Long term side effects of Aimovig?

Posted by shivaamedeo @shivaamedeo, Mar 10, 2025

Hi,
I have been on Aimovig shots for 2 years , it really helped my migraine. But 4 months ago I started having these episodes which last few days , with shortness of breath, tingling in my face , tension feelings in head , fatigue and they did all kind of tests and everything is normal. I was wondering if it could be side effects of Aimovig.

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Lisa Lucier, Moderator | @lisalucier | Jan 2 12:22pm

In reply to @ead63 "I have just come across these comments as I was searching for long term effects of..." + (show)

@ead63 - welcome to Mayo Clinic Connect. Glad you came across these posts on Mayo Clinic Connect. Glad that you found the erenumab-aooe (Aimovig) to be a game changer for you.

Here is some Mayo Clinic information on that medication:

- Erenumab-aooe (subcutaneous route) https://www.mayoclinic.org/drugs-supplements/erenumab-aooe-subcutaneous-route/description/drg-20443746

You mentioned experiencing visual migraines in the last 4-6 weeks. What types of symptoms did you experience previously with your migraines?

Lisë | @lisep | Jan 5 2:07pm

I had terrible experience with Aimovig, got every side effect listed at bottom of European clinical trials. Infections everywhere, so much fatigue, I didn’t realize it was Aimovig making me sicker until administrator of private Facebook group told me. I landed in Cedars ICU 5 weeks. Must have angels watching over me because 10 of Cedars finest said I was an hour from checking out.

Lisa Lucier, Moderator | @lisalucier | Jan 6 10:51pm

In reply to @lisep "I had terrible experience with Aimovig, got every side effect listed at bottom of European clinical..." + (show)

@lisep - wow, this is a harrowing story. Thankful you made it through.

Has another treatment worked better for you for migraine?

syd70 | @syd70 | Feb 12 9:47am

In reply to @lisalucier "@erickthompson - Hi. I wanted to let you know I moved your post here so that..." + (show)

@lisalucier
Hello, I have been using Aimovig for @ 3-4 yrs. now and have not had any of the side effects that you are experiencing; mostly good results; less migraines, but I still get them even when I think I am following all my warning signs, no chocolate, red wine, etc.
Now researching B2 and migraines; some think this seems to help ?

ead63 | @ead63 | Feb 13 12:55pm

In reply to @lisalucier "@ead63 - welcome to Mayo Clinic Connect. Glad you came across these posts on Mayo Clinic..." + (show)

@lisalucier Apologies for the delay in replying but work has been full on recently.
Prior to the Aimovig I spent an average of 9 full days a month in bed with brain splitting headache, aura, light sensitivity and nausea and sickness. It was totally debilitating. Which is why the Aimovig was a game changer for me and worth every penny I spent on it

lookingforanswers3 | @lookingforanswers3 | May 5 10:46am

I was was finally diagnosed with Vestibular migraines after 4 months of hell...pain every day, dizziness, balance and depression... couldn't function and take care of
myself properly.
I was put on nortripyline and it really helped considerably but had brain fog and still light headache all the time.
My wonderful neurologist is putting me on Aimovig injections once a month starting this week.
This has been a nightmare because at 78 I am active and have a great mind but this is slowly wiping me out.
Any thoughts, anyone?

tbgreif625 | @tbgreif625 | May 6 10:22am

I have been taking Aimovig injections for the past year or so. They have been very helpful. I too had adverse reactions to Notripyline and had to stop taking it. I started on the lower dose injections of Aimovig: 70mg and went to the 140mg every 28 days. I have found Aimovig to be very helpful in helping to mitigate headaches. It does not take them away, it makes them more manageable.