Afib 10 weeks post PFA Ablation so lost!
I have paroxysmal Afib, EP thought the PFA (PVI) covered it all , have had recurrences all the way into week 11 post (now)- blanking for PFA is supposed to be 8 weeks, I know this does not bode well and feel I am worse off than before. Is there any hope?
Can a PFA ablation doom you?
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IF you are consuming anything containing caffeine, eliminate, and see if that takes away your heart issues. Also high sugar diet.
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1 ReactionYes, thank you for mentioning that. No drinks, no coffee, no tea... even no gluten for fun and giggles, for 8 years...
I HAVE AFIB AND SVT....RECENTLY I NOTICE A LITTLE SWELLING ON MY CALFS AND ANKLES....DOCTOR SAID ITS EDEMA.....ANY HELP TO GET RID OF IT ?
@remo Apart from prescriptions to help your kidneys to be more efficient (they are mildly inefficient due to the poorer blood supply that is typical with a heart in arrhythmia), or trying to be a bit more dehydrated than you really ought to be (meaning drinking less fluids), your best bet is to get your arrhythmia under control. That's with drugs, a pacemaker, or just a catheter ablation, depending on your local resources.
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1 Reaction@gloaming thank you for the info,,,,,
@gloaming
MAZE PROCEDURE
@remo ask your Dr what he suggest . It make be low Na diet, Lasix, TED socks , side effects from meds etc
@koleke hello I'm back after that comment..I went back into persistent AFib at the end of April, after the four years of freedom from it. An ablation/cardioversion at the beginning of June wasn't successful seemingly. But they wanted me to wait the 90 days of the blanking period..I had several side effects which were not present before so I asked them to put a plan in place. The plan was load amiodarone in my system and do another cardioversion. They did and it did nothing. Still on the high dose of amiodarone. However, yesterday I went into a normal sinus rhythm and am optimistically cautious that it will stay. Everyone is so different. Hopefully you get some positive answers.
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2 ReactionsBeen there, are you in flutter by chance? Flutter is common after PFA in something like 30% of cases. Some EP's say the PFA stuns the tissue but is not sufficient to ablate it fully. Depends on what PFA device was used. Aferaa is a newer ablating tool that does both PFA and RFA.
Ablating the Vein of Marshal also is beneficial providing it can be canulated.
Then mini-maze procedure is a procedure that attemps to scar the out side of the heart to ablate the roughe cells.
As far as triggers - I posted 2 videos on the this forum and they are inforamtive. Caffine does not cause Afib and is actually beneficial in preventing it. Alcohol on hte other hand is a potent trigger. It's worth your time to watch them.
I have been in your shoes and that is frustrating. I've had a total of 6 ablations. Now I'm doing great cycling and lifting and enjopying it all. I'm at 8 weeks and change. My last prodeure was doen at UCSF with Dr. Gerstenfel and I highly recommend him.
As far as mini maze Adventis hospital in Napa is the place to go.
I had a phone consultation with Dr. Natalie and although he was knowledgable his approach for me was to kill the appendage and do a watchman. At UCSF my appenda was fine no watchman needed.
My advice is to get as much info as possible and be willing to travel.
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1 Reaction@koleke Thanks for being conscientious about returning and updating your experience. It might help someone reading soon or in the distant future.