Connect
HCM and Dizziness
Just looking for others who have had similar experiences. I have HOCM, a peak gradient of 70 and have an appointment in Cleveland Clinic at the end of this month where I'll opt to have a septal myectomy I believe. Today I've had awful vertigo feeling, not so much dizziness just this vertigo everytime I move or bend over. No other cardiac symptoms though. Heart rate and BP are in normal range and have no other symptoms. I take 10mg of Propranolol 2x daily which has given me some side effects like this but nothing to this degree. Saw a walk in clinic for inner ear issue maybe and they said just some fluid behind the ears which could cause this but I'm not sure. Anyone been In similar situations?
Like
Helpful
HugInterested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
Connect
I had something similar in December. When I turned or moved a certain way, I got dizzy. Mine was related to crystals/fluid in inner ear. I went to a physical therapists and they turned my head certain ways, made me roll in different directions. It cured me. I have apical HCM. Was not related to the dizziness. Yours could be a different story, have it checked out. Good luck with your upcoming appointments.
-
Like -
Helpful -
Hug
1 ReactionHello, mss1779,
I am also a patient at Cleveland Clinic…be sure to bring up the new medications for this conditions…perhaps it will be right for you…All the best to you!
-
Like -
Helpful -
Hug
3 ReactionsThank you! I appreciate it
I had the same problem a few years ago. Vertigo was horrible. I had a terrible fall because I felt as though I was going to fall forward so I literally threw myself backwards. I was really fortunate that I didn’t break my right elbow. It was repaired in the same way yours was. Thanks for sharing.
I have terribly vertigo and I believe it is linked to my HCM. It is very unpleasant.
I have HOCM with SAM and I have been on Mavacamten for almost a month, my sever dizziness has not improved any. I really hoping for that to get better, it is such a horrible symptom of HOCM and also a top side effect for this medication. I am not sure I can, or want, to live the rest of my life with this. I can't wait to go to Cleveland clinic in March.
-
Like -
Helpful -
Hug
1 ReactionI was on Camzyos for 1yr & 8mths. I was on 10mg the last 4mths before getting a septal myectomy at Mayo last month. Camzyos helped with my HCM symptoms as my gradient was >70. While being on Camzyos I still had dizzy spells especially walking up inclines and stairs. Camzyos was great and really helped but I decided for long-term to go through surgery.
-
Like -
Helpful -
Hug
2 Reactions