What helped your seizures: Treatment Center? Neurologist? Home care?

Posted by 27angel @27angel, Dec 2, 2025

Has anyone improve there seizure symptoms via treatment center, neurologist, or home caregiver. Of the following which one was more effective.

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Profile picture for 27angel @27angel

@santosha I left the hospital not understanding so I am waiting for insurance to go back
I was not given medication due to being able to understand why am I here I just wanted to leave and I don't why I felt I was ok I compared laying outside with no response. When Ohio health brought me back I felt I was ok to continue living I had the seizure on 11/16/2025 I start declining on 12/7/2025 my memory just was there I realize I had been on my daily routine loss on interest no hobbies, lost passwords, misspelled words, balance off, right eye blurry, can remembering why I arrive no memory from 5am to 9am those were the hours I get up jog create content just stay in bed memory just struggling.

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@27angel
Now I'm getting a clearer picture. Thank you for being patient with my questions—I wanted to understand your situation better so I could be more helpful.
I know how it feels to lose track of things. Please try to be as kind to yourself as possible during this difficult time.
I hope you'll soon be able to get proper care and a full diagnosis, followed by the right treatment for you.
If I can help in any way in the meantime, please don't hesitate to reach out.
Chris

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@27angel
Good Morning
I'm truly sorry you're going through this. I understand those memory gaps all too well – I experience them too, especially when my seizures aren't well-controlled. The good news is that once you begin working with a neurologist and find the right treatment, these gaps may improve. I'm hopeful that will be the case for you. 🙏
Can I ask – have you experienced any other episodes since June? And did the hospital prescribe any medication when you were discharged?
I'm hoping you'll get clear answers and a diagnosis soon.
Chris

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@santosha I agree I find having too much going as I did before the seizure I just dealing with everything I can control. Which is getting help with this sudden event It feels so good just to be able to focused on the basics healing instead of the usually 300 hundred thoughts that I need to help so many now I just need to feed my brain small amounts we took it hit that on only certain kind of Humans understand why we just cant after this I appreciate our support group I will be headed to the neurologist soon.

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I was diagnosed with Focal Epilepsy at age 78yrs!! I go to Mayo Clinic Phoenix. At first they thought it was Migraine Amnesia but the medication did not work and then after more tests it was Focal Epilepsy and it was two years ago this month I started taking Keppra and have Not had another Serizure. I see my Mayo Clinic Neurologist every 6 months.. He actually lowered my medication some which helped not being so tired. Mayo Clinic has been great for other medical issues I have. I feel very grateful.

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Profile picture for 27angel @27angel

@santosha I agree I find having too much going as I did before the seizure I just dealing with everything I can control. Which is getting help with this sudden event It feels so good just to be able to focused on the basics healing instead of the usually 300 hundred thoughts that I need to help so many now I just need to feed my brain small amounts we took it hit that on only certain kind of Humans understand why we just cant after this I appreciate our support group I will be headed to the neurologist soon.

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@27angel
When my seizures got worse and my memory started to decline, my first reaction was to fight back. But honestly, that approach hurt me more than it helped. The harder I fought against the changes, the more painful they became to accept.
What really helped was learning to accept these changes instead of trying to continue with my life as it once was. That acceptance gave me a sense of peace and helped me find my smile again.
There's a principle in yoga called Ahimsa that was a true game-changer for me. It means "non-violence" or "non-harming"—including toward ourselves. I realized that trying to fight back was actually a form of violence against myself.
Please try to be as gentle as possible with yourself right now, especially while you're waiting to start treatment that will help you feel better.
Chris

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@27angel
When my seizures got worse and my memory started to decline, my first reaction was to fight back. But honestly, that approach hurt me more than it helped. The harder I fought against the changes, the more painful they became to accept.
What really helped was learning to accept these changes instead of trying to continue with my life as it once was. That acceptance gave me a sense of peace and helped me find my smile again.
There's a principle in yoga called Ahimsa that was a true game-changer for me. It means "non-violence" or "non-harming"—including toward ourselves. I realized that trying to fight back was actually a form of violence against myself.
Please try to be as gentle as possible with yourself right now, especially while you're waiting to start treatment that will help you feel better.
Chris

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@santosha I can understand that a calmer approach is the new treatment for my supposedly diagnosis as science will clear my next move. Rather theraphy or treatment that is the goal I need is to be able to change the game on waiting for the final results. I may have new evidence that calm me down just 12/11/2025 another deadly symptom arrive I dont have paid 24hr asssistance the Van Buren Housing situation oversees and was able to call EMS for care vital very vital. Once my results from my horomones I believe are in then they may be associatee with taking on too much. A lighter schedule could be made with the rest in the future right now just take meds and live thank you. I understand health I am from Michigan which is the most leading hospital so for Ohio Health to know HFHS perfect another relief very stressful trusting a Emergency Room Doctor so for the 4 time things have been corrected.

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Profile picture for mercuryrose @mercuryrose

I was diagnosed with Focal Epilepsy at age 78yrs!! I go to Mayo Clinic Phoenix. At first they thought it was Migraine Amnesia but the medication did not work and then after more tests it was Focal Epilepsy and it was two years ago this month I started taking Keppra and have Not had another Serizure. I see my Mayo Clinic Neurologist every 6 months.. He actually lowered my medication some which helped not being so tired. Mayo Clinic has been great for other medical issues I have. I feel very grateful.

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@mercuryrose Correct medication would help the focus is seeeing my past history before the treatment to them I already been diagnosed they just seeing is any new treatment since 2003 I keep you posted on this seziure and hormone imbalance. Wayne State University and American Red Cross is a alot to find but to healthcare connected thru that could make history if a cure is available. It worked this long I accomplish much down thru years I posted on Facebook, Youtube, and TIKTOK of the life I lived after 2003.

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Profile picture for mercuryrose @mercuryrose

I was diagnosed with Focal Epilepsy at age 78yrs!! I go to Mayo Clinic Phoenix. At first they thought it was Migraine Amnesia but the medication did not work and then after more tests it was Focal Epilepsy and it was two years ago this month I started taking Keppra and have Not had another Serizure. I see my Mayo Clinic Neurologist every 6 months.. He actually lowered my medication some which helped not being so tired. Mayo Clinic has been great for other medical issues I have. I feel very grateful.

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@mercuryrose

Congratulations on being seizure free for 2 years! Yes I found that Keppra works well for preventing my focal seizures, caused by “ a scar on your brain” quoting my neurologist.

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I too am a patient at Mayo in Phoenix. My Epileptologist is Dr. Draz (Drazkowski). My first appointment at Mayo was also well over an hour. Most importantly, Draz listens to me and encourages me to do my own research. Mayo has all the different varieties of neurologists. I was sent to a Movement Neurologist for my blepharospams. He and Draz worked together to help me. Because of my memory issues he encourages me to record our sessions. I've seen a lot of medical doctors and specialists for various conditions in my life and have never been treated as well by any of them as I have by Mayo.

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Profile picture for absentsenior @absentsenior

I too am a patient at Mayo in Phoenix. My Epileptologist is Dr. Draz (Drazkowski). My first appointment at Mayo was also well over an hour. Most importantly, Draz listens to me and encourages me to do my own research. Mayo has all the different varieties of neurologists. I was sent to a Movement Neurologist for my blepharospams. He and Draz worked together to help me. Because of my memory issues he encourages me to record our sessions. I've seen a lot of medical doctors and specialists for various conditions in my life and have never been treated as well by any of them as I have by Mayo.

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@absentsenior Glad to hear I had another vital add on to the seizure. The second symptom was hormone imbalance within the reproductive system. So painful the seizure no pain before or after just short-term and long-term memory. Cognitive, balance, sensation, level of voice so stress so my blood unbalance inside the reproductive system. Also respiratory as well blood pressure and temperature was low. Because I can only use what's available which after a first seizure get 24hr care just because you wont recognize your body. I just so happen to be in a facility, hospital, impatient, outpatient clinic food is more closer that makes it better now that I finally on one of the prescription to correct the neurological deficiency. According to six months of hormone treatment I am watched 24hr if something happens vital Ohio Health will impatient until the problem dissolve. Outpatient every three days working on transport due to my own way of life walking enjoying the day ,so yeah these are the three since one month ago things change for a short-term acceptance. Praying for a full recovery

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Profile picture for keeg1010 @keeg1010

@27angel ,
The thing that helped the most with my son's seizures was being able to get in to Mayo Clinic in Phoenix, AZ. My son's neurologist, Dr. Noe, is absolutely amazing. Our initial visit was over 2 hours long and included blood work and a referral to genetics, to see if there was something in my son's genes that would be a contributing factor. I would definitely recommend getting in to see a neurologist at Mayo. They are absolutely amazing and some of the most wonderful people you'll ever meet.
Another thing that was extremely helpful was keeping a daily journal (activities, sleep, stress, food, etc. ) to see if we could find a trigger to my son's seizures, since he is non-verbal. Having a strong, dedicated support team is crucial. I am so happy you found this support group. The people here are amazing and were EXTREMELY helpful when my son was first diagnosed (my son had adult onset epilepsy and is diagnosed with Mesial Temporal Sclerosis). Lean on the support you'll find here and your family/friends.
Kerry

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@keeg1010 Completely understand this epilepsy and cause was not even what I woke up thinking, I was thinking healing, but in order to properly heal you must know the start. I agree maybe tapping into genetics which I was already been there with the bloodline since 1918. If they will not say what I know is within my blood, then I can know it not preexisting. Rather something stressful is happening and its reoccurring. and I will not be able to control what is happening to everything I created with other inventors' superhero's in my adult life. Just because my life is stressful, I guess this would shut me down and seek medical help.

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