Glioblastoma with gross total resection.

Posted by courageandgrace @courageandgrace, Nov 13, 2025

My husband, 54 years old. He had approx. 12 minute seizure on Sept. 10. They did a CT scan and said that they felt he had a meningioma and it was 100% treatable. He should see his doctor the next day and they should do an MRI just to be sure. The MRI was completed and they told us that they felt he had a high grade glioma. Before that day, there was no indication of anything wrong with him. He had a 2 x 2 x 2 gross total resection on Oct. 3 to his right temporal lobe and they were able to take 1 inch margins around that as well. His tumor had grown 30% in three weeks. It was confirmed that he has glioblastoma. They were able to take 1 inch margins around it. To look at him, you would never know he had surgery. Physically, he is fine. Emotionally though, I notice he is having trouble regulating his emotions with me, especially when he is nervous or anxious about something. Any suggestions or help would be great. Also, any in general things that have helped you as the care provider deal with this emotionally. It’s a lot to be this young and think about all the possibilities. Plus my husband owns his own business and I have that all on my mind as well.

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raphaela2025 | @raphaela2025 | Jan 18 1:55pm

In reply to @borbala "I’m 59 years old, and I have glioblastoma. It was very hard to learn that I..." + (show)

@borbala Hi, I have glio 4, have already finished over two months of radiation and am now on only Temodar. I've been very busy figuring out what hospice would look like.

I've had different experiences with different anti-convulsive meds. I'm taking Lamictal. My nephew was on Keppra. He was very angry all the time.

Randy Shields | @randallshields56 | Jan 19 11:57am

not sure as to what kinds of help i can offer but with my TMI and just one step down from a glioblastoma i had a strong case of anxiety i didn't know i had. way to long to describe some details. my caregiver and family taught he me to do breathing exercises to calm myself. it was there in my subconscious and i could mot see it . many things to deal with and there are groups here to help you along so when you have a question put it out to the teams or a group . there's a daily digest you can click on and see all the groups and sites . i will send a prayer your way and ============its sent, have a blessed day and if you have a question you both can send me a message.

doverspike | @doverspike | Feb 28 8:37pm

Wow I am so sorry you are going through this. My husband had his GBM tumor removed on Nov 7, 2025 and has completed the radiation/chemo for a month and is now on a 5 day chemo pill a month regimen. Emotionally and physically he’s been doing great until he got the Optune device this week. It has taken all of the air out of our sails to say the least. We are older than you guys but he has always been a gym rat and fit. Due to this device he hasn't been to the gym. One day at a time is all I can say. The best advice I received was to not look into the future but live in the moment of each day. Also don’t pay attention to the stats either because everyone is different. Some live a few months and others 20+ years! As our oncologist says THERE’S ALWAYS HOPE! Please know you are not alone my friend.