1. < Epilepsy & Seizures
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What helped your seizures: Treatment Center? Neurologist? Home care?

Posted by 27angel @27angel, Dec 2, 2025

Has anyone improve there seizure symptoms via treatment center, neurologist, or home caregiver. Of the following which one was more effective.

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Profile picture for Randy Shields
Randy Shields | @randallshields56 | Jan 7 7:38pm
In reply to @jakedduck1 "@randallshields56 I'm curious what you mean by “I would make the call.” Are you saying call..." + (show)
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@randallshields56
I'm curious what you mean by “I would make the call.”
Are you saying call 911/ambulance?
Jake

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@jakedduck1
make the call , both girls know if i raise my hand up with one finger that i needed help basically that my mind was on overload and i was getting to close to having a seizure and they knew what actions to take to cool me down and back off a situation.

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2 replies
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Randy Shields | @randallshields56 | Jan 8 7:25pm
In reply to @randallshields56 "@jakedduck1 make the call , both girls know if i raise my hand up with one..." + (show)
Profile picture for Randy Shields @randallshields56

@jakedduck1
make the call , both girls know if i raise my hand up with one finger that i needed help basically that my mind was on overload and i was getting to close to having a seizure and they knew what actions to take to cool me down and back off a situation.

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thank you for the hug. have a blessed day.

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Randy Shields | @randallshields56 | Jan 8 7:31pm
In reply to @randallshields56 "@jakedduck1 make the call , both girls know if i raise my hand up with one..." + (show)
Profile picture for Randy Shields @randallshields56

@jakedduck1
make the call , both girls know if i raise my hand up with one finger that i needed help basically that my mind was on overload and i was getting to close to having a seizure and they knew what actions to take to cool me down and back off a situation.

Jump to this post

works really well as long as i get their attention with my eyes, i'm
not sure what my look is or maybe i change in the way i am acting out, but
they make eye contact and act almost immediately with not a moment
wasted. its pretty cool how they can just see it as it happens.

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2 replies
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Randy Shields | @randallshields56 | Jan 8 7:58pm
In reply to @randallshields56 "home care. with family members to assist. i would make the call when i knew i..." + (show)
Profile picture for Randy Shields @randallshields56

home care. with family members to assist. i would make the call when i knew i was in the lane to have a seizure or shut down. it is something to take the edge off you might say from to many things going on at the same time and overload. My head gets hot and mt tear ducts go bizzarro if you can call it that, my caregiver, along with be that my daughter or other daughter in law. they have me sit and do breathing exercises and if possible get a cold clothe for my head to cool me down. they talk to me making me concentrate on my breathing and if able elevate my feet some. so far the last two i couldn't elevate but cooled down enough to start focusing on my family and remember that i am scaring them so my mind will calm itself. so far its worked every time of late.

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TY

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Randy Shields | @randallshields56 | Jan 8 8:03pm
In reply to @jakedduck1 "@randallshields56 I'm curious what you mean by “I would make the call.” Are you saying call..." + (show)
Profile picture for Leonard @jakedduck1

@randallshields56
I'm curious what you mean by “I would make the call.”
Are you saying call 911/ambulance?
Jake

Jump to this post

Also apparently the girls have seen too often the look I have when I am
about to have an episode.

REPLY
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Randy Shields | @randallshields56 | Jan 8 8:05pm
In reply to @randallshields56 "home care. with family members to assist. i would make the call when i knew i..." + (show)
Profile picture for Randy Shields @randallshields56

home care. with family members to assist. i would make the call when i knew i was in the lane to have a seizure or shut down.

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thank you with the helpful.

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Randy Shields | @randallshields56 | Jan 8 8:07pm
In reply to @randallshields56 "@27angel hope you keep recovering and have an awesome new year." + (show)
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@27angel hope you keep recovering and have an awesome new year.

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thank you again, seems like we get some of every generation in here to get
to know each other better and help better.

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Mentor
Chris Gautier, Volunteer Mentor | @santosha | Jan 9 5:49am
In reply to @randallshields56 "works really well as long as i get their attention with my eyes, i'm not sure..." + (show)
Profile picture for Randy Shields @randallshields56

works really well as long as i get their attention with my eyes, i'm
not sure what my look is or maybe i change in the way i am acting out, but
they make eye contact and act almost immediately with not a moment
wasted. its pretty cool how they can just see it as it happens.

Jump to this post

@randallshields56
I do something similar, Randy. Since my seizures start with an aura, I have time to raise my hand and say "seizure." When my husband isn't next to me, I can usually walk to his home office and catch his eye. He's learned to recognize that look instantly – he knows what's coming. My seizures are mostly focal, starting with an aura and evolving to focal impaired awareness seizures (or complex partial seizures, as they were once called).
When that happens, my husband holds my hand and hugs me. He says I sometimes hug him back. Having that physical connection during a seizure really brings me comfort. Afterward, he takes me to bed and stays with me until I can speak again.
I'm curious – what do your family members do when a seizure is starting to help ease the experience for you?
Chris

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Randy Shields | @randallshields56 | Jan 10 12:42pm
In reply to @randallshields56 "works really well as long as i get their attention with my eyes, i'm not sure..." + (show)
Profile picture for Randy Shields @randallshields56

works really well as long as i get their attention with my eyes, i'm
not sure what my look is or maybe i change in the way i am acting out, but
they make eye contact and act almost immediately with not a moment
wasted. its pretty cool how they can just see it as it happens.

Jump to this post

thank you

REPLY
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27angel | @27angel | Jan 12 10:11am

Great new I have my insurance now I can get tested and diagnosis. I still waiting to see how bad it is before I ger the care I need to bring my memory back. I have been around a good support system I was working with the mental stress with attending meeting where people experience life outside of there understnding. Not having control over things in life can be irritating so I just working with the clinic and emergeny room for now as always I will leave the words uncorrected to see if my brain is returning so bare with me. Happy New Year working with health all 2026

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