Are you taking Reclast for osteoporosis?

@kandypatel You need to drink 6-8 glasses of water the day before. 8oz each .4 glasses before and 4 after. Taking Tylenol before can help.

I couldn’t tolerate Fosamex and have had two yearly infusions of Reclast and will never do it again! After the first one, I felt awful for months. But then in year two, I developed tinnitus starting the next day after the infusion that has intensified. But even more disturbingly, I had significant hearing loss in both ears. My audiologist tells me that Reclast is ototoix and my symptoms are permanent. My hearing loss is now being monitored quarterly. Also, a potential side effect is osteonecrosis of the jaw and you’re not supposed to have dental procedures while on Reclast. Dentists and doctors vary on their recommendations about this. But my overall feeling is that the risks outweigh the benefits. I will look into HRT. But if that’s not an option, I’ll just live with my aging bones and do the best I can to stay fit and strong.

I took Reclast for 3 years. The side effects got worse each time. The DEXA didn't show any improvement. I'm taking a break now. I'm in an exercise class, whole foods diet, and resistance training for now.

I’m doing my first infusion in a few weeks. I’m very nervous and hesitant about it! Time will tell….😬

@janeted Start drinking plenty of water a couple of days before, the day of, and for a day or two after. Take Tylenol and an antihistamine, as well. Those three things will help with any acute phase reaction you might have.

@harborside24
Thank you!!!

I had monthly injections of Eventity for a year. The neck pain side effect for me was pretty bad. I had my first infusion of Reclast today at a half dose of 2.5. I super hydrated and it was a slow infusion. So far no side effects. I have read several medical articles now that half doses once a year may work as well as the 5 mg doses. Best of luck. The friends who have been on Reclast have done very well with bone health.

@miznancy

I'm considering a half dose of reclast if I stop prolia in May. Can you share what your endocrinologist said about checking the effectiveness of that half dose in stopping bone loss after evenity. I recognize that my path would be different but it would still be helpful to know. Thanks.

@gravity3 The endocrinologist and the rheumatologist agreed that it would be fine. There is actually some research that agrees that a smaller dose can be as effective as the 5 mg dose. I As you know, after stopping Prolia you must do something as the bone gets worse fairly quickly after stopping Prolia. Last night I felt fine, but at 1 am I woke up in misery with joint pain, and almost passed out when I got up. My blood pressure was extremely low. Better now, but I still feel puny. I hope that you can find something to help. Normally you have a bone density after stopping Prolia and then 6 most or a year after the Reclast infusion.

I am having my first Reclast infusion tomorrow. I am grateful that I came upon this thread as there are more positive posts regarding the side effects. I suffered my second compression fracture a month ago. First one 7 years ago. Tried Fosomax but could not tolerate the esophageal discomfort. Sadly the use of supplements, diet, and exercise did not help me with my bone health and I havw had a steady decline of my DEXA scores. I have been so fearful of the drugs but have to do something. I'm 68 years young and otherwise healthy. Thanks for the tips on preparing with hydration, an antihistamine, and Tylenol. Had Inot read all your stories I would not have known.