Cerebellar Stroke - experience/treatment/recovery

@rldawg, welcome to the group. I wish that I could take away your feeling of guilt. But it's not that simple is it? You know that you did what you needed to do with the information you had. Luckily your husband was in good health before the stroke. This will serve him well. And thank goodness he is in medical care now and is slowly doing better. Did the occupational therapist return today. How was his progress today?

@colleenyoung So this is now day 3. We saw remarkable progress yesterday (day 2)- he was walking a little on his own, to the bathroom and back; he could sit up without feeling nauseous; he had regained some appetite and kept his food down.
A Transesophageal Echocardiogram was done but they didn't find anything. Another MRI: a nurse told my husband that his clot was gone but we'll have to confirm that with his doctor. I'm not sure if the ergotherapist visited him again, I'll have to check later.
We had hopes he could leave the hospital tomorrow but he was told he would have to stay for another 3 days.
Yesterday he was also told by his father that the exact symptoms had presented themselves when his dad was 55. Then, he went only to the physician and was diagnosed with a balance disorder. He was given some medicine for the condition (I'm not sure exactly what) and recovered quickly after. Now it looks like it could have been an undiagnosed stroke. It has not since reoccured and he is now 75.

Day 4: Husband is recovering very quickly. The clot is indeed gone, on its own. All he has taken so far are aspirin, something for nausea and another tablet for high cholesterol. His cholesterol was in the high end of the normal range.
During one of the occupational therapists visits, he was asked to close his eyes and walk straight, on the spot. When finished he saw that he had veered 45 degrees to the right, without realising it at all.
He is now walking on his own without any difficulty. Gait and speed are back to normal. He says he does feel some shakiness while moving, but actively compensates for it.
He is thinking positively and wants to go back to work already.
We were informed he would be able to leave the hospital in another couple of days. We are also waiting to see what his rehab will entail.

Such great news, @rldawg. Quite incredible to think where you were only 4 days ago.

I recently join the group

So right, @colleenyoung . I am grateful that he's making such a quick recovery. One big side effect of the stroke is that he's been having insomnia for the last 3 nights. For someone who depends heavily on a good night's rest to function well the day after, it's been devastating for him. After 2 nights of not being able to sleep, he asked for some sleep aids. After a Valerian tablet, which didn't work, he took a proper sleeping pill, which didn't help either. Not quite sure what to do about this.

Hello @bigpaper1,

Welcome to Connect. I saw that you had asked about stem cell therapy in a previous post, and want to offer this information:

Neuroregeneration (stem cell therapy) is a focus area of study at Mayo Clinic. You can read more about it here: https://www.mayo.edu/research/centers-programs/center-regenerative-medicine/focus-areas/neuroregeneration

To help people learn more about the proven therapies and the promise of developing therapies, Mayo Clinic offers a free telephone consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

@bigpaper1, I also encourage you to go through these discussions on Connect where members have shared some great information about this kind of therapy:
– https://connect.mayoclinic.org/discussion/cost-of-stem-cell-therapy-at-mayo/
– https://connect.mayoclinic.org/discussion/stem-cell-therapy-1/

I wouldn't mind some insight. My spouse age 42 suffered a stroke I was told Left Inferior cerebellum and middle cerebral. We have been separated so I have no details on the events leading up to it. He is currently paralyzed on the right side, can only say no, yeah and uh. Responds to questions with headshakes which lead me to believe he understands. Has shown emotion (sadness, I mentioned our dog died). His health wasn't the best leading up to this, he is not overweight just didn't eat well and take care of himself. Its been 13 days, I wouldn't mind some information on where you began and how you progressed. I don't know what to think, although he does have an infection in the heart which he is received 6 weeks antibiotics for and may need a heart valve replacement in the future.

I experienced a Hemorrhagic Stroke in 2001! I also experience times when I become confused, even though I have been to the same exact store or aisle so many times! I also become frustrated with myself when there is too much noise and I feel out of control over the situation! I'm glad to be able to share and receive feedback from those who understand my Stroke situation! My family doesn't understand my Disability or what happened to me after the Stroke! They don't get that I have changed in my ability to perform many things which were so easy prior to my Stroke! My book is important because I explain exactly what it was like for me to awaken in my hospital bed, begin to speak and have my Father explain that he could not understand what I was saying! I remember crying with tears streaming down my face and thinking about my Mother whom had passed away from a Heart Attack 6 and 1/2 months prior to my Stroke!! I'm alive because my then roommate found me on the floor in a pool of blood and instantly called 911! I know and feel that I would never have survived if it weren't for my Mom somehow telling me I had the rest of my life to live and make a difference in others lives! I decided to write my book entitled Misunderstood and Resilient, because I believe people don't understand those with hidden Disabilities! I have a serious undiagnosed Non-Verbal Learning Disability; for which no-one else in the Medical Profession ever understood or paid attention! Everything was constantly Psychologically based, despite my cries for help! I'm finally receiving the appropriate Neurological care, which makes a huge difference! I don't have to feel guilty for asking for things which are Medically Necessary! I'm beginning to change my attitude and life because I have more confidence and the ability to hopefully begin the process of going back to part-time work! I promised myself that I would devote most of my time to finishing and publishing my book; as I never want anyone to experience such a horrible event of losing an entire team of Providers with whom I put my trust! I will never forget the words my former Neurologist told me after I experienced a Tonic-clonic Seizure after my Surgery! She said and I quote from 08/30/14 at 11:15 a.m.! " Shelley, you are alright. You do not need to be admitted to the hospital and you do not need to be here in the Emergency Room!! You have two choices and I hope you choose the right one! The first choice is to go home and I hope that you do, because the next choice is a PSYCHIATRIC HOSPITALIZATION!" I was dumbfounded and afraid! She didn't even attend the appointment prior to my procedure; as she didn't care period! I was NOTHING to her but another patient with a Non-Verbal Learning Disability; for which she didn't understand or care! The lesson I learned that day was not to ever TRUST Physicians; however I have a Team of Providers whom not only understand my Disability; but I am RESPECTED for who I am NOW! My past medical history doesn't matter anymore; but it is in my BOOK!

That’s me, but I was in my early 50’s . Sudden aneurysm ruptured in my head. 2 brain surgeries . I’m a survivor I know I am blessed but I’m really angry about how I the deficits I have been left with . Looking for someone who gets it!