Perhaps we can all pray for relief for one another. Until medicine catches up with our IBS or other serious stomach there is limited options. My heart goes out to all who are suffering pain today.

I have idiopathic gastroparesis and don't have diabetes. I tried Reglan and didn't work plus my Dr told me to stop it because it can cause Parkinson's. I had a gastric pacemaker implanted in my stomach which has leads that go directly into my stomach to stimulate it so I can eat and the food will digest. I have to eat several small meals and avoid raw vegetables, fruit, nuts and high fiber. Also only eat chicken, fish and hamburger. I have had the pacemaker since April 2012 and it's a life saver. Hopes this helps you. Kathy

Yes I had the Botox done 3 times before it quit working for me. It would last about 4-5 months. The last one didn't work at all that's why I got the gastric pacemaker implanted in my stomach.

I recommend the pacemaker.

I got gastroparesis after hiatal hernia repair surgery. I believe the vagus nerve was damaged during surgery. I understand that acupunture can be helpful. I haven't tried it but I plan to. I still struggle every day with nausea and gas pains. Some days are better than others. I take Zolfran for nausea and sometimes it works quite well and other times not so much.

I'm getting an upper endoscopy April 5 to confirm gastroparesis. I had to cancel my last one a few weeks ago because I tried cleaning out for almost 3 days and nothing was moving. I told my doc when they do the next one next month that I absolutely do not want my esophagus stretched, it's only been stretched once so I'll remind him again before they give me the anesthesia. I was just prescribed amlodipine besylate a low dose calcium channel blocker for my Nutcracker esophagus. I've only been taking it about 5 days but I asked the doctor please prescribe until after I get the upper GI test results. I will look up this other so-called rare antibody. I'm on mostly a liquid diet right now and I'm dropping weight really quick. My blood work is great except I'm low on folic acid and vitamin D. I read about esophagitis eosinophilic people are low on vitamin D, I also have disc desiccation in the thoracic spine and I'm assuming that's one reason for my neuropathy plus the cervical injuries and my low back with bone on bone. Hopefully we can get this figured out soon! I will be 50 years old in August and I still can't work, my hands go numb and I'm having trouble with my feet turning inward, I almost fell while taking a shower last week luckily I grabbed the side of the tub before I hurt myself. Thank you all for responding, I will keep in touch see what my GI doc will do after my test next month!

@donnamarie

Hello Donna:

How fortunate that you got to a hospital system that was on top of your condition and gave you a diagnosis!

Could you tell us more about the type of surgery the doctor has recommended?

I look forward to hearing from you again.

Teresa

I've had gastroparesis since 2005 and I was able to deal with it until 2 years ago. I don't eat very much to begin with but I kept getting very sick, pneumonia/bronchitis/dehyration etc. My electrolytes kept dropping down so fast causing confusion and making me so sick. Between 2016 & 2017 I was in ER 17 times, with 7 admissions. Gastroparesis reconfirmed again early 2017. I kept telling 2 gastros, my internist, a "specialist" that I paid out of pocket seeking a diagnosis; telling all of them the same thing, I couldn't hold my food down, not even the gastro diet, my stomach hurt all of the time, I was vomiting 4-6X week. That I was trying different foods in small amounts but It didn't matter. I told them I was belching so badly that I couldn't sleep, that I was hiccuping constantly that hurt. The hospital, along with these doctors all ran labs, labs all positive for dehydration and electrolytes. Stopped going to doctors & ER. Sick & tired, literally. Have been bedridden over 2 years. Finally, after 4 months, my husband insisted on taking me to a clinic outside hospital system. The clinic had access to all my records. PA diagnosed me within 15 minutes - severe malnutrition due to gastroparesis. Saw a new Gastroenterologist, tested me, gave me hope but I was unable to take Domperidone. He said I was so sick that he had to send me to Tampa. I'm seeing another Gastroenterologist on March 23 & a surgeon on March 27. I am scared. I am so sick, I have no energy. The pain is unbearable. I am being told I need surgery. Does anyone have any advice to give me? I'm on a liquid diet and drinking Pedialyte but I'm vomiting that presently also. Thank you so much. Donna

I tried apple vinegar and it stung in my stomach.

It had been determined that since I have the rare FGFR3 ANTIBODY which is the cause of the Peripheral Neuropathy, it is also the cause of the Gastroparesis since this is caused by the nerves not working properly in the stomach.