What helps with dry mouth with Sjogren's?

I'm only on IvIg with retuximab twice ayear. Medicare pays for most of it (it is expensive) and improvements are slow but they do come.

I have tried pilocarpine on two occasions. The side effects were unbearable, cold sweats to the point of shivering, then hot sweats that left me feeling clammy
Just to get saliva I use x-pur gums, x-pur pastilles, Thera breath dry mouth lozenges. Also pur mints. I use biotene dry mouth spray and biotene mouth gel. I chew sugarless gum and lifesavers.
Now I am starting to feel nauseous, not sure if it’s because of all the above.
Life is not as much fun, when you have loss of taste, so this has effected my mental status.
Can anyone relate or have and more helpful suggestions?

@suetex if you don't mind me asking are you on IvIg for sjogren's only or do you have another autoimmune disorder as well?

I was diagnosed with sjogren's and fibromyalgia about 3 years ago but experienced symptoms much longer before receiving my diagnosis. I lost taste/smell about 6 months ago. It is very depressing and I have lost about 20 pounds. I was on hydroxychloroquine but experienced immunodeficiency and became very ill so I have discontinued it. I'm currently searching for a new rheumatologist as I did not like my previous one. He had no bedside manner and I don't believe he listened to all of my symptoms. I'm 36 years old and it's extremely difficult for me to get out of bed and function through the day. Im extremely fatigued. I experience night sweats to the point where you would think I just jumped into the pool. I have severe joint pain. I also experience symptoms of dysautonomia. I am becoming increasingly depressed and just feel defeated.

I have tried pilocarpine on two occasions. The side effects were unbearable, cold sweats to the point of shivering, then hot sweats that left me feeling clammy
Just to get saliva I use x-pur gums, x-pur pastilles, Thera breath dry mouth lozenges. Also pur mints. I use biotene dry mouth spray and biotene mouth gel. I chew sugarless gum and lifesavers.
Now I am starting to feel nauseous, not sure if it’s because of all the above.
Life is not as much fun, when you have loss of taste, so this has effected my mental status.
Can anyone relate or have and more helpful suggestions?

Hello @lorrielynn, Welcome to Connect. I'm sure there are other members that can relate to your symptoms. You might want to scan through the following discussion started by @eileenb1022, while you wait for members with experience to respond.
-- Sjögren’s Syndrome: how do you manage the symptoms?
https://connect.mayoclinic.org/discussion/sjorgens-syndrome/
Has your doctor or care team offered any suggestions?

I was diagnosed with sjogren's and fibromyalgia about 3 years ago but experienced symptoms much longer before receiving my diagnosis. I lost taste/smell about 6 months ago. It is very depressing and I have lost about 20 pounds. I was on hydroxychloroquine but experienced immunodeficiency and became very ill so I have discontinued it. I'm currently searching for a new rheumatologist as I did not like my previous one. He had no bedside manner and I don't believe he listened to all of my symptoms. I'm 36 years old and it's extremely difficult for me to get out of bed and function through the day. Im extremely fatigued. I experience night sweats to the point where you would think I just jumped into the pool. I have severe joint pain. I also experience symptoms of dysautonomia. I am becoming increasingly depressed and just feel defeated.

I use Biotene toothpaste and mouthwash. It helps. I also sometimes need a sugar free lozenge. Biotene has that too. I drink lots of water. Avoiding sugar helps as well. I hear some meds look promising for Sjogrens and they are close to approving them. Time will tell!

@bswpb thank you for this info. He has tried all of that and nothing has helped so far