Positive vibes ONLY thread

Posted by nannygoat5 @nannygoat5, Apr 27, 2025

POV: I’m often left stressed and scared after reading this forum. It occurred to me that most of the people posting here have had bad experiences and wonder if people who have good experiences aren’t on a forum? I was listening to a podcast and the person casually threw out that she had OP and had a year of a certain medication NBD all good. She’s not a spokesperson for drugs and it was good to hear. If 75% of women have osteoporosis/penia surely there are good results out there? My PT, Dr and my endo were all like why are you so upset? You’ll be fine! But after I spend time here I’m faced with gloom and doom and feel awful. Hit me with your good stuff!

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for kristie2 @kristie2

@dvargo I also started BHRT 15 years after menopause.

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@kristie2

Started bhrt at 76. Early onset menopause at 38.
Feel great.

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Profile picture for llapinski @llapinski

I am a Board-Certified Healthcare Professional. I started BHRT recently, 17 years Post-Menopause. My medical history shows no Cardiovascular or Stroke occurrence. My Ob-Gyn cautioned against starting hormone therapy stating it would not help my Osteoporosis condition. Since there has been a black box removal of using BHRT , many healthcare professionals discuss the benefits to the brain, heart, mood, bone, etc. I am on a low dose of Estradiol, Micronized Progesterone, Testosterone. At this time it has benefited me.

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I wondered the same thing!! Tymlos has woken up my body!! The energy, pain relief, and help in walking has been amazing for me!!! I truly pray that mire people get to experience the miracle I am experiencing!🙏💜🙏

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Profile picture for marghud58 @marghud58

I wondered the same thing!! Tymlos has woken up my body!! The energy, pain relief, and help in walking has been amazing for me!!! I truly pray that mire people get to experience the miracle I am experiencing!🙏💜🙏

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@marghud58 makes me happy!

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Profile picture for gently @gently

@gently Me too. I'm 58 and have a catastrophic spinal injury going on year 10, and the change in 4 days is INCREDIBLE!!! Have you heard this from others?

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marghud58, the great part of getting relief from Tymlos is that it really is repairing not just bones but cartilage.
The medication also activates anti inflammatory pathways ( Gq and β-arrestin-1).
Tymlos is a synthetic part of a parathyroid hormone protein. As just that, it could give you energy.
Some commenters express missing the injection. It can become a celebration of yourself.
For some Tymlos is not so much fun.
We're lucky.

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Profile picture for gently @gently

marghud58, the great part of getting relief from Tymlos is that it really is repairing not just bones but cartilage.
The medication also activates anti inflammatory pathways ( Gq and β-arrestin-1).
Tymlos is a synthetic part of a parathyroid hormone protein. As just that, it could give you energy.
Some commenters express missing the injection. It can become a celebration of yourself.
For some Tymlos is not so much fun.
We're lucky.

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@gently thanks- i didn’t know this could happen with an OP med.

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Profile picture for monkhhi @monkhhi

I was just like you! Read my long post about my experience, lol. I had great success with Evenity. My osteo doc couldn’t believe my improvement. I’m now on Prolia and doing fine.

I spent a lot of time researching and reading before I started medication. In the beginning I thought I could fix it myself. It took a while before it sank in that I was already doing heavy exercise, running, lifting, walking, taking supplements, and following a very healthy diet. I still ended up with severe (-3.5 or so) osteoporosis in my lumbar spine. What I can’t change is my genetics and my aging.

The NPs were a great source at my infusion center. They see a lot of patients on these meds and rarely see patients that have issues. I also would talk to other patients while I was there about their experiences.

I think I said before, I’m a risk vs benefit type of thinker. According to my provider, I was at a very low risk of a side effect. However, I was at a very high risk of a compression fracture and anyone on this site that has had one can tell you how painful that can be. My provider said that a fracture would be life changing for me. I wouldn’t be able to do any of the things that I like to do.

So at the end of the day, I decided to follow the recommendations of my provider that has medical education, training and has experience managing a large caseload of patients. Take a deep breath and good luck with your decision!

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@monkhhi

I'm with you. At 77 though, what drives me is quality of life vs quantity of years left.

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Profile picture for nycmusic @nycmusic

@gently thanks- i didn’t know this could happen with an OP med.

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@nycmusic clarify— while I’ve heard that the meds really can/do help people strengthen bones, i also hear about troubling side effects, some of which stick around too long…so when someone says they get good results with little or no side effects—that’s good news i rarely hear.

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