Are you taking Reclast for osteoporosis?

Posted by Becky, Volunteer Mentor @becsbuddy, Jul 21, 2020

Two years ago I was diagnosed with pretty bad osteoporosis because of the prednisone I was on for my autoimmune disease. I started taking Fosamax (a bisphosphonate) and had no problems. Today, the endocrinologist suggested that I switch to Reclast for 3 yearly infusions. Has anyone else taken this drug? What side effects have you had?
Thanks

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@ameliabmc

I think you are spot on. The doctor just told me to do that. She should have told me to take that before, as well as lots of water, I learned recently. Thanks!

Jump to this post

Wonderful! I hope it helps. Keep me posted.

REPLY
@ameliabmc

It was my first time on June 30, and my experience has been awful. I am still experiencing the following side effects.
* back pain
* some skin burning, crawling, itching, or tingling feelings
* discouragement
* crushing headache
* some loss of appetite
* nasal congestion
* pain in the joints and muscles
* trouble sleeping
* belchinng
* stomach discomfort or upset, flatulence
* unusual dullness, tiredness, weakness, or feeling of sluggishness
* pain on the eye when moving to look up or to the sides. I developed a fever that at this point is resolved.
I’m taking Tylenol that seem to temporarily alleviate the symptoms.
I have tried to contact my doctor and I have received no answer to learn how long should I expect to experience these symptoms, and what can I do to resolve them.

Jump to this post

I received an infusion at the end of January. Approximately 1 1/2 months later I started having pain in both arms, including wrists and hands. I think my back pain was exacerbated too. The pain can be extremely uncomfortable and Tylenol doesn't help. I can't take NSAIDS because I have one and a half kidney anda they affect the kidney. It's very frustrating. I feel your pain. This was never explained to me by the physician who prescribed it. He just told me about the fllu-like symptoms that may occur within four days of receiving it. I had none of that. Ugh!

REPLY

I've had 2 infusions of Reclast with no side effects at all.

REPLY
Please sign in or register to post a reply.