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Glioblastoma with gross total resection.

Brain Tumor | Last Active: Feb 28 8:37pm | Replies (23)

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Profile picture for borbala @borbala

I’m 59 years old, and I have glioblastoma. It was very hard to learn that I might die . I had the tumor taken out. ( it was over 6cm) I’m taking oral chemo drug and I have 4 radiation left. (Total 30 radiation. Almost done. ) next MRI in a month and a half, to see if the tumor is gone, or back. The hard thing is that we take anti seizure medicine, and it has side effects, like depression and anxiety and all kinds of negative thoughts, at the time, when positive thinking and happiness would help with recovery.

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Replies to "I’m 59 years old, and I have glioblastoma. It was very hard to learn that I..."

@borbala. My husband passed away in 2022 from GBM. He was 76. I have always thought GBM was a death sentence and to most it is. But last year I met someone who was 61 and got GBM at age 45. It was amazing. He was perfectly normal. He had never missed a day of work and had the tumor removed very early and did the treatments and is still working to this day. So there is hope. I wish you the best.

@borbala Hi, I have glio 4, have already finished over two months of radiation and am now on only Temodar. I've been very busy figuring out what hospice would look like.

I've had different experiences with different anti-convulsive meds. I'm taking Lamictal. My nephew was on Keppra. He was very angry all the time.