Is there anything to help stop or slow progression of MGUS?

Posted by amyboylan1 @amyboylan1, Oct 12, 2024

I am wondering if there is anything anyone is doing to stop or slow the progression of MGUS. I m recently diagnosed and have a lot to learn. My oncologist said there is nothing that can be done. Also could some of you share how long you have had MGUS. I am like I’m sure like all of you very concerned about my MGUS processing. Thank you.

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1oldsoul | @1oldsoul | Feb 5 8:20am

In reply to @paula0 "@hsminc Website describing the Sloan study: https://www.mskcc.org/news/diets-for-mgus-smoldering-myeloma-and-multiple-myeloma-q-with-msk-cancer-and-nutrition-experts" + (show)

@paula0
Has anyone been able to see the results of the study without paying $50? The link takes you to register, which I did but then states you must pay $50 for a 24 hour access to the article!

jellyboo | @jellyboo | Feb 6 12:01pm

In reply to @1oldsoul "@paula0 Has anyone been able to see the results of the study without paying $50? The..." + (show)

@1oldsoul try this (get rid of the words 'dot' ) ashpublications dot org/blood/article/144/Supplement%201/671/530290/A-High-Fiber-Dietary-Intervention-NUTRIVENTION-in

Colleen Young, Connect Director | @colleenyoung | Feb 6 1:41pm

In reply to @jellyboo "@1oldsoul try this (get rid of the words 'dot' ) ashpublications dot org/blood/article/144/Supplement%201/671/530290/A-High-Fiber-Dietary-Intervention-NUTRIVENTION-in" + (show)

@jellyboo, I see you wanted to post a link for @1oldsoul to the research. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe.

Allow me to post it for you:
- A High-Fiber Dietary Intervention (NUTRIVENTION) in Precursor Plasma Cell Disorders Improves Biomarkers of Disease and May Delay Progression to Myeloma https://ashpublications.org/blood/article/144/Supplement%201/671/530290/A-High-Fiber-Dietary-Intervention-NUTRIVENTION-in

@1oldsoul, can you access the PDF?

Kali | @madkm | Feb 7 8:36am

In reply to @theadosi "@madkm hey there. Sorry, what did you mean almost the same? I’m in Canada and not..." + (show)

@theadosi
The length you had MGUS to the time you converted to SMM.

Sorry I wasn’t clear.

Thea | @theadosi | Feb 7 12:44pm

In reply to @jellyboo "@1oldsoul try this (get rid of the words 'dot' ) ashpublications dot org/blood/article/144/Supplement%201/671/530290/A-High-Fiber-Dietary-Intervention-NUTRIVENTION-in" + (show)

@jellyboo hey there! Thanks for providing the link to the study. I don’t know if I’m reading incorrectly but looks like the diet only helped 10% slow progression. I wonder if it has more to do with lower BMI that resulted from the diet. Wish there were more studies.

1oldsoul | @1oldsoul | Feb 8 7:33am

In reply to @colleenyoung "@jellyboo, I see you wanted to post a link for @1oldsoul to the research. You will..." + (show)

@colleenyoung
Yes,thank you !

1oldsoul | @1oldsoul | Feb 9 6:04am

In reply to @colleenyoung "@jellyboo, I see you wanted to post a link for @1oldsoul to the research. You will..." + (show)

@colleenyoung
It was my understanding when I first read about this clinical trial a couple of years ago it stated the participants were also provided curcumin and omega 3 supplements with the diet, yet there was no mention of the supplements in the results. Just pondering how the researchers were able to determine where to attribute the benefit? Perhaps others are asking this same question or did I miss something?

ajbonett | @ajbonett | Feb 10 4:38am

In reply to @1oldsoul "@colleenyoung It was my understanding when I first read about this clinical trial a couple of..." + (show)

@1oldsoul I was in one of the Nutrivention studies. We were given the supplements for several months at the beginning of the study but did not change our diet at that time. The diet came AFTER we stopped taking the supplements. I saw improvement in my numbers with the diet. I also felt better and had more energy. I had the placebo for the supplements and saw no change at that phase. Currently, I am in the SMM stage and am considered stable. I've gotten away from the diet a bit from the holidays, but am going back hardcore this week because I feel so much better when I am on it. Feel free to reach out if you have more questions.

1oldsoul | @1oldsoul | Feb 10 6:55am

In reply to @ajbonett "@1oldsoul I was in one of the Nutrivention studies. We were given the supplements for several..." + (show)

@ajbonett
Thank you for sharing that information. Can you give us an idea what your diet looks like in the form of proteins?

ajbonett | @ajbonett | Feb 10 7:50am

In reply to @1oldsoul "@ajbonett Thank you for sharing that information. Can you give us an idea what your diet..." + (show)

@1oldsoul I'm not a fan of tofu, so we use lots of beans, mushrooms, and nuts. We have learned to use lion's mane mushrooms as a meat substitute in teriyaki dishes, shaved "steak" sandwiches, etc. We use Forks Over Knives for lots of recipes and information.

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