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Anyone diagnosed with Gastroparesis?

Digestive Health | Last Active: Apr 10, 2024 | Replies (204)

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@darlia

Looking for suggestions on diet, alternative treatments, etc that are being used by others. I cannot use the Reglan as it is a bad drug in my opinion. I can tell you that it caused me to go into major depression in 2008

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Replies to "Looking for suggestions on diet, alternative treatments, etc that are being used by others. I cannot..."

Hi All:

I have been reading with interest your discussions on gastroparesis. I have had 3 surgeries of the upper digestive tract and 2 of the surgeries were invasive. Since the second surgery, I certainly have a lot of the symptoms of gastroparesis, with feeling full quite quickly and feeling nauseous if I go beyond the full feeling. I noticed that some of you have mentioned walking after eating and I realized that exercise was probably a good idea. As a result, I "Googled" exercises for gastroparesis and found some very interesting, easy to do exercises that don't require walking outside. These are to be done after you eat. I've tried both of them and could notice feeling better without so much of that bloated, full feeling. I just wanted to share it with you in case you would like an alternative treatment.

Here is the link, http://www.diabetes-book.com/exercises-facilitate-stomach-emptying/.

Have anyone tried other exercises after meals? If so, will you share your experiences?

Teresa

When I first was having problems with my idiopathic gastroparesis they put me on Reglan. My family Dr told me to stop it because it can cause Parkinson’s disease. I’m doing quite well on the pacemaker I’ve had since April 2012.

I eat several small meals a day, but sometimes the food just sits in my stomach. A walk usually helps. I also gently massage my stomach to help stimulate it. I lay a microwavable heating pad on my stomach when it gets painful and do more gentle massaging. My doctors advise me not to take reglan. I tried the domperidone (may not be spelled correctly) and I had several side effects and it was no help for me. Propulsid did work, but it went off market shortly after I started taking it. What works for one person may not work for another. Sometimes you deal with several differrent conditions and it makes it difficult to figure out what will work for you or your loved one.

a friend has it and doesn't have diabetes. she is on reglan. she already had depression before starting it. I am trying to help with diet etc.

When you did use the botox treatment I am wondering about that.
1. Are there any side effects?
2. Complications or issues later on?
3. Does the botox make it so you no longer have a. Acid reflux b. Regurgitation c. Can you eat more variety?
4. Does the Pace maker make it so you're eating more"normal"? And are there any problems with the pacemaker?
Thank you!!
Darlia

@nanny23 Any place you have nerves, with or without muscles.

Hi @darlia,

We have several discussions about gastroparesis which you may wish to view:

– Does anyone else out there have gastroparesis? https://connect.mayoclinic.org/discussion/hi-all-does-anyone-else-out-there-have-gastroparesis/
– GERD, gastroparesis, neurogenic bowel https://connect.mayoclinic.org/discussion/gerd-gastroparesis-neurogenic-bowel/
– Failed Nissen w/gastroparesis & possible MALs https://connect.mayoclinic.org/discussion/failed-nissen-wgastroparesis-possible-mals/

I'd like to invite @katmandoo @citygirlannie @faycarole @clemlaa @debnjay @galy @jlfisher56 @robatk17, to join this discussion and share their insights as well.

The Mayo Clinic link provided by @fourof5zs above, (thank you!) also has some great information about ongoing research and studies to investigate new medications to treat gastroparesis.

I have idiopathic gastroparesis and am pre diabetic.

I was told I had gastroparesis after I had surgery for a hiatial hernia operation 3 years ago. I have taken too many medications to count. I've also tried every diet with no success. I was told my vegas nerve was damaged so my digestive system no longer works. I have learned to live with it. I have lost a lot of weight and I have no strength left. I hope you have better luck.

So sorry you are not well. I have many stomach problems too and nothing seems to work for me