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DiscussionLooking for answers to help with gastroparesis
Digestive Health | Last Active: Jun 9, 2025 | Replies (207)Comment receiving replies
Replies to "Looking for suggestions on diet, alternative treatments, etc that are being used by others. I cannot..."
I do. I took Propulsid for it for about 3 months before they took it off the market in 2000. It worked well for me. My doctors do no not think I am a good candidate for Reglan. I have a little bit of neurological problem... just a tic. In 2013 I tried Domperidone and I had side effects, but I cannot remember now what they were. After 2 weeks I discontinued them. A gastroenterologist at the Mayo Clinic in Jacksonville FL prescribed the Domperidone for me and I had it filled a local (Albany GA) compounding pharmacy. You might want to try it for a couple of weeks to see if it is for you. It was long ago, but I think they were pricey. If they work it would be worth it. I eat no raw vegetables or fruit except ripe bananas. Too much fiber at one time can slow my stomach emptying more. I eat soft cooked vegetables, and fruits, and tender meats. I had to have gastric bypass to fix a paraesopageal (sliding) hiatal hernia in 2014. My stomach only holds about a cup of food. So I eat about ever 2-3 hours and throw some high calorie cookies in there to get my calorie intake up to maintain weight. I do like those Lorna Doones though. More suggestions on food here: https://www.mayoclinic.org/diseases-conditions/gastroparesis/diagnosis-treatment/drc-20355792 . I also have achalasia and Barrett's esophagus. I take the generic of Prilosec twice a day.
It has been determined that since I have the rare FGFR3 ANTIBODY which is the cause of the Peripheral Neuropathy, it is also the cause of the Gastroparesis since this is caused by the nerves but working properly in the stomach.
How did you find that out?
@nanny23 Any place you have nerves, with or without muscles.
Hi @darlia,
We have several discussions about gastroparesis which you may wish to view:
– Does anyone else out there have gastroparesis? https://connect.mayoclinic.org/discussion/hi-all-does-anyone-else-out-there-have-gastroparesis/
– GERD, gastroparesis, neurogenic bowel https://connect.mayoclinic.org/discussion/gerd-gastroparesis-neurogenic-bowel/
– Failed Nissen w/gastroparesis & possible MALs https://connect.mayoclinic.org/discussion/failed-nissen-wgastroparesis-possible-mals/
I'd like to invite @katmandoo @citygirlannie @faycarole @clemlaa @debnjay @galy @jlfisher56 @robatk17, to join this discussion and share their insights as well.
The Mayo Clinic link provided by @fourof5zs above, (thank you!) also has some great information about ongoing research and studies to investigate new medications to treat gastroparesis.
I have idiopathic gastroparesis and am pre diabetic.
I was told I had gastroparesis after I had surgery for a hiatial hernia operation 3 years ago. I have taken too many medications to count. I've also tried every diet with no success. I was told my vegas nerve was damaged so my digestive system no longer works. I have learned to live with it. I have lost a lot of weight and I have no strength left. I hope you have better luck.
So sorry you are not well. I have many stomach problems too and nothing seems to work for me
Perhaps we can all pray for relief for one another. Until medicine catches up with our IBS or other serious stomach there is limited options. My heart goes out to all who are suffering pain today.
Connect

My grandson is only 19 years old and he has this. He takes protonix and watches his diet. I️ was very surprised someone so young has this. Our family has a history of bad stomach problems. Also diabetes. He does not have diabetes.