Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Profile picture for jackie2k @jackie2k

@randallshields56 I’m not sure but I have to get 5 sessions ugh!

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Wishing you strength for all of them. Have a blessed day 🙏

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Profile picture for canewalker2024 @canewalker2024

I had meningioma surgery in May of 2024. It was located next to my brain stem and inter ear. I saw both before and after mri’s.
I was in ICU for 3 days then a room for 2 days. I could not go home until I had a MRI. They shaved my hair but it was the under hair. You never could tell I had surgery. I was placed on my right side because my tumor was on the left. My head was placed in a vise and a tube inserted down throat. They did a vertical incision to remove the tumor. It was the size of my thumb from my nail to first knuckle. My neurosurgeon said he removed a piece of skull. I had asked him not to loose it. He put 4 tiny screws and lots of glue when he was finished. He stopped in to see me everyday. Food was very bland in hospital that was ok because I really was not hungry. Before surgery I had to walk with a cane because I felt off balance. Not dizzy. The cane helped me walk in a straight line. That was why they requested a MRI and discovered the tumor. I still walk with a cane if I walk for any distance. Around home I do not need it. I coughed a lot after surgery especially when trying to eat. But that could have been just me and not a complication from the surgery. I go tomorrow for a MRI. I wish you well for your upcoming surgery.

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@canewalker2024 hope you are recovering nicely and thank you for the posting. your descriptions were nice and clear. have a blessed evening.

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Thank you for taking the time to post about your surgery. I'm sure many will be assisted by hearing what you experienced. Wishing you a full recovery and bright future.

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Profile picture for Randy Shields @randallshields56

Wishing you strength for all of them. Have a blessed day 🙏

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@randallshields56 hi! I’m going to start radiation here soon next week for my meningoma I have to have five sessions also. How are you doing ?
Jackie

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Profile picture for jackie2k @jackie2k

@randallshields56 hi! I’m going to start radiation here soon next week for my meningoma I have to have five sessions also. How are you doing ?
Jackie

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@jackie2k sorry for being away so long and not answering. had a nephew that passed away yesterday and been dealing with that mess, he had a stroke at 49, my brothers son. also dealing with doctors on my end postponing things for a 8 week wait and see where we are at. guess that's good news and i will treat it as such for now and carry on. things have been quite a jumble and will reply as soon as this sequence of events pass by. health wise i am doing ok for now and will answer more this evening. Have a blessed day and thank you for being patient. giving a shout out to all the mediators, volunteers, mentors and moderators . have a awesome day today everyone.

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Profile picture for Randy Shields @randallshields56

@jackie2k sorry for being away so long and not answering. had a nephew that passed away yesterday and been dealing with that mess, he had a stroke at 49, my brothers son. also dealing with doctors on my end postponing things for a 8 week wait and see where we are at. guess that's good news and i will treat it as such for now and carry on. things have been quite a jumble and will reply as soon as this sequence of events pass by. health wise i am doing ok for now and will answer more this evening. Have a blessed day and thank you for being patient. giving a shout out to all the mediators, volunteers, mentors and moderators . have a awesome day today everyone.

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@randallshields56 hi Randy, thanks so much for being there for me I feel so alone in this I finished me five treatments and the last day I rang the bell . It do more than I thought I cried all the way home I think it was from a feeling I had done it snd also no one to share it with. Stay in touch and let me know how you do also.

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Profile picture for jackie2k @jackie2k

@randallshields56 hi Randy, thanks so much for being there for me I feel so alone in this I finished me five treatments and the last day I rang the bell . It do more than I thought I cried all the way home I think it was from a feeling I had done it snd also no one to share it with. Stay in touch and let me know how you do also.

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@jackie2k I will definitely do that. It's nice to see you got through it, sorry it kicked you pretty hard, my fst go around cleaned my clock. Almost too much but still kicking. Have a great rest of the weekend

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Profile picture for Randy Shields @randallshields56

@jackie2k I will definitely do that. It's nice to see you got through it, sorry it kicked you pretty hard, my fst go around cleaned my clock. Almost too much but still kicking. Have a great rest of the weekend

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I’m thanks Randy I felt a little burning inside my head today that’s about it

Sent from Yahoo Mail for iPhone

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Profile picture for jackie2k @jackie2k

I’m thanks Randy I felt a little burning inside my head today that’s about it

Sent from Yahoo Mail for iPhone

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@jackie2k its crazy how the body can heal itself. Which Mayo Clinic Connect are you in.i just found out a close friend of mine just got operated on in Seattle, not sure what kind of tumor. I'm in Virginia

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