very little since it hard for me to breath. I know i need to make myself walk, even around abd around in the house but I feel so much better just sitting is the problem.

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Profile picture for irenea8 @irenea8

@rpec
Have they checked your blood gases? Do you have Hypercapnia? A build up of CO2.
The treatment focuses on managing the underlying cause and improving breathing, ranging from non-invasive support like CPAP/BiPAP and oxygen therapy alongside medications (bronchodilators, steroids). There is not much that can be done about it but usually staying on Oxygen is crucial.

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@irenea8 Blood gases are ok.

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Perhaps your issue is from long COVID since that is one of the causes listed for O2 being ok but still SOB
Or possible anemia. or Pulmonary hypertension, sleep apnea, or reflux (GERD).

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Profile picture for rpec @rpec

@irenea8 Blood gases are ok.

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@rpec
That is good news if your gases are ok! My blood gases are quite high and I do have hypercapnia and hypoxia. Drs say if anyone were to have my levels all of a sudden they would die. But my body has acclimated over time. My kidneys compensate by producing bicarbonate. The body is amazing.

Also when I was put on Oxygen in 2025 my O2 levels were in the 60's. I should not have lived with that but my body slowly adjusted. I must have been struggling with levels in the 80's for a long time not realizing it. Then it kept going down until it became critical and I was hospitalized. For some time I thought my Oximeter was inaccurate but it was not. So get a good high quality one and trust it and use it.

I wonder why some of you use Oxygen at night but not during the day. At night I can turn mine down to almost 1. During the day it has to be 2.5 or 3. Even so cannot do much that is physically active. Sitting feels the best.

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