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Taking leqvio

Posted by kyndaj2568 @kyndaj2568, Dec 10, 2025

My doctor wants me to get on Leqvio…however due to moving they want me to skip initial 3 month dose and start taking every 6 months
Is this a good idea? Is it harmful to me?

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kyndaj2568 | @kyndaj2568 | Dec 25, 2025
In reply to @jlharsh "Welcome to Connect, @kyndaj2568. I assume you are concerned that getting Leqvio (Inclisiran) on a different..." + (show)
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Welcome to Connect, @kyndaj2568. I assume you are concerned that getting Leqvio (Inclisiran) on a different schedule than recommended may be harmful, not asking about the drug itself.

Here is a link to the drug company’s locator page where you can type in a location and find a center to get your injection. To me, that makes more sense than taking it on your own schedule. https://leqvio-locator.com/

Is there a reason other than finding a place to get the shot that concerns your doctor?

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@jlharsh not true I am from illinois no infusion center will accept while I am in California.

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kyndaj2568 | @kyndaj2568 | Dec 25, 2025

I started with th 3 month shot this week I leave for Cali next week hopefully my cardio will be pro the shots and prescribed for my shot 3 months from now…I have talked with leq vio and Novartis neither were any help and I’m sure I’m not the only snowbird this would happen too

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Janell, Volunteer Mentor | @jlharsh | Dec 25, 2025
In reply to @kyndaj2568 "@jlharsh not true I am from illinois no infusion center will accept while I am in..." + (show)
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@jlharsh not true I am from illinois no infusion center will accept while I am in California.

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@kyndaj2568

I am not sure I understand. What is the reason you were given for not being able to get Inclisiran injection in California?

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ddonv | @ddonv | Feb 27 7:44pm

My husband took the 1st 3 month injection 6/25. Within 2 weeks he was experiencing severe thigh pain. After many doctor visits he was diagnosed with amyotrophy which is pain caused by nerve irritation. At 6 months we were able to get relief from the pain with Gabepentin. His liver function enzymes also increased really high. I fear to think what would have happened with the 6 month injection.

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ccr777 | @ccr777 | 4 days ago

I'm 3 months in from injection #1 - hip pain started after 2 weeks, fatigue has increase daily upto this point and it's impossible to have a good day - muscle aches throughout my body - I canceled next shot - feeling this awful isn't worth it - I'm tired of hearing how rare these side effect are, if you have them it's awful

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