Europe based members

Posted by dinu @dinu, Jan 26 4:08pm

Hello everyone,

I would like to do a quick poll to find out how many of us are living in Europe and discuss what treatments we have available on this side of the pond.
Since the European medicine organizations have somewhat different medicine approvals than the FDA in the States, it would be interested to get a base line. Also it would be interesting to find out what treatment options we are being offered in Europe. I know myself, in Germany alone, I have interacted with a dozen various doctors for my PCa and receive half as many different opinions.
Additionally, the AnCan foundation is running regular live webinars where the have several doctors joining in. Since some of their webinars are held in the evening time (US Time zones) it may be difficult for some of us in Europe to attend.
I have spoken with the founder of the AnCan about holding some webinars earlier for the European audience and we would like to do a row call to see how many people would be interested in attending such webinars.

So, a simple response with the country in Europe where you are joining from and if you are interested in attending the AnCan webinar would suffice for now.

Thank you very much for your time and as always, be strong and stay positive.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for dinu @dinu

@prettypass2000
I am also in Stuttgart area. I will look forward to seeing you in the upcoming virtual chat.
Make sure you check the link in my post above.

Stay strong and be positive.

Jump to this post

@dinu Thank you! We wish you the best too. I hope I'll make it to the virtual chat if I don't have to be on the phone with the insurance. I'm heading to University Hospital Tuebingen today to pick up paperwork since they can't be sent by email.

REPLY
Profile picture for dinu @dinu

@prettypass2000
I am also in Stuttgart area. I will look forward to seeing you in the upcoming virtual chat.
Make sure you check the link in my post above.

Stay strong and be positive.

Jump to this post

@dinu Where do you get your treatment at? My husband got his prostatectomy with robotic-assist at Sindelfingen Hospital in 2021

REPLY
Profile picture for prettypass2000 @prettypass2000

@dinu Where do you get your treatment at? My husband got his prostatectomy with robotic-assist at Sindelfingen Hospital in 2021

Jump to this post

@prettypass2000
I got diagnosed in August with T3b. Since them I have been on ADT, in SLK.Gesundbrunnen in Heilbronn. I am in discussion with Martini Klinik in Hamburg to schedule my RARP. Most likely I will get the surgery in March-April.

REPLY
Profile picture for dinu @dinu

@prettypass2000
I got diagnosed in August with T3b. Since them I have been on ADT, in SLK.Gesundbrunnen in Heilbronn. I am in discussion with Martini Klinik in Hamburg to schedule my RARP. Most likely I will get the surgery in March-April.

Jump to this post

@dinu Wishing you the best! My husband got his surgery done with the professor doctor at Sindelfingen Hospital in 2021. We're currently getting second opinions on surgery and radiation for the recurrence.

REPLY
Profile picture for dinu @dinu

@prettypass2000
I got diagnosed in August with T3b. Since them I have been on ADT, in SLK.Gesundbrunnen in Heilbronn. I am in discussion with Martini Klinik in Hamburg to schedule my RARP. Most likely I will get the surgery in March-April.

Jump to this post

@dinu

Hello, Dear Friend!
Your PSA now, which? I hope decrease!
How are you feel?

REPLY
Profile picture for dinu @dinu

@dinu (T3b, N1) Gleason 9 (4+5), pre-RARP, age 45
@jsh327 (T2c pNO) Gleason 7(4+3), RP+RT+IO, age 66
@jdt
@denis76
@smoore4 Gleason 7 (4+3), RARP and salvage, age 60
@johnwf (cT2a) Gleason 9 (4+5) age 75
@rleech
@restlessandwild
@lamer25
@cochuir Gleason 7 (4+3) EBRT, Brachytherapy, age 70

Jump to this post

@dinu

Update for me, please

t2bn1m1 Gleason 9 (4+5) ADT+Erleada, AGE 49

REPLY
Profile picture for dinu @dinu

@prettypass2000
I got diagnosed in August with T3b. Since them I have been on ADT, in SLK.Gesundbrunnen in Heilbronn. I am in discussion with Martini Klinik in Hamburg to schedule my RARP. Most likely I will get the surgery in March-April.

Jump to this post

@dinu Which uro-oncologist do you go to? Sorry to ask, but we are looking around for a new uro-oncologist if we can find one.

REPLY
Profile picture for prettypass2000 @prettypass2000

@dinu Wishing you the best! My husband got his surgery done with the professor doctor at Sindelfingen Hospital in 2021. We're currently getting second opinions on surgery and radiation for the recurrence.

Jump to this post

@prettypass2000
I am being treated by Pr. Dr. Hatiboglu, Urology Klinik Director, at SLK Gesundbrunnen. But i asked around for a lot f second opinions (Heidelberg Uni Klinik, Mannheim, Köln, etc.) on both urology and oncology side. But surgery wise i wil go to Martini Klinik in Hamburg.

REPLY
Profile picture for denis76 @denis76

@dinu

Hello, Dear Friend!
Your PSA now, which? I hope decrease!
How are you feel?

Jump to this post

@denis76
Hi Denis, i am doing ok, the PSA is staying kind of constant, just above 4. How are you doing?

REPLY
Profile picture for prettypass2000 @prettypass2000

@dinu Which uro-oncologist do you go to? Sorry to ask, but we are looking around for a new uro-oncologist if we can find one.

Jump to this post

@prettypass2000
As i mentioned in my previous post, Dr. Prof. Hatiboglu, at the SLK Gesundbrunnen in Heilbronn. He is an urologist. But his surgery option in my case was from the beginning without nerve-sparing. This is why I am going to Martini Klinik. They discussed with me the options for nerve-sparing and explained to me their "in-situ" biopsy option which allows to section the removed prostate during the surgery and decide live if they need to remove additional tissue/nerves.
I think the tram at Heidelberg UniKlink is also really good.

REPLY
Please sign in or register to post a reply.