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Long term side effects of Aimovig?

Posted by shivaamedeo @shivaamedeo, Mar 10, 2025

Hi,
I have been on Aimovig shots for 2 years , it really helped my migraine. But 4 months ago I started having these episodes which last few days , with shortness of breath, tingling in my face , tension feelings in head , fatigue and they did all kind of tests and everything is normal. I was wondering if it could be side effects of Aimovig.

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Lisa Lucier, Moderator | @lisalucier | Jan 2 12:22pm
In reply to @ead63 "I have just come across these comments as I was searching for long term effects of..." + (show)
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I have just come across these comments as I was searching for long term effects of Aimovig.

I started Aimovig in September 2021. It was a game changer for me as I went from 9 days a month to zero most months.

I can’t answer about the tingling or numbness as I was diagnosed with Reynaud’s decades ago. It hasn’t worsened since taking the Aimovig.

The reason I was looking on the internet is that over the last month/6 weeks I have had several visual migraines - I am getting the aura and losing vision without any headaches. As the most recent was yesterday I was wondering whether I should make an appointment to see my neurologist. After reading these posts I feel I should pursue it so thank you for being there.
Regards
Liz

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@ead63 - welcome to Mayo Clinic Connect. Glad you came across these posts on Mayo Clinic Connect. Glad that you found the erenumab-aooe (Aimovig) to be a game changer for you.

Here is some Mayo Clinic information on that medication:

- Erenumab-aooe (subcutaneous route) https://www.mayoclinic.org/drugs-supplements/erenumab-aooe-subcutaneous-route/description/drg-20443746

You mentioned experiencing visual migraines in the last 4-6 weeks. What types of symptoms did you experience previously with your migraines?

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Lisë | @lisep | Jan 5 2:07pm

I had terrible experience with Aimovig, got every side effect listed at bottom of European clinical trials. Infections everywhere, so much fatigue, I didn’t realize it was Aimovig making me sicker until administrator of private Facebook group told me. I landed in Cedars ICU 5 weeks. Must have angels watching over me because 10 of Cedars finest said I was an hour from checking out.

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Lisa Lucier, Moderator | @lisalucier | Jan 6 10:51pm
In reply to @lisep "I had terrible experience with Aimovig, got every side effect listed at bottom of European clinical..." + (show)
Profile picture for Lisë @lisep

I had terrible experience with Aimovig, got every side effect listed at bottom of European clinical trials. Infections everywhere, so much fatigue, I didn’t realize it was Aimovig making me sicker until administrator of private Facebook group told me. I landed in Cedars ICU 5 weeks. Must have angels watching over me because 10 of Cedars finest said I was an hour from checking out.

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@lisep - wow, this is a harrowing story. Thankful you made it through.

Has another treatment worked better for you for migraine?

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