Hello Darla, Thank you for the feedback. I agree depending on the day what I eat may or may not agree with my stomach. I found it strange they requested another study although the two I had shows my GP to worsen. I use smoothies and tea as well. I have just started using dementia and Black Walnut natural herbs. I am always trying different combinations of things. Sometimes I can due tuna and crackers but once my body seems to become immune to something after while it rejects. Everyday is a challenge, but I refuse to sink so I must keep SWIMMING.

I have gastroparesis not caused from diabetes. I also have lower extremity neuropathy. If anyone like myself is having chronic nausea with no relief go look up (Marinol.) It is synthetic THC and it works very well. I has a little "pot like" buzz the first time i took it and thankfully that went away. It was originally used on nausea caused from chemotherapy.

Hello All, I'm new to this thread but I must say so far I ha e read nothing but positive and encouraging comments. I was diagnosed with Gastroparessis in 2014 and I'm in Raleigh, NC. I have tried many medicines including Reglan, Erythromycin, etc. I currently rotate between Zofran, Benadryl, and Phenergan for nausea. I was recently diagnosed with Jackhammer Esophagus and I'm waiting on my appointment for Botox injections... I have been looking to get the Pacemaker but no doctors here in NC actually performs the procedure. I've lost weight, had to have a port placed due to my veins not being accessible due to dehydration from vomiting so much in the beginning. I do have a few questions, feedback is greatly appreciated.

Does anyone know of any GI specialist that will do the initial consult over the phone?

Has anyone had their insurance cover traveling cost to go out if state to see another specialist or to have a procedure done such as the Pacemaker or G-Poem surgery?

Could someone please provide some of their best GI or Gastroparesis specialist?

I'm at the point where if I need to travel for a resolution I will. My last gastric emptying study was in 2014 should I request another one or can doctor's use the previous test?

Thank you all in advance for your feedback.

***Aetna is my current health insurance***

As I have written before,my gastroparesis was caused by my narcotics. Many medications can do this. Before botox was more popular and my Reglan was discontinued (I had Parkinson-like symptoms), doctors in Philadelphia wanted nto place a pacemaker in my stomach. A lawyer I knew told me about "botox" trials that were starting at another hospital in Philadelphia and his daughter had it...was doing great! Not wanting to travel into the city and so far away...but getting sicker and sicker...the erythromycin wasn't really helping as a prokinetic (making my stomach contract and emptying it)...my local GI doctor told me Hershey Medical Center was starting to use botox to the pyloric sphincter. I had it done January 2014 and still am 80% better! A God send!

Where did they give you the shot? I had them in my head for migraines a few years ago....not much luck with that then.

***For Nausea** Please Read
https://www.jwatch.org/na46286/2018/03/09/inhaled-isopropyl-alcohol-superior-oral-ondansetron

Hi, I am also looking for help with the same problems,also something for the nausea I have tried all the meds.I was just diagnosed with small fiber neuropathy. How do all these neuropathy's play in with all these GI problems?

Hi,its Lori again. I just found your post. I need help!! I do go to Cleveland Clinic,and I know I'm a complicated case with overlapping diseases. I have ben getting worse each year and hope to pick up info that can help me.
Darli can you tell me what Failed Nissen w/gastroparesis and possible Mals would be? Thank You, Lori