Positive vibes ONLY thread

Posted by nannygoat5 @nannygoat5, Apr 27, 2025

POV: I’m often left stressed and scared after reading this forum. It occurred to me that most of the people posting here have had bad experiences and wonder if people who have good experiences aren’t on a forum? I was listening to a podcast and the person casually threw out that she had OP and had a year of a certain medication NBD all good. She’s not a spokesperson for drugs and it was good to hear. If 75% of women have osteoporosis/penia surely there are good results out there? My PT, Dr and my endo were all like why are you so upset? You’ll be fine! But after I spend time here I’m faced with gloom and doom and feel awful. Hit me with your good stuff!

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for rjd @rjd

@beccac
I found that Great Bones by Keith McCOrmick is the reference book for bone health. It is thorough and well documented and puts the entire picture together for you that would take forever on your own. Get the book or ask your library to get the book.

Like Gravity3, I have had no side effects from either Fosomax or Prolia. The problem has been that either the drug did not increase density (although it might have prevented further loss) or the gains were lost soon after discontinuing the med.

If I could take BHRT, it is this option I would want to explore more thoroughly for bone health. Some of us cancer survivors cannot take hormone therapy and many of those who advocate BHRT need to include this important restriction on its use. But it does seem more promising than most of the osteo meds.

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@rjd What about Evista (Raloxifene )? I used this after Forteo for 6 yrs. With insignificant loss shown on bone scans taken every year in follow up.

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Profile picture for rjd @rjd

@beccac
I found that Great Bones by Keith McCOrmick is the reference book for bone health. It is thorough and well documented and puts the entire picture together for you that would take forever on your own. Get the book or ask your library to get the book.

Like Gravity3, I have had no side effects from either Fosomax or Prolia. The problem has been that either the drug did not increase density (although it might have prevented further loss) or the gains were lost soon after discontinuing the med.

If I could take BHRT, it is this option I would want to explore more thoroughly for bone health. Some of us cancer survivors cannot take hormone therapy and many of those who advocate BHRT need to include this important restriction on its use. But it does seem more promising than most of the osteo meds.

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@rjd
Yes! The book is so helpful. I wanted to add that watching the author of the Great Bones book, Keith McCormick on YouTube interviews is also very informative and worth every second of your time. All you need to do is put his name into the search.

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Profile picture for nycmusic @nycmusic

There have to be better meds, that don’t scare people away or require a person to be on the meds forever without risking serious relapse….anyone know of recent developments in OP treatment ?

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@nycmusic a friend of mine that worked for major pharmaceutical company told me that drugs for conditions that primarily afflict women are difficult to get in the pipeline because there are so very few studies of all drugs and how they affect only women. It’s almost like drug companies have to start from scratch.

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Profile picture for kplex @kplex

@nycmusic a friend of mine that worked for major pharmaceutical company told me that drugs for conditions that primarily afflict women are difficult to get in the pipeline because there are so very few studies of all drugs and how they affect only women. It’s almost like drug companies have to start from scratch.

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@kplex

Completely understandable since there is a pittance provided for research on women's health.

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Profile picture for izziesue @izziesue

@rjd
Yes! The book is so helpful. I wanted to add that watching the author of the Great Bones book, Keith McCormick on YouTube interviews is also very informative and worth every second of your time. All you need to do is put his name into the search.

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@izziesue I would just say he’s not a Doctor. Just an fyi

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Profile picture for nannygoat5 @nannygoat5

@izziesue I would just say he’s not a Doctor. Just an fyi

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@nannygoat5
He is not a medical doctor but is a doctor of chiropracty.

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Profile picture for nannygoat5 @nannygoat5

@izziesue I would just say he’s not a Doctor. Just an fyi

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@nannygoat5
Yes, I know, he totally acknowledges that he is not a medical doctor On his YouTube interviews as well as in his book. He does, however, have a doctorate degree and is a chiropractor. In my opinion because he Was diagnosed with OP at age 45 and also has had 12 fractures and written two books that he knows as much or more than a lot of doctors we are referred to for OP. And he knows a lot more than the endocrinologist that I was referred that couldn’t answer most of of questions about OP that I asked her about OP and therefore didn’t want to discuss at all just put me on medicine. He comes across as very humble and extremely caring and knowledgeable, and always very upfront about not being a MD.

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Profile picture for njhornung @normahorn

@nannygoat5
He is not a medical doctor but is a doctor of chiropracty.

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@normahorn right. Not a medical doctor

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Profile picture for kplex @kplex

@nycmusic a friend of mine that worked for major pharmaceutical company told me that drugs for conditions that primarily afflict women are difficult to get in the pipeline because there are so very few studies of all drugs and how they affect only women. It’s almost like drug companies have to start from scratch.

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@kplex time for the pharma people to do better for women ! We are over half the population ! This explains why dosages are often too high, especially for petite women ! Almost all the algorithms are based on large men.

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Profile picture for broken13 @broken13

@rjd What about Evista (Raloxifene )? I used this after Forteo for 6 yrs. With insignificant loss shown on bone scans taken every year in follow up.

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@broken13 thanx for the suggestion. This med has not been brought up by my PCP. I will need to look into this option but a preliminary review suggests a further focused search is needed as it apparently mimics estrogen and estrogen is, unfortunately, my enemy. I am a rare, yet fortunate bird...an ovarian cancer survivor.

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