5 yrs post covid. Is there any help out there

I have tried. I live in Fort Myers about 900,000 live here. But now for the next 3 months probably 1,200,000. Tourist. I called my local referral for Cardiologist and the woman said new patients starting in mid June. I have a call into 2 doctors family and Neurologist. Maybe they can get me in faster. My pulse right after and during 2020 was around 27 to 33 Now its always in low 40s. Thanks for your reply. Good luck to all of us.

@kevtan

I'd get back with my doctor and tell them that the cardiologist said they couldn't get you in until June. You need to be fast-tracked because "XYZ." You could also see if you were health system has a patient advocate to make this happen sooner.

You could also call the cardiologist's office back and tell them why you're being referred. If the person on the phone doesn't get it, ask for a supervisor.

It's like this everywhere. I have to advocate for myself like you would not believe. It's just ridiculous. And it's even harder when you feel terrible.

@h2998sc what supplements are you taking, I caught COVID Dec. 14, 2019 flying to Montana and am not getting better, I have 51 symptoms ..my doctor just put in a referral to Mayo Clinic in Mn ..talked to them a few days ago and now am waiting for the appointment schedule ..it is an 8 hr drive for me on clear dry roads, I took have tried about everything , I feel worse but not giving up...I thought i'd be over this a long time ago, this virus is evil.....

@beebee000

Hi
I have tried so many things even Nicotine. Many so many vitamins. What I really want is a doctor to listen and Try to help me. I want to get my pulse rate up to at least 60 plus resting. I would like to have more blood testing another 14 panel long covid test. Also get my vagus nerve checked. I know there is No cure with this evil virus but I need some relief. I have listened to so many people. So many new treatments. They actually have one now that takes tour blood out, filters it and runs oxygen into it and then back into you. So many new things out there. What is right? I have had to do all testing on my own. Out of my pocket since our government won't do anything about the Millions of us suffering. No insurance coverage. Hell if I had a drug or alcohol addiction that would be covered. Cancer covered, heart disease covered. Long covid. NOT COVERED. I will keep looking for help since doctors just don't care. Good luck to the milluons of us.

@kevtan

Are you on Medicare?

@h2998sc
Would you mind sharing what supplements you take and what they have helped?
I’ve been going g through this since I had COVID September 2021.
I honestly don’t think I’ll ever be better at this point but would really like to know if there are supplements that might help me.
Thank you.

@drbf
Yes finally. 65 on Dec 16th 2025

@kevtan

Oh, good.

@kevtan I live in Florida too, and you’re right about the wait to see specialists down here. It’s incredibly concerning.

I don’t know if Long Covid clinics exist here, but I hope you find one and that you get the help and relief you deserve.

@kevtan
Hi, It sounds like you have had it pretty rough
Why do you have to pay for your own tests? Do you have insurance? Where are you in the country? Most testing should be covered by most insurance plans if a doctor orders them.
I hear you that it is hard to find doctors to listen, you may have to go thru several, but don't stop trying. It is a bit of a living hell and draining in so many ways. I recently connected with a naturopathic doctor here in the northeast, he is very knowledgeable about LC and mast cell activation, histamine and food sensitivities and looks at all your labwork and medical records as well. Im encouraged but we’ll have to see if there’s any relief. It’s strange that in the beginning I thought I’d be over it like a flu and back to normal and now for me three years later, I’d be happy if could stave off any more damage. My immune system was heavily disrupted and diagnosed with Sjogren’s disease and likely another autoimmune disease not found yet, though many symptoms. I also have microvascular and endothelial dysfunction damaging the lining of blood vessels and causing edema to occur, there are virtually no doctors locally that treat it, and I ended up having to find a resource on my own
I just wish I had found other resources sooner as western medicine is really leaves you hanging. And you’re right in terms of governmental things, there is no support even with resources of who to reach out to never mind financial and it is quite a financial burden
It almost seems like you have to be so sick and in ICU on a ventilator as in the early pandemic to get care. It’s very sad to watch your own body being ravaged and not have consistent resources for care or anyone leading the way
After all the extreme things that we had to do during the pandemic and now can’t get anybody to budge to help now
Keep looking for answers and don’t stop
And rest when you can to help cellular healing