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Glioblastoma with gross total resection.
My husband, 54 years old. He had approx. 12 minute seizure on Sept. 10. They did a CT scan and said that they felt he had a meningioma and it was 100% treatable. He should see his doctor the next day and they should do an MRI just to be sure. The MRI was completed and they told us that they felt he had a high grade glioma. Before that day, there was no indication of anything wrong with him. He had a 2 x 2 x 2 gross total resection on Oct. 3 to his right temporal lobe and they were able to take 1 inch margins around that as well. His tumor had grown 30% in three weeks. It was confirmed that he has glioblastoma. They were able to take 1 inch margins around it. To look at him, you would never know he had surgery. Physically, he is fine. Emotionally though, I notice he is having trouble regulating his emotions with me, especially when he is nervous or anxious about something. Any suggestions or help would be great. Also, any in general things that have helped you as the care provider deal with this emotionally. It’s a lot to be this young and think about all the possibilities. Plus my husband owns his own business and I have that all on my mind as well.
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as we see in our son who also has giioblastoma there are changes in the personality and the fact they have a death sentence since this cancer is not curable.
glad you found something helpful or even useful, so i am headed to bed
shortly , cant drink or eat after midnight. testing tomorrow.
brain scan- lung and abdomen and pelvis
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1 Reactionthank you for the helpful and have a blessed evening and god bless
Emotional support is the best advice I can give! Try to help with any physical limitations, but, importantly, positive emotional support, and tender care is what is needed, when one is diagnosed with such a dreaded brain disorder! Patience is a virtue, and a helpful, steady nature, is needed for the caregivers, of a person who has gotten such a tough diagnosis! Wishing you both the best! ( I’ve been a caregiver for 30 years, and am just sharing what has helped me and my wife the most! )
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1 ReactionI’m 59 years old, and I have glioblastoma. It was very hard to learn that I might die . I had the tumor taken out. ( it was over 6cm) I’m taking oral chemo drug and I have 4 radiation left. (Total 30 radiation. Almost done. ) next MRI in a month and a half, to see if the tumor is gone, or back. The hard thing is that we take anti seizure medicine, and it has side effects, like depression and anxiety and all kinds of negative thoughts, at the time, when positive thinking and happiness would help with recovery.
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2 Reactions@tarheelchuck keep up the good fight and saying a prayer for you. have a blessed day too=================================prayer sent.
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1 Reactionthank you 72. helps. they always do. hVE great weekend.
thankyou 72 and i will keep fighting. even with the bad news on tests, just
going to make me work a little bit harder. have a blessed day and weekend.
@borbala. My husband passed away in 2022 from GBM. He was 76. I have always thought GBM was a death sentence and to most it is. But last year I met someone who was 61 and got GBM at age 45. It was amazing. He was perfectly normal. He had never missed a day of work and had the tumor removed very early and did the treatments and is still working to this day. So there is hope. I wish you the best.
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3 Reactions@kylebar thank you so much for giving me hope.
God bless you.
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